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Old 12-03-2011, 05:35 PM
 
Location: Allentown, PA
61 posts, read 97,603 times
Reputation: 140

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Hi everyone,

Last year at the age of 44 I was diagnosed with Menier's Disease.
Does anyone else here suffer with it?

It currently affects my right ear and as of this posting I'm suffering some vertigo symptoms and hearing loss associated with it.

I take meclizine to lessen the vertigo.

It seems to go in cycles and in a few days it will go back into remission.

How about you?


Julia
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Old 12-03-2011, 06:47 PM
 
4,662 posts, read 5,907,077 times
Reputation: 9447
My husband was diagnosed with this problematic disease over 10 years ago. It does go in cycles and you will learn what sets yours off. His can be alarmed by weather changes, blinking lights and sounds, and too much computer usage. On more than one occasion I have been summoned to the ER because he passed out or collapsed and was taken to the hospital by ambulance.

Do you have the noise in your ear or ears yet? Hubby has lost 90% of hearing in left ear and about 20% in right ear. Most of the time he hears radio static in his left ear.

I know there is a surgery, but the few people I know who have had it lost the static sound, but also completely lost their hearing.

Try to cut as much salt from your diet as possible. Excessive salt intake will bring on an attack.
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Old 12-03-2011, 06:57 PM
 
Location: God's Country
21,416 posts, read 29,533,607 times
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I was thinking of starting a thread like this because I have it too. I have lost almost all my hearing in my left ear and have a ringing sound 24/7. I went months without any attacks, now I am them often, I think because of the weather changes. I take the meclizine every night to keep it at bay. A low salt diet is supposed to help and that is HARD because salt is in just about everything. It can be frustrating because there is no know cause or cure for it. Amazing how fast it can hit you.
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Old 12-03-2011, 10:38 PM
 
Location: Up above the world so high!
45,270 posts, read 86,039,386 times
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I am so sorry you guys are suffering from this exasperating disease! http://www.webmd.com/brain/tc/menier...topic-overview

I recently read how the Broadway actress and singer, Kristin Chenoweth copes with having Meniere's Disease herself.

Perhaps her story would interest or inspire you

Down-home Diva Finds Strength and Comfort in Prayer - Guideposts
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Old 12-03-2011, 10:50 PM
 
Location: Up above the world so high!
45,270 posts, read 86,039,386 times
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Forgot to add, there is a facebook page for those with Meniere's and those studying it. Perhaps you could connect with others there for support and information.

Meniere's Research Fund Inc. | Facebook
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Old 12-04-2011, 10:50 AM
 
Location: Allentown, PA
61 posts, read 97,603 times
Reputation: 140
Hello everyone,

Thank you all for responding. :O)

Yes I have ringing in my right ear and according to the latest audiology report I have permanently lost 75 percent of my hearing in that ear thus far.

God bless all of you.


Julia
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Old 12-16-2011, 06:23 PM
 
Location: God's Country
21,416 posts, read 29,533,607 times
Reputation: 29917
I had two bad spells this week. Wish there was something I could do for this!!!
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Old 12-16-2011, 06:48 PM
 
Location: Up above the world so high!
45,270 posts, read 86,039,386 times
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Quote:
Originally Posted by I LOVE NORTH CAROLINA View Post
I had two bad spells this week. Wish there was something I could do for this!!!
I'm so sorry to hear this
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Old 12-16-2011, 06:51 PM
 
Location: God's Country
21,416 posts, read 29,533,607 times
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Quote:
Originally Posted by lovesMountains View Post
I'm so sorry to hear this
Thank you. It's very frustrating, because it hits with no warning. Been told by two doctors there is nothing to do for it.
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Old 01-11-2012, 08:36 AM
 
1 posts, read 1,970 times
Reputation: 10
Take the low salt diet seriously. Yes, it is very hard, but do you want to get rid of that insane noise in your ear? If you aren't seriously counting the sodium mgs, you are probably eating too much salt. Yes, it is in almost everything. I discovered that I was eating so much salt that just cutting mine in half has worked. Low sodium potato chips, no sodium peanuts, absolutely no soups, unless you make it yourself. Eating out is difficult, but you learn to make it work to rid yourself of that awful noise. [mod] need at least 10 other posts to make specific recommendations [/mod]

Last edited by SouthernBelleInUtah; 01-11-2012 at 09:48 AM..
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