Desperate for help finding good neurologist!!!! (Denver, Colorado Springs: living in, safer, eat)

[Pinecone55]

I am desperate to find a neurologist in the Colorado Springs (or even Denver area) who knows how to think outside the box and believe his/her patients when they explain what is wrong, and not give up until they have an answer and resolution to a serious problem.

My daughter has Pseudo Tumor Cerebri and has a VP shunt. She still gets extreme pressure headaches that make her so sick she throws up, even after the shunt has been adjusted a few times. It is completely debilitating for her; she cannot work. The shunt is working correctly but too many doctors have told her that if the shunt is working she should not have headaches. That is bull! and they are not migraines; she has been given several migraine medications to try and they make the headaches 100 times worse, then to that doctors have told her that means they are not migraines.....ok......so then what's causing it???

She has tried everything possible, and pain management doctors do not do anything for this. She belongs to an online support group for the problem and everyone has the exact same complaints: no doctor has come up with an answer, and these people suffering with this are accused of just wanting pain medications. No they don't!!! My daughter has gone to ER's asking for a spinal tap because even with the shunt, that is still the only thing that takes the pressure headaches away for only about two days. There have actually been a few people on the support group who have gone so long in so much pain with no help they have committed suicide! I can't believe that doctors don't get it and help!

Does anyone know of a really good and compassionate neurologist that is open minded, willing to listen, believes patients and will do something other than the same old thing all the other doctors who don't seem to care have done that does not work or help? This has become so painful for my daughter it actually scares me.

[artisan4]

Have you tried Rocky Mountain Cancer Centre in Boulder?

[D_Bronx]

Please search up the dr. Sanjay Gupta (sp?) CNN special on cannabis. There was a special strain created for a girl who was having constant seizures which helped her tremendously without having the 'high' effect, which her mother desired as she is just a kid.
This isn't your daughter's condition, nor is cannabis oil just helpful with those symptoms. It is also, according to patient testimony and lab research, curative for cancer. But it doesn't stop there. I know from experience that it is the best relief from chronic pain. It helped me when I felt like my head was exploding- whether this was from my cervical degenerative disc disease or concussion I don't know. I didn't even get the chance to try cannabis oil when I was living in Colorado, but smoking herb helped tremendously.

What I might suggest for your daughter is to have her try eating a small amount of cannabis oil obtained from a trusted source- in the morning and evening. Depending on her age, maybe she can try smoking Marijuana too. I would suggest an indica strain.
also try and watch 'run from the cure' and other cannabis oil documentaries. To determine proper dosing, please do the research. Cannabis oil is a highly concentrated form of the compounds found in marijuana, so take care with dosage.

I'm not a dr, but I do have personal experience. It might be worth a shot. As long as you are careful with dosing, it should be safe- much safer than many pharmaceuticals.

[Mike from back east]

D Bronx is referring to Charlotte's Web, a strain that does wonders for seizures. IIRC one or more eastern states is now working on legislation to allow this strain in their state(s) as it contains almost zero amounts of THC, the component that causes the "high" most people associate with smoking MJ. Here's a link to articles about it.

[D_Bronx]

That's right Mike. That strain, according to the docu, seems to have given a normal lifestyle back to Charlotte and her family. Thanks for the link. It's a common misconception that Marijuana is just about getting high, when it is proven to be an effective natural cure for so many conditions.
Rick Simpson advocates a high- THC Indica strain for conditions such as chronic pain. I believe his condition, a constant ringing sensation after suffering a head injury, was alleviated using the oil of such a strain.
From my limited knowledge, I would say that optimal thc content depends on the patient's age and specific condition.