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Old 04-27-2011, 06:15 PM
 
24 posts, read 45,399 times
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They claim this is 98%-100% accurate and more effective at detecting Lyme disease. I was wondering if anyone has had this "new" test done?
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Old 04-27-2011, 09:53 PM
 
Location: Southern New Hampshire
4,542 posts, read 11,752,396 times
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jenni, I am going to ask about this at the next Lyme Support Group meeting. With all of the controversy of the ELISA (which is completely unreliable but remains the test that NIH and CDC recommend) it would be great if there was another option. Even better than initial diagnosis, this would be great if it could determine if there are active spirochetes in the blood after the initial infection. Feel free to DM me with any info get, and I'll do the same.

By the way, Under Our Skin (the Lyme movie) will be screened at Hollis Brookline High School auditorium on Tuesday, May 10 at 6:30 PM. This is a must see if you live in a state that is endemic to Lyme. PBS stations will also be airing the movie, I believe starting in May.

http://www.underourskin.com/screenings.html

Last edited by Valerie C; 04-27-2011 at 10:03 PM.. Reason: added link for Under our Skin
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Old 06-08-2011, 07:20 PM
 
149 posts, read 189,470 times
Reputation: 31
If you find anything out about LIPS let me know. I have 4 family members with lyme. we camped in Lyme CT 20 years.
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Old 06-08-2011, 07:27 PM
 
Location: Greenwood Village, Colorado
2,185 posts, read 3,894,120 times
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I have chronic neurlogical lyme. I was dx years ago after having several ELISA. All positive, 5 strains were found and if you can even get one strain found I think it's time t move on. I don't understand why people are convinced they have Lyme disease. I was first treated by Dr. Steven Phillips in Ridgefield CT. Any Lymey will know who he is. He would agree Lyme can be difficult to get a positive test later on but he also stated that not everyone has lyme!
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Old 06-11-2011, 12:13 PM
 
Location: Whiteville Tennessee
8,262 posts, read 15,970,893 times
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My doctor REFUSED to believe that I had Lyme Disease even after 5 postive blood titers. It wasnt until the bullseye rash showed up at the bite site that he reluctantly agreed to that dx. By then I was pretty darn sick.
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Old 06-11-2011, 05:57 PM
 
Location: Greenwood Village, Colorado
2,185 posts, read 3,894,120 times
Reputation: 1536
Quote:
Originally Posted by Capt. Dan View Post
My doctor REFUSED to believe that I had Lyme Disease even after 5 postive blood titers. It wasnt until the bullseye rash showed up at the bite site that he reluctantly agreed to that dx. By then I was pretty darn sick.
I hear this a lot. I believe the reasoning is they claim you are not currently infected. Problem is, you get sicker and the longer it goes on that harder it is to treat.
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