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Old 08-21-2010, 03:36 PM
 
Location: Philadelphia, PA (Wanting to move) --Burlington, VT, Asheville, NC, Boulder, CO?
129 posts, read 327,970 times
Reputation: 34

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Hi, I was diagnosed with hypothyroid in March... my results came back a TSH of 7.0 I believe. I assume that's high? I know the normal range is up to 3.0 (The old scale was 5.0).

At any rate, I started off on 50mg (the white pill) of Synthyroid. After about 2.5 months of being on the white pill I became hyperthyroid! I was immediately switched to 25mg (the reddish-orange pill) of Synthyroid. It's been another 2.5 months, and I am exhausted... moody, tired... eyes are red (probably from fatigue), etc. I am basically feeling how I was when I first was diagnosed.

My conclusion is that 25 is not enough med and 50 is entirely too high. I am going to need to consult my doctor and ask about breaking the pills in half and taking 37.5 mg's. That means I would break the 50 in half (25) and the red (12.5) = 37.5, or half of the 75 (37.5) =

Does anyone have any thoughts about breaking the pills in half? If my doctor gives me the go I'm going to actually buy a pill cutter because I've tried breaking the pills in half before, and they crumble! They're too small and soft...

At any rate, has anyone had any success with 37.5 mg's?

I am not "Hashimoto's" by the way, strangely enough... I think I may have had a bacterial or viral infection that set of my thyroid. I'm not sure if that's called "Thyroiditis?" My doctor (endocrinologist) is not very good, and I've had a bad feeling about her from the beginning. I know that it's important to have a knowledgeable, trusting doctor. I will be switching soon.

Last edited by Not2bforgot10; 08-21-2010 at 03:48 PM..
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Old 08-21-2010, 04:18 PM
 
48,522 posts, read 79,077,016 times
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Fro waht i saw with my mother in law it can take some time to actauly get the doage r8ight and mnay that are too overweight it can be even harder. It kind of reminds me of getting blood pressure under control; weight and diet pay a big part from what I have seen.If you have no confisdence get anther specialist but you may find it has to do with life stylre and actaully getting use to not be as you were really.
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Old 08-21-2010, 05:52 PM
 
Location: Georgia, USA
20,194 posts, read 24,730,695 times
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Are you getting the brand name Synthroid or a generic? If it is a generic, have all the prescriptions been from the same manufacturer? The generics should work fine, but you want to stick with the same source. Otherwise the dose may need to be adjusted every time the pharmacy changes the manufacturer.

What hyperthyroid symptoms did you have on 50 mcg? What was the TSH? Are you taking any other medications?

And to answer your question, I did a little experiment. I take 50 micrograms (and it is micrograms, not milligrams!) of generic levothyroxine (from Lannett), and I easily split a tablet with a splitter. So that should work. The most economical way to do it would probably be to take half of a 75 mcg tablet, if it turns out that is the dose you need.

I have just been taking it a few weeks, and the dose I am on now was my starting dose. It sounds as if your endocrinologist started you with a very conservative dose, and going up to 50 mcg was not unreasonable.
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Old 08-21-2010, 06:23 PM
 
Location: In a house
13,262 posts, read 33,575,529 times
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I'm guessing you're taking 25 micrograms, not 25 miligrams. I take 100 micrograms,, because I only have one node. The other was surgically removed due to a tumor growing on it.

25 mc is the lowest dose it comes in. Pill splitters are cheap, or you could just crack them with a very sharp knife. Definitely ask about taking one and a half of the 25 mc pills.
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Old 08-21-2010, 07:31 PM
 
Location: Alexandria, VA
10,226 posts, read 18,267,707 times
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NOBODY here should be advising you on splitting your pills, etc. until you get a correct diagnosis. It takes time for your body to adapt to the meds. - sometimes (and this happened in my case) you might need one dose one day/another the next day and you alternate. I know someone who takes one pill, skips a day, takes a half, etc. - Bottom line: get a doctor you trust and give it some time for them to get the dosage that's correct for you.
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Old 08-22-2010, 05:02 AM
 
167 posts, read 731,511 times
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When it comes to thyroids, not every Dr. knows a lot about it. I have been on thyroid medicine for many years and have found that there is a difference in doctors. If you thyroid is off you will not feel good. Some Doctors are much better but to find a good one is difficult.
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Old 12-08-2017, 03:28 PM
 
