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Cyn.....the quality of your neighbors, the als clinic, your on-line friends.....and your bravery and courage and class.....more than makes up for the pygmy souls and shriveled character or your DH's sons. You will be alright. You are a force to be reckoned with. Just keep on going and don't be distracted.
Good morning friends!
Today is going to be better--rain and all! DH ate an entire meal last night and things and his constipation seems to be getting much better! Just a few more days until he get his feeding peg and hopefully that will help with a lot of the problems.
As far as his son goes, YL his son knows we need some help. My DH asked him last year before the ALS got this bad so they could work together on things. His son told us we would need to move closer to them---he would have his in-laws sell our home and we could rent closer to them and then they could help. We only live 48 miles from him. They are rarely home anyhow and we would know no one there. And why would he have his in-laws sell our home--to pay for our rent near him? Then I would have nothing so that is not ever going to happen. I guess because we didn't go along with it he decided we didn't really need his help. I know we are suppose to forgive but this boy makes that difficult to do. But he is the one who will have to live with it the rest of his life once his father passes away. My DH and I are very aware of his kids and how they think so we have tried very hard to make sure everything is protected legally for me.
Right now I have to concentrate on my DH and not let his son rent any space in my head! I just feel really bad for my DH cause I know it hurts him.
Well, that's some hopeful news- glad to hear it... I think you said the feeding tube was scheduled to be put in somewhere around the first week of April, was it? April 1 is next Tuesday, so it's coming right up. You know your DH will be getting the nourishment he needs with the feeding tube, and he'll be able to still eat what he can, just purely for taste, when he wants to.
Sounds like DH's son is one self-centered SOB- unfortunately, it seems there is no shortage of people just like him, certainly in our family as well. It hurts, especially when that selfishness is so blatant, but you're wise in not dwelling on something you can't do anything about. And you're both even wiser to protect you down the road from the vulture that DH's son would likely become. I know how it hurts to see one's own children, so carefully raised, loved, and provided for when they were young, become those vultures, and I am sorry.
But you know DH has the soul of generosity and unselfishness right there in you. I hope he knows that....
Cyn.....the quality of your neighbors, the als clinic, your on-line friends.....and your bravery and courage and class.....more than makes up for the pygmy souls and shriveled character or your DH's sons. You will be alright. You are a force to be reckoned with. Just keep on going and don't be distracted.
Well, CD won't let me increase your reputation for this post, Elston- got to spread it around first. But what a fanatastic post it is, Elston....... about says it all, I think....
Awww, you guys both have made me feel so much better about myself. I have such a low self esteem so much of the time and you just put some good back into me! Thank you from my heart--truly!
Awww, you guys both have made me feel so much better about myself. I have such a low self esteem so much of the time and you just put some good back into me! Thank you from my heart--truly!
You deserve m'lady...you deserve! Try to remember that the next time you are feeling low and beating up on yourself. There are many of us who admire you and all you do....even when you cant do everything you want to or everything that is expected of you.
We received this email last night--hope it's okay to post it---very important!
We need your help NOW to continue funding for the ALS Research Program (ALSRP) at the Department of Defense.Some Members of Congress are looking to cut or eliminate programs like the ALSRP in order to pay for other non-ALS programs. If the ALSRP does not have the support of multiple Members of Congress, it likely will not be funded next year.Reps. Joe Courtney (D-CT) and Dave Reichert (R-WA) have stepped up to champion our cause and are circulating a Dear Colleague letter to support continued funding for the ALSRP. We need your help to get as many Members of Congress as possible to sign the "Dear Colleague letter". We cannot overstate how important it is that you reach out to your Member of Congress. Make sure they know that the ALSRP specifically designed to find a treatment for ALS, a disease that strikes military veterans at twice the rate as the general public, and that italready has identified three potential treatments for ALS treatments that would benefit everyone living with ALS. Please urge them to sign the Courtney-Reichert Dear Colleague letter!
> The deadline for Members of Congress to sign the letter is just a few days away, Tuesday, April 1, so please contact your Representative today! If Congress does not hear from you, a program that has provided nearly $50 million in funding for ALS research may be eliminated to pay for other programs that have nothing to do with ALS.
> Contact Congress today!
Good morning dear friends...hope you all have a good day.
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