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Old 07-03-2013, 07:58 PM
 
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Quote:
Originally Posted by evanf87 View Post
I've been on 50mcg levothyrixine for about 4 months now. I feel better than before I was on the medication but something still just isnt right. Im notmally a very active person. Im about 20 pounds over MY average weight and just dont have the energy to keep exercise consistant (because of my energy being so low) to lose the weight. if i go through my normal gym routine after about 15 minutes i get hit with fatigue, but its not the same as when i used to become fatigued from the gym. I get super weak and my thinking becomes cloudy. my doctor said my T4 levels have been "adequately replaced". ive been tested for anemia and just about everything else. I am giving Synthroid a shot to see if that helps although im not sure how it will because my T4 levels are "normal". Im wondering if i should see an endocrinologist. any suggestions?
My blood work was always normal too, even though I have an enlarged goiter. When I got a new GP after my blood work came back normal he sent me for an ultrasound. The ultrasound showed a nodule. From there he sent me to the endocrinologist, and they did their own bloods, ultrasound and ultimately a biopsy on the nodule. the nodule isn't growing but it interferes with my hormone production. My Synthroid level has been raised three times, I am still on a relatively low dose, 75 mcg.

I recommend you have an ultrasound done.

Hypothyroid medication is not meant to help you lose weight. It is meant to regulate your thyroid hormone levels. However, like you, I was tired all the time. The increase to 75 mcg has made a difference.

Set lower exercise goals if you are not meeting the goals you have set now. If 15 minutes is all you can do, do 15 minutes. Eat healthy foods, lots of protein, but keep everything in balance. Avoid sugar, it is a depressant.

In fact, perhaps you need an antidepressant, too. Talk to your doc about it.
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Old 07-03-2013, 08:32 PM
 
Location: Mostly in my head
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There are a number of thyroid tests to run. Did your doctor do all of them? A thyroid specialist (not all endocrinologists are one) can order and interpret all the tests.
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Old 07-10-2013, 06:21 PM
 
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the last time i went in for blood work i got 6 viles filled. she said she ran everything but who knows what that means. im going to try and see if i can get her to recomend me to a specialist, i would trust them more. in the mean time im thinking about taking 1 and a half of my synthroid to put me at 75mcg but i dont know if its a good idea or not, ive heard of people doing it and it has helped. any suggestions?
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Old 07-10-2013, 06:25 PM
 
Location: Mostly in my head
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I have no thyroid function to speak of (radioactive iodine tx for overactive), I weigh about 140 and I take 100 mcgs/day. When I weighed 250, I took 150 mcgs. Don't know what to tell you.
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Old 07-22-2013, 12:16 PM
 
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I just started on levothyroxine about six weeks. Unfortunately for the first three weeks at least I wasn't following the directions; you're supposed to take it on a completely empty stomach (no food 2 - 3 hours before or after), which I wasn't doing. Once I realized that and started taking it correctly, the change in my energy/vitality was dramatic! And my count went from something like 6.3 to 1.7. So, thus far I have no problem with the generic!
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Old 08-03-2013, 02:28 AM
 
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I found better results with the synthroid. My thyroid stopped being swollen and I had fewer problems. Since being back on the levothyroxin my thyroid is swelling again and I am exhibiting more anxiety again. And not having the right doseage of the hormone can cause problems and weight gain, even if you are eating properly and doing things correctly. They thyroid regulates a myriad of things in a persons body. Metabolism and adrenaline and other things throughout. If you are having too many or not enough fo the hormone, things go out of wack. you can do everything correctly and still have negative results. So stick with it and find what works for you. Different things work for different folks. I have found most generic drugs do not work for me. And what works for one person does not work for another. Just stick with what works and if it doesn't work stay on top of your doctor about the solution. I kept telling my doctors for years something was wrong and they never listened. 8 years later and a lot of it was all my thyroid.

Beka
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Old 02-07-2014, 04:31 PM
 
