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RSD (Reflex Sympathetic Dystrophy) Doctors in NJ...

Posted 12-14-2008 at 11:31 PM by loislane711


I was diagnosed with RSD (Reflex Sympathetic Dystrophy) recently.It started out with a broken toe which resulted in RSD.I went through steroid injections to the foot,Physical Therapy(which made my condition worse),several Dr's,Pain Management Specialist & a Neurologist who did an EMG on both legs which in turn gave me more pain since.I've been on Percocet, Vicodin. Lidocaine Patches,Cymbalta, Oral Steroids, Lyrica..& several other drugs...Vicodin seems to be the only one that helps to some extent.If anyone knows of any doctors within NJ that are truly knowledgable in RSD,I'd greatly appreciate any information.The doctors I've seen to date all seem to say the same thing 'You're young, it'll get better in no time'..I've been hearing this for 6 months now & I'm 37, healthy & fit.I feel they see me as a healthy person & don't understand it has nothing to do with that but rather the nervous system-very frustrating to say the least.It leads me to believe they're not that knowledgeable & Im going to all the wrong Dr's.I was even referred to a Dr who's supposedly an RSD specialist & there were great reviews about him online..well..he told me that I was young & I'd be back at work in no time & ..Hmm.When I ask questions about RSD or tell Dr's that I've researched it in depth, I get referrals elsewhere or told that my condition is unexplainable.There has to be a doctor in NJ that understands this condition? People around me seem to not understand the pain I go through & that it fluctuates from day to day, I have good days then I have some pretty bad days..Help...Anyone out there that knows of a good doctor..please share information..
Thanks
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