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Old 05-23-2012, 06:52 AM
 
Location: South Carolina
13,105 posts, read 17,640,353 times
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My grandfather had a saying to tell doctors when they acted like what you have stated OP .. When you start thinking like God you had better change your attitude cause there is only one God and you are not Him .. : ) I totally agree with the Op . Doctors make too much money these days and it is a business , they are not in it to care any more some of them , yet you might find that one or two really do care and want you well . Yes they are few and far between .
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Old 05-23-2012, 07:02 AM
 
Location: South Carolina
13,105 posts, read 17,640,353 times
Reputation: 22454
Yes I have also been called a hypocondriac and now after 5 months of being sick im seeing unniversity doctors to find out what is wrong with me , yes you read right 5 months of being sick and have been dxed with everything from hypocondria to ocd to sprained rib muscle the reason for the pain . Well these drs finally took a blood test and now im worried that it is something very rare . I guess we will see in august when I go back and now I have to have a colonoscopy in the next month and I have been so through the ringer with the medical proffesion . UGH !!! Im hoping the rest of you fare better than I have been doing . I just want answers as to what is wrong with me and then we can deal with it .
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Old 05-23-2012, 07:09 AM
 
25,455 posts, read 23,273,196 times
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Quote:
Originally Posted by charolastra00 View Post
I haven't had good experiences with doctors. Over the course of 5 years, I was misdiagnosed with everything from stress to chronic hives to celiac disease and even suspected lupus by 5 or 6 doctors and specialists, when in reality I had cancer. At one point I asked my PCP if I could have Hodgkin's, and she told me no because I had no palpable nodes (even though I had several other big symptoms). I was only 19 so I didn't know how to advocate for myself - I thought a doctor would err on the side of caution for cancer. In reality, Hodgkin's often starts in the chest (as did mine) and when I was diagnosed 4 years later at Stage IV, I only had two palpable lymph nodes whereas I had dozens of tumors in my chest (including a bulky mediastinal mass) and tumors in my bones and spine.

I've also had issues with my oncologist. He does not like giving all the information. I need everything - blood results, PET scan results, knowing my SUV, etc etc. He tells me things and expects me to take them at face value, rather than need to know why. That's frustrating. At the end of treatment, he terrified me with a relapse when in reality my PET scan SUV for the node in question was below the cancer threshold. I wouldn't have known that if I didn't demand to see the PET scan and if I hadn't known a bit about SUVs. I ended up getting a second opinion from the head of lymphoma (who is also a Hodgkin's specialist) at Dana-Farber to confirm.

I know doctors can't know EVERYTHING about every disease. That's impossible. But the fact that I saw so many specialists and no one caught my cancer until I literally had a tumor that took over my entire armpit is absurd.

There has been a lot of unkindness as well. When I first went to a new PCP with my swollen armpit and a lymph node the size of a grape that had popped up on my collar bone the same morning, she scared the bejesus out of me. Yes, what she was seeing was scary, but when a 23 year old who has just told you that she just started her first job and is 1000 miles away from family and friends comes to you and might have cancer, you don't yell at her. After getting my chest xray results the day I presented with my swollen armpit, she called and said, "It looks like you have lymphoma with swollen lymph nodes down your esophagus, lungs, and around your heard. If you have heart palpitations or have trouble breathing, go to the ER immediately because it could be your organs shutting down." My response was, "Oh, you mean the symptoms of the panic attack I'm about to have?"

Since ending treatment for cancer, she keeps telling me she "doesn't know what to do with me" and is really reluctant to consult with my oncologist about why my blood counts and hormones are wonky following treatment. I was on dozens of drugs and chemo for 6 months, didn't have my period for 10 months, and am under a lot of stress from having cancer so young and the financial ramifications - the last thing I need to hear is "Your hormones are all over the place and I don't really know what to do with you." Unfortunately, there are few PCPs with significant experience treating young adult cancer survivors.
You have certainly been thru the mill and back...honestly, I thought it was just me, being overly sensitive to situations that have happened to both me and friends of mine.
But this? I wish someone would bring more attention to the medical profession, this surely shouldn't be happening, no one should have to go thru this, honestly, I am so sorry and if you were here I'd give you a hug...awful!!!!!!! And it makes me so angry that human beings are being treated like this.

for way to long, I watched my mother and her friends go thru and era where they looked at Doctors like they were Gods! Not so...one day, my 90 year old mother, went to her lung doctor, which is about 1 mile away from the hospital across the street, on which two lanes of highway, the cars wizz by and there are no sidewalks. Do you know, he told her to walk down to the hospital for an x-ray, and she did it, instead of them calling a taxie for her, or a family member??????? My God, he was very lucky she wouldn't allow me to call him...he was very lucky....but can you believe that?
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Old 05-23-2012, 07:15 AM
 
Location: South Carolina
13,105 posts, read 17,640,353 times
Reputation: 22454
Quote:
Originally Posted by cremebrulee View Post
You have certainly been thru the mill and back...honestly, I thought it was just me, being overly sensitive to situations that have happened to both me and friends of mine.
But this? I wish someone would bring more attention to the medical profession, this surely shouldn't be happening, no one should have to go thru this, honestly, I am so sorry and if you were here I'd give you a hug...awful!!!!!!! And it makes me so angry that human beings are being treated like this.

for way to long, I watched my mother and her friends go thru and era where they looked at Doctors like they were Gods! Not so...one day, my 90 year old mother, went to her lung doctor, which is about 1 mile away from the hospital across the street, on which two lanes of highway, the cars wizz by and there are no sidewalks. Do you know, he told her to walk down to the hospital for an x-ray, and she did it, instead of them calling a taxie for her, or a family member??????? My God, he was very lucky she wouldn't allow me to call him...he was very lucky....but can you believe that?