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lubby and asitshouldbe...Levoxyl is another generic for Synthroid. And I cannot take it nor Levothyroxin...I am very sensitive evidently. I am at dose 175mcg Synthroid, I first was diagnosed and put on Synthroid in 1994, beginning at 50mcg, it was gradually increased over a two year period until I reached 175mcg, where I have remained. About 2005 my insurance company unbeknownst to me refused to cover the Synthroid. My pharmacy filled my RX with Levoxyl. I realized after a few weeks I was feeling awful. I looked at the bottle and realized then I was on a different medication. My physician checked my levels. My TSH had increased to 4.0. He wanted to try it a little longer. Another six weeks. By then I wanted to hurt somebody. I was really feeling bad. He switched my back to Synthroid, but not to my 175, but to 150...for another month....unless you have suffered through this you cannot understand how insidious the change comes on...gradually...and it takes some time to get back to normal feeling once the right dosage is reached. His reason at that time for the lower dosage was that I was going through menopause. He was concerned I might get osteoporosis if my dosage was too high. Anyway, to make a long story short this caused me to gain more weight ...the weight, once gained does not come back off. Being on the right dosage has seemed to stop my weight gain. So, while I WAS 145-150 lbs when I was a normal healthy adult woman, I had gained 40 pounds and could not lose it to begin with. I had been active and had a gym membership where I worked out. My doctor told me my thyroid was fine. But, as I felt more and more tired, I got where I started missing the gym. And I got so I seemed to crash in the evening within a span of about 30 minutes I would go from feeling fine to being completely exhausted. Raising my arms above my head seemed to take so much effort. I would put the dishes up from the dishwasher and go sit down to rest...and fall asleep. Before I was diagnosed I would fall asleep at a traffic light waiting for it to change. I would doze off at work waiting for my screen on my computer to move. I had forgotten what it felt like to feel normal. I gained 100 pounds over 5 years. Then one day my heart started racing at work. I worked at a hospital, so I was wheeled to cardiology when my heart rhythm had not slowed after about 30 minutes. After wearing a holter monitor for 48 hours, an EKG, bloodwork, etc the results were in...it was my thyroid. So, that was in 1994. In 2005, after the medication screw up I gained from 268 to 285, where I still remain. Oh, and for me, the reason it was not diagnosed sooner was because I was in the "normal range" when I first went to the doctor after the weight gain of 40 pounds. But...it was not what was "normal" for me. I have to stay below 2.0 with my TSH. In fact, I feel best at 1.6. Yes, I know it fluctuates. But if I get to 2.5, am feeling it. If I get to 3.5, I feel bad. If I get to 4, I want to hurt somebody....whoever is responsible for screwing up my meds would be my sublime target. Finally, my doctor determined I have to be on Synthroid, and at 175mcg, and he wrote a letter to the insurance powers that be and told them it is MEDICALLY NECESSARY for me to be on Synthroid, not a generic. And that worked...for that year. Go figure, every couple of years they come back and require him to send another letter in telling them it's medically necessary for me to be on Synthroid. And get this...when I last looked at an EOB, I found they are not even paying ANYTHING toward the RX!! Here are symptoms I have when the RX was off: EXTREME fatigue. Scalp pain. Eyes tearing when I lay on my side. Headaches. Tinnitus (have it all the time, but it got to the point I thought I was going insane), intolerance to cold, hair loss. FACE BLOATING, HANDS BLOATING, depression. I never get relief from all of the symptoms, I still lose hair. I can see the shape of my head through my hair. When I was young I had thick thick hair. My eyebrows are pretty much gone. I have to draw them on using brown eyeshadow and a brow brush. My nails are thin, break. I have developed other autoimmune diseases (I do have Hashimotos Thyroiditis) I have psoriatic arthritis and psoriasis. This has definitely made me feel older than the 60 years of age I am. It's better, but the effects are never completely relieved.
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Old 02-08-2014, 01:24 AM
 
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It is really not true that someone cannot lose weight once it is gained if you have hypothyroidism at the right dosage. I have lost 10 lbs and am sill losing and my dosage is correct. One of my friends has hypothyroidism and she gained weight in the extreme, going so far as to reach roughly 190 lbs and she lost it all the way down to 115. Proper diet and exercise as well as self-motivation play a big roll in it.
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Old 02-08-2014, 01:47 PM
 
Location: South Carolina
1,615 posts, read 2,832,251 times
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I have hypothyroidism and my Levothyroxine is leveled. I eat whatever I want (in moderation of course) and run about once a week. I am not gaining weight and maintain visible abs. Just because you have hypothyroidism doesn't mean you're going to gain weight or get fat. I think some are using their illness as an excuse of why they aren't in shape. If I was gaining weight, I would step up my running and eat healthier foods... basically whatever I have to do to keep the weight off instead of making excuses.
I have had many other symptoms in the past, such as hair loss, being very fatigued, and I still struggle with dry skin. I like taking Levo and feel great 6-7 days a week.
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Old 11-17-2015, 07:00 PM
 
1,300 posts, read 636,866 times
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Quote:
Originally Posted by DebiC123 View Post
lubby and asitshouldbe...Levoxyl is another generic for Synthroid. And I cannot take it nor Levothyroxin.. . . . refused to cover the Synthroid. My pharmacy filled my RX with Levoxyl. . . . I was feeling awful. . . .(doc) wanted to try it a little longer. Another six weeks. By then I wanted to hurt somebody. ....unless you have suffered through this you cannot understand how insidious the change comes on... . . . caused me to gain more weight ...the weight, once gained does not come back off. . . . doctor told me my thyroid was fine. But, as I felt more and more tired, I got where I started missing the gym. And I got . . .to being completely exhausted. Raising my arms above my head seemed to take so much effort. . . . . . .not diagnosed sooner was because I was in the "normal range" . . . But...it was not what was "normal" for me. . . .
Quote:
Originally Posted by Geneyus View Post
. . . I think some are using their illness as an excuse of why they aren't in shape. If I was gaining weight, I would step up my running and eat healthier foods... basically whatever I have to do to keep the weight off instead of making excuses.
I have had many other symptoms in the past, such as hair loss, being very fatigued, and I still struggle with dry skin. I like taking Levo and feel great 6-7 days a week.
And I think the second quote is very judgemental. It is very very easy to say: "Just eat less! Just exercise more!" You know what, though? That isn't really very realistic. Out of all the overweight people in this country, how many do you think want to be overweight? And how many have NOT already heard the advice I've just restated? I would bet you could count the people who have NOT heard that advice on one hand, and you'd have fingers left over. So why does obesity still happen? Are you really going to say that, out of all those overweight people, some, or even most, have not done their best to follow those simple concepts, only to find that they are not all that simple?

And now I will get to that feeling of fatigue. That is real. If you don't get it bad enough that it stops you from doing whatever it is you need to do? Great for you! That is a good thing. Other people are not so lucky.

I used to be a competitive athlete. I had a LOT of physical discipline. Way more than most people ever even dream of. My story is much more than just thyroid, but thyroid has been a significant factor. I am now 50 or more pounds overweight - and I have never been able to get it back down to where I know it should be, and where I WANT it to be. The fatigue has played a big part in this. Every day I get up and I say I will do better and this will be the day that I get on the road to getting back to where I can feel my best and to being the person I know I am. Somehow, it keeps not happening. I'm too tired.

Sure, sometimes it might be an excuse. But my first response is going to lean towards believing somebody when they tell me a story like this. Because I've lived a story like that.
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