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Old 10-05-2013, 05:44 PM
 
Location: Victoria TX
42,663 posts, read 74,259,760 times
Reputation: 36087

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Quote:
Originally Posted by newplace2013 View Post
Sorry but having distinct familiarity with situations like the OP's, that can't be any further from the truth. Top-notch Teaching/Research Hospitals are and will continue to be the best options for those with undiagnosed symptoms or care that hasn't yielded results in more conventional settings.

That is a fair point. Since you are familiar with the situation, maybe you can answer this:

Is it better for him to try to find a medical team that is willing to take him, and go there, or is it better to make a move and hope the hospital there will give his case the desired attention?

There are a very large number of patients with difficult and challenging diagnoses, and only a few will get the attention of a prestigious medical team. To narrow the field down to the five or ten best hospitals, the odds are overwhelming against him that the top-notch specialists will pay any attention to him.
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Old 10-06-2013, 09:50 AM
 
3 posts, read 3,411 times
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Quote:
Originally Posted by jtur88 View Post
That is a fair point. Since you are familiar with the situation, maybe you can answer this:

Is it better for him to try to find a medical team that is willing to take him, and go there, or is it better to make a move and hope the hospital there will give his case the desired attention?

There are a very large number of patients with difficult and challenging diagnoses, and only a few will get the attention of a prestigious medical team. To narrow the field down to the five or ten best hospitals, the odds are overwhelming against him that the top-notch specialists will pay any attention to him.
I disagree with your assertion that specialists are going to ignore any patient relevant to their expertise. They may not initially see said specialist (rather an associate MD) but their case will ultimately pass under their nose, particularly if it's a mystery and undiagnosed by many preceding physicians. The pick and choose routine does show up in elective, experimental surgeries but certainly not in the everyday world of treating and diagnosing acute/chronic conditions.
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Old 10-06-2013, 10:14 AM
 
Location: M I N N E S O T A
14,800 posts, read 17,713,305 times
Reputation: 9029
Quote:
Originally Posted by jtur88 View Post
You do not need "top notch medical care" -- that is reserved for foreign heads of state who come here with their private retinues. If you were across the street from a hospital with top notch medical care, you wouldn't even get a sniff of it. You'd still see the same internes and trainees in the ER and the same nurses on the floors, unless you were a poster patient they wanted to make an example of. The best doctor in the world can have an office across the street, but he will never hear of your case.

You need adequate, broad-based medical care, with reasonably comprehensive hospitals and specialists of all medical disciplines. Most cities with over 100,000 have that.

The "best place to live" for medical care is not the closest place to Mayo, but the place where you have reasonable access to the level of affordable care that ordinary citizens need and expect. Being in a "top notch" hospital might result, for one patient out of 50 or 100, in a significantly better outcome than being in an average hospital.
Mr Happy you should tell us about the major Expansions going on at the Mayo Clinic!
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Old 10-06-2013, 11:07 PM
 
12,660 posts, read 10,501,376 times
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New York City area.
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Old 08-22-2014, 05:07 PM
 
6 posts, read 11,772 times
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Default top notch medical care?!

I have to agree with the person who requested top notch care and 100% disagree with the person who claimed it is not important. I had also struggled with a mystery illness for 20 years. I had a health crisis one night and went to the emergency room at the greater baltimore medical center. The doctor on call was a top notch doctor as well as being an extremely close collague with a Dr clair francomano, who lead the harvey institute of genetics. Upon a five minute examination the er doctor was able to tell me i was a shining example of my disease. She KNEW exactly what condition i had and refered me to dr francomano stat. This would never and had never happened before at any of the 100 perfectly adequate doctors or hospitals i went to before. NoW i agree that if you have a cold, flu, strep throat most emergency rooms are adequate. IF you deal with mystery illness involving possible spinal, brain,neurology, or muscular atrophy, or anything "mysterioys" enough to put one in a wheelchair, then you want, GBMC, mayo clinic,johns hopkins,cleveland clinic,shands,long islands chiari institute etc. Dont mess around thinking the average doctor is going to understand your condition if you turn out to be 1 in a million like i am. Most doctors even good ones are still taught"if you hear hoofbeats think horses not zebras"..that is..that the most loogical is the most probable..well sorry folks..some of us are zebras..also wanted to mention that for someone who suggested hud housing as a simple alternative to living with family?..some hud housing has a wait list of 8 years. DO not give up on finding out what you have. Blessings to all in the same boat.
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Old 08-22-2014, 05:25 PM
 
1,577 posts, read 2,202,242 times
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The OP might want to look at the University of Iowa Hospital and Clinics in Iowa City. Excellent public teaching hospital and dental college, public transportation including for the disabled, wheel chair accessible. If a veteran, the VA Hospital is located next door and many veterans get referrals to the University for more complicated cases. Cost of living is lower, but winters could be a deterrent.
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Old 08-22-2014, 05:26 PM
 
Location: California
4,554 posts, read 5,470,957 times
Reputation: 9608
Default YOU The Smart Patient

Quote:
Originally Posted by emgiggles View Post
I'm 30 years old and disabled (occasionally use a wheelchair & it's surprising how anti-wheelchair accessible some places can be) with an undiagnosed mystery medical condition. Where I currently lives is one of the worst places to be in such a situation and after years after trying to find an answer I've decided it's time to move (family has kept me here so far). I'm just trying to find the best place. I'm unable to work so I live on SSI and SSDI so I'd like to find a place that's affordable, decent weather, easy transportation (I don't have a car), preferably a smaller town, and of course a town with good medical care. I've been doing some research and looking around but I thought I'd post here and see if anyone had any suggestions.
I highly recommend YOU The Smart Patient by Roizen and Oz, which has valuable information regarding how to find the best doctors and hospitals.

From my personal experience a good doctor makes all the difference for your short and long term well being. We had employer based (cheap) Kaiser insurance for several years and they missed many issues for both of us.

Best of luck.
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Old 08-22-2014, 05:44 PM
 
Location: Pittsburgh
3,145 posts, read 2,827,316 times
Reputation: 2858
This is one of the wisest threads ever posted on this site. I broke my leg and the experience makes one start to look at life differently. The quality of health care and accessibility are incredibly important.

I would also be one to say pick a city with a teaching hospital.
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Old 08-22-2014, 06:12 PM
 
Location: Pittsburgh
3,145 posts, read 2,827,316 times
Reputation: 2858
Another issue may be what level of trauma center they have at the hospital.
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Old 08-23-2014, 10:32 AM
 
Location: California
4,554 posts, read 5,470,957 times
Reputation: 9608
The book I recommened also discusses the level of hospital care and which one to be taken to if you are in a car accident, which may not be the one you want to go to if you are having a heart attack. Always best to do your research before you urgently need care. Also, if you responsible for a child, be aware that not all Emergency Depts. have proper pediatric equipment so ask questions before you are stressed with an emergency.


Check out: Accreditation, Health Care, Certification | Joint Commission
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