Anyone else have RLS (Restless Leg Syndrome)?? (thyroid, hormone, diet) - Doctors, illness, diseases, nutrition, sleep, stress, diet, hospitals, medicine, cancer, heart disease - Page 3 - City-Data Forum

Blockheadofaknew · 09-11-2007, 01:54 PM

I think walking in the evenings can help

vestabula · 10-17-2007, 01:32 PM

Just wondering if anyone has experienced RLS during the day. i was diagnosed with this disorder back in the mid 90's and up until now, only experienced these crawling/tingling sensations when i went to bed. The other day, after sitting at the computer for three hours, then going to jury duty for another 7 hours...THEN sitting in a concert for another 4 hours, the sensation came on like gangbusters. It went away for 2 days, then returned and has not gone away since. It is worse when i sit/laydown. When i walk around the tingling/crawling goes away but I feel kind of like a tightness in my calves. And here's the funniest thing...if I have no clothing against my skin, I don't feel the sensation either, unless I'm sitting. It is not painful nor are my legs weak. I just feel like I am spending my days trying to kick-it-off!

Anyone else get it all day long???

Mattie Jo · 10-18-2007, 05:45 AM

Vesta, You are sitting around too much, and that can be harmful to you. It can even cause blood clots in some people. I used to sit at the computer for hours and ended up with pain in one of my chins and a swollen ankle. Scared the wits out of me. Took me months to get rid of it. My sister sat around on the computer all day and ended up with blood clots as did my husband because he sat around too much, but he didn't know why the back of his legs were in pain and so one day he couldn't breath. Scared us both. The ambulance took him to the hospital with blood clots in his lungs. I would say get out and start taking long walks. and if you have to sit long hours take breaks and get some energy into those legs.

lilypad · 10-18-2007, 11:02 AM

Exercise is key to helping RLS, as well as staying away from vasoconstrictors (caffeine, smoking, etc.). Anemia should be ruled out, as someone stated. If you are taking iron supplements, do not take with calcium, as iron binds with it and you won't get the full efficacy. Be careful with quinine!! It can cause heart fluttering in susceptible people (women), or those with heart disease. So check with your doctor first. Hyland's has quinine in it, I take it for my mild RLS, and if I take too many I get those scary heart flutters!!

One med to think about or ask about is clonidine (not Klonopin, though that has been found to help as well, but is addictive). Has been found to help curb smoking addiction, as well as helping RLS in some people. This is cardiac med, so have to again talk with your physician about it. Is an old med and much cheaper than the newer RLS meds out, which can ALSO cause alot of side effects.

vestabula · 10-19-2007, 08:20 AM

thanks so much for the advice. I am a writer so I know I spend too much time sitting at the computer. I had just never experienced the sensations all day long before.

mmckenna · 10-19-2007, 06:38 PM

As a clinical researcher currently involved in clinical trials for RLS, be aware that RLS stems from CNS, the central nervous system, i.e., the brain. SO yes, the jumpy feelings in your limbs are nerves, which are based in the brain. Lack of iron to the brain is the major cause of RLS. Now, some people may get their iron checked and it will be fine, but if the iron is not passing the blood/brain barrier, then you can suffer from RLS. Iron needs to get to the brain. Some of the new medicaitons help that happen. If you are interested in getting some of the latest RLS medications that are being tested in clinical trials for free from a neurologist, then go to Centerwatch.com to look up where the clinical trials are being held. I have seen some great results for people who have tried everything, to no avail. It might help some of you who are ready to lose your mind from lack of sleep, or cannot afford to see a doctor and pay for medication.

rlsdays · 10-31-2007, 10:12 PM

Quote:

Originally Posted by lilypad

Exercise is key to helping RLS, as well as staying away from vasoconstrictors (caffeine, smoking, etc.). Anemia should be ruled out, as someone stated. If you are taking iron supplements, do not take with calcium, as iron binds with it and you won't get the full efficacy. Be careful with quinine!! It can cause heart fluttering in susceptible people (women), or those with heart disease. So check with your doctor first. Hyland's has quinine in it, I take it for my mild RLS, and if I take too many I get those scary heart flutters!!

Yea true, I've been exercising and have been seeing great results. I can finally get some much needed rest. I've also been checking out movemylegs which is a forum that gave me the idea to start working out.

GloryB · 09-29-2008, 12:02 PM

While I was in the process to quit smoking...I thought the RLS was from smoking withdrawals. Only some months later did I realize it was a problem unto itself. Exercise and water has made a tremendous difference in whether I'm going to get a good night's sleep or not.

Since my RLS didn't get bad until after I quit smoking, I always wondered if a little piece of one of those nicotine patches would help at night.

joee · 09-30-2008, 02:43 AM

Requip is good

annmcal · 08-09-2009, 12:44 AM

I have Restless Leg Syndrome so bad that I am taking Meripex, pain pills, and Lyrica and a lot of times these do not work. Requip never worked. The pain is so bad and so intense that I end up crying every night. It is just like torture it hurts so bad. I have had RLS for the past 28 years. Mine is getting worse all the time. Does any one else experience this kind of pain with RLS?