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Chiari Malformation and Syringomyelia

Posted 04-28-2012 at 06:58 PM by cmh799702


My 2 year old daughter was just diagnosed 24 days ago with Chiari Malformation Type 1 and Syringomyelia. For almost a year and a half now we have been trying to figure out what is wrong and finally we have these diagnoses. Her neurologist said it is "simple", we are going to a neurosurgeon on Friday and I am so scared, nervous, etc... I was wondering if anyone in the New Mexico area has any information for us? I have researched, read, re-read, facebooked different groups/parents, and so forth but I am still not sure what the right questions are that I need to ask in order to help my daughter with her pain and possible surgery.
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Comments

  1. Old Comment
    hI am not familiar with New Mexico. I do believe that is the same disease that a friend of mine has. If you look up Christine Marches ,ano in Little Egg Harbor,New Jersey. I hope that helps. Sorry to hear about your daughter. What about Dr. Oz? That seems far fetched but worth a try.
    permalink
    Posted 04-29-2012 at 07:03 AM by duct tape duct tape is offline
  2. Old Comment
    Keep me posted.
    permalink
    Posted 04-29-2012 at 07:07 AM by duct tape duct tape is offline
  3. Old Comment
    Christine was born with cerebal palsey.
    permalink
    Posted 04-29-2012 at 07:09 AM by duct tape duct tape is offline
 

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