2 posts, read 846 times
Reputation: 15
I honestly don't think most give a hoot about getting their thyroid patients on the correct medications or dosages. All I have read on different boards is that when many of us get symptoms after starting levo generic or the like even brand synthroid, side effects of cold hands/feet, weight gain, hair loss, dizziness and other side effects, many doctors don't believe it and think we are whiners and they don't seem to have much patience or compassion and desire to find solutions. On many boards on the Internet, I have never heard of a worse group of doctors overall than primary physicians who try and treat thyroid and also, many endo's who don't have a clue and just want you as a life long patient. Sounds cynical, but they make it true. I've talked to many women over the years that struggle with the minutiae in the thyroid 'issues' we women often have and most are tired and frustrated that there aren't more consistent answers with good treatment options and little if any suffering finding your way through this.
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Old 12-08-2017, 03:40 PM
 
Location: Santa Monica, CA
15,190 posts, read 4,774,898 times
Reputation: 10472
Quote:
Originally Posted by Susers View Post
I honestly don't think most give a hoot about getting their thyroid patients on the correct medications or dosages. All I have read on different boards is that when many of us get symptoms after starting levo generic or the like even brand synthroid, side effects of cold hands/feet, weight gain, hair loss, dizziness and other side effects, many doctors don't believe it and think we are whiners and they don't seem to have much patience or compassion and desire to find solutions. On many boards on the Internet, I have never heard of a worse group of doctors overall than primary physicians who try and treat thyroid and also, many endo's who don't have a clue and just want you as a life long patient. Sounds cynical, but they make it true. I've talked to many women over the years that struggle with the minutiae in the thyroid 'issues' we women often have and most are tired and frustrated that there aren't more consistent answers with good treatment options and little if any suffering finding your way through this.
It's a pathetic health issue I believe. I went 10 long yrs NOT getting thyroid support but a lot of anti depressant drugs. Finally my D.O. put me on armour back in 2002, no labs nothing...and the 10 yrs of depression lifted in a short time. I've worked ONLY with desiccated support, not the standard medicine conventional MD's are taught to prescribe.

I've been on several thyroid support groups also and feel the best info from Stop The THyroid Madness group and blog. I bought the book and have my levels pretty close to what the author believes to be OPTIMAL for people with HypoT.

When I started on Armour in 2002, I learned how to break off pieces and dose up every couple weeks or so and go by SYMPTOMS and not the doctor's numbers.

So at about 16 yrs later I'm mostly taking Naturthroid desiccated (I have an integrative MD) and am at 130mg. Levo was given to me years ago and the fatigue from it had me almost falling over.

The thyroid is so important and so overlooked and so many are dealing with issues that COULD be thyroid related. I believe the current "standard of care" for thyroid support fails so many.

Since Levo contains only T4, it's been said that many probably do not convert T4 to T3, whereas desiccated contains both and more.
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Old 12-08-2017, 06:53 PM
 
282 posts, read 96,318 times
Reputation: 636
Quote:
Originally Posted by Susers View Post
I honestly don't think most give a hoot about getting their thyroid patients on the correct medications or dosages. All I have read on different boards is that when many of us get symptoms after starting levo generic or the like even brand synthroid, side effects of cold hands/feet, weight gain, hair loss, dizziness and other side effects, many doctors don't believe it and think we are whiners and they don't seem to have much patience or compassion and desire to find solutions. On many boards on the Internet, I have never heard of a worse group of doctors overall than primary physicians who try and treat thyroid and also, many endo's who don't have a clue and just want you as a life long patient. Sounds cynical, but they make it true. I've talked to many women over the years that struggle with the minutiae in the thyroid 'issues' we women often have and most are tired and frustrated that there aren't more consistent answers with good treatment options and little if any suffering finding your way through this.
Those aren't "side effects." That is just the result of incorrect dosing. It's the exact same effects that you'd have if your body naturally produced too much T4. How is this possible? Because synthroid/levo are just synthetic, chemically identical T4. There's nothing in it for your body to react to, unless you're allergic to the colorant or suspension material that is used to create the pill form.

I've never experienced any doctor I've been to dismiss ANY concern I've had, about almost anything at all, let alone my thyroid.
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Old 12-08-2017, 07:54 PM
 
Location: Wine Country
4,488 posts, read 5,571,497 times
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All of my doctors have been concerned with my thyroid. It is well managed and I am on the correct dose. I do suggest that you see an endocrinologist to deal with thyroid issues, and not just a GP.
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