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Old 02-06-2012, 02:32 PM
Location: Charlotte, NC
714 posts, read 2,031,258 times
Reputation: 794


Mods, I don't know if it's okay for me to post this here, but this is about a Charlotte family and I feel compelled to share Kaitlyn's story here today.

I don't know Kaitlyn, I've only ever seen her at a distance when I was at a small fundraiser for her at Cajun Canvas. I don't know her mom, Deanna either. She's a friend of a friend.

Kaitlyn is a beautiful 2 year old girl who lives in Charlotte. She's battling Niemann-Pick Type A, which is the most rare genetic disorder I've ever heard of. (Something like only 5 children in the US have it.)

Sadly, Niemann-Pick Type A is a fatal disease. And Kaitlyn is very near the end of her life. Deanna posted the entry below today, and even though I am not a mother, and even though I am far from religious, it has struck me as the most meaningful, honest thing I have read in a long time.

I just keep coming back to read this over, and over today. I've read Deanna's blog for months, amazed at her faith, and thinking how if this ever happened to me, I could never, ever be as strong as she is.

The Bourgeault's are facing losing their daughter very soon, and I've tweeted about this, shared it on my Facebook feed, and now I wanted to post it here. I just want to share Kaitlyn's story as far and wide as possible, so this Charlotte family will have lots of prayers and thoughts on their side during this difficult journey.

Kaitlyn's Korner: The Road to Now

Mods, if this isn't allowed, please delete. But do me a favor and say a prayer for 'em after you do so. Thank you.
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Old 02-06-2012, 04:50 PM
2,839 posts, read 4,158,857 times
Reputation: 6889
Wow. Thanks for sharing that. What an amazing family. I cannot imagine the pain of losing a child. I will include the family in my prayers!
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Please update this thread with any new information or opinions. This open thread is still read by thousands of people, so we encourage all additional points of view.

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