I do believe I would have went to his office and told him off but good and told his nurse and his whole waiting room exactly what I thought of him LOL I would have been on the 6 oclock news them carting me off to jail LOL !!! I mean honestly what is coming of the medical proffesion and i can believe your mom actually did that . Nope she would not have stopped me I mean i woudl have been on the news for the cops carting me off LOL !!!
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Old 05-23-2012, 07:27 AM
 
Location: EPWV
9,867 posts, read 5,777,142 times
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I heard one of the doctor radio shows say that the good doctors are being drummed out by the insurance companies. The good doctors want to find the problems but the insurance companies are telling them what they can and can't do anymore, because it's the cheaper of the treatments/medicine.

Opting for sigmoidoscopy vs the colonoscopy and without any sedation because that would cost.
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Old 05-23-2012, 08:17 AM
 
25,455 posts, read 23,273,196 times
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Originally Posted by cat1116 View Post
I heard one of the doctor radio shows say that the good doctors are being drummed out by the insurance companies. The good doctors want to find the problems but the insurance companies are telling them what they can and can't do anymore, because it's the cheaper of the treatments/medicine.

Opting for sigmoidoscopy vs the colonoscopy and without any sedation because that would cost.
I have heard this before.

I have a neighbor who has cronic back pain, he used to be able to go for a shot in the back and he was fine for months....now, his new insurance company makes him go to theropy first, and that only makes it worse, and he suffers more pain from it...the sooner he gets that shot, the better off he is...
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Old 05-23-2012, 09:20 AM
 
12,425 posts, read 14,553,508 times
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[quote=cat1116;24424494]I heard one of the doctor radio shows say that the good doctors are being drummed out by the insurance companies. The good doctors want to find the problems but the insurance companies are telling them what they can and can't do anymore, because it's the cheaper of the treatments/medicine.


I think you could be right about that cat1116...also where I live I think that doctors have waaaay too many patients...you're lucky if you get 10 minutes for an appointment...I don't know how a doctor could possibly know or find what's best for one patient when they've got another 50 to see in that day...I sometimes think that for a lot of doctors, it's all about making money...not the patient...I'm thinking the best way to go is to do your own research...try and figure what you think is wrong...and present that to the doctor so they can run some tests and prove you right.
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Old 05-23-2012, 10:18 AM
 
Location: Camberville
11,395 posts, read 15,995,267 times
Reputation: 18035
[quote=purehuman;24426251]
Quote:
Originally Posted by cat1116 View Post
I heard one of the doctor radio shows say that the good doctors are being drummed out by the insurance companies. The good doctors want to find the problems but the insurance companies are telling them what they can and can't do anymore, because it's the cheaper of the treatments/medicine.


I think you could be right about that cat1116...also where I live I think that doctors have waaaay too many patients...you're lucky if you get 10 minutes for an appointment...I don't know how a doctor could possibly know or find what's best for one patient when they've got another 50 to see in that day...I sometimes think that for a lot of doctors, it's all about making money...not the patient...I'm thinking the best way to go is to do your own research...try and figure what you think is wrong...and present that to the doctor so they can run some tests and prove you right.
My insurance pays almost $600 for 10 minutes (15, if I'm lucky) with my oncologist. It's absurd. Absolutely absurd. My bloodwork and port flush are billed separately. That means that one checkup would cost me over $800. All for an oncologist who doesn't really know how to communicate with me (but, for obvious reasons, I can't very well switch when my risk for relapse is so high in the next year and a half!).
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Old 05-23-2012, 10:35 AM
 
25,455 posts, read 23,273,196 times
Reputation: 15310
[quote=charolastra00;24427121]
Quote:
Originally Posted by purehuman View Post

My insurance pays almost $600 for 10 minutes (15, if I'm lucky) with my oncologist. It's absurd. Absolutely absurd. My bloodwork and port flush are billed separately. That means that one checkup would cost me over $800. All for an oncologist who doesn't really know how to communicate with me (but, for obvious reasons, I can't very well switch when my risk for relapse is so high in the next year and a half!).

Yanno, that is highway robbery!!!! They are taking advantage of us and using us to make a profit, absurd!!!!!!
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Old 05-23-2012, 12:57 PM
 
Location: South Carolina
13,105 posts, read 17,640,353 times
Reputation: 22454
[quote=cremebrulee;24427405]
Quote:
Originally Posted by charolastra00 View Post


Yanno, that is highway robbery!!!! They are taking advantage of us and using us to make a profit, absurd!!!!!!
Yes they are and amen to that and my husband and I have discussed many times the reasons other countries can make their medicines and doctors work at no cost . take france for instance just by being a citizen you are eligible for medicine and medical care at no cost to you . i dont see why this country cant make that work but it is because the insurance companies and the doctors have become too greedy and case in point 600.00 for a shot !!! Greedy indeed .
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