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Old 05-30-2012, 09:09 PM
 
791 posts, read 2,643,359 times
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I was diagnosed with a hypothyroidism back in 2006. I was put on meds and from that point on I have never felt any better. I have been seeing the same endocrinologist for the past 3+ years and she has put me on several meds while increasing the dose and I'm still fatigued with hair loss.

Today I found out I do not have thyroid anti-bodies which means I do not have Hashimoto's disease, the most common reason people have low thyroid. So now I'm wondering do I even have hypothyroid and do I need to be on any meds being they are not helping?? My doctor never wants to spend more than 5 minutes with me and says that if the number are OK and I still feel bad that is the best they can do, well that certainly doesn't help me. Unfortunately in my area endocrinologist are very hard to come by so switching isn't an option right now.

Anyone out there with a similar situation that can offer any advice?
Can you have hypothyroid without thyroid antibodies?

I am so confused
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Old 05-30-2012, 09:15 PM
 
Location: earth?
7,288 posts, read 10,369,507 times
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Have you done your own research? There is a ton of information on the web.
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Old 05-30-2012, 10:55 PM
 
791 posts, read 2,643,359 times
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I have looked extensively on the web before posting, but didn't find what I was looking for.
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Old 05-30-2012, 11:04 PM
 
Location: where you sip the tea of the breasts of the spinsters of Utica
8,305 posts, read 11,811,100 times
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Your endocrinologist is the one to determine the cause of your hypothyroidism, and there are several. That's her job and her training. No, the Hashimoto's thing is not the only source, and she knows that.

As far as the meds go, if it is levothyroxine there can be a problem with absorption from several substances, mainly calcium. You shouldn't drink milk or have coffee with milk for at least an hour after taking it in the morning, which should be done on an empty stomach.

It can take several months for the effects of medication to show up on your body, judging from your last increase in dose. Some quicker than others, I'm a fairly fast responder (maybe 3-4 weeks).
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Old 05-30-2012, 11:16 PM
 
Location: earth?
7,288 posts, read 10,369,507 times
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I would also check out Amazon. There are a ton of books on various thyroid issues, protocols and remedies.
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Old 05-31-2012, 03:01 AM
 
Location: Greenville, SC
910 posts, read 1,798,472 times
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Did all those meds include T3? One can be changed from brand to brand of T4 meds (i.e., Synthroid, Levoxyl, Levothroid) and it won't make any difference for obvious reasons. T4 may work OK for some people but women in particular need T3, which is the active form of thyroid hormone. One thing I learned from years of participating in an active thyroid forum is that 1) the conversion of T4 to T3 happens in the liver, a healthy one, but most people have some degree or another of liver damage and don't even know it. 2) Selenium is needed for this conversion and, again, most people usually don't get enough of it, not to mention that because it binds with some heavy metals whatever we may get in diet may be flushed out of the body that way. And another thing that is very important is to get enough iodine, especially when taking thyroid meds, otherwise our risk of developing certain types of cancers, like thyroid, will increase.

A good website where you can get information about all of the above and more is
Thyroid Mistreatment, Hypothyroidism Scandals, and Thyroid Treatment Problems | Stop The Thyroid Madness, have you been there already? The owner of this other website http://ithyroid.com/ substains that thyroid problems are due to multiple nutritional deficiencies, I learned a lot from reading articles and studies in there.
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Old 05-31-2012, 03:21 AM
 
1,464 posts, read 2,629,315 times
Reputation: 2809
Quote:
Originally Posted by redwhiteblue View Post
I was diagnosed with a hypothyroidism back in 2006. I was put on meds and from that point on I have never felt any better. I have been seeing the same endocrinologist for the past 3+ years and she has put me on several meds while increasing the dose and I'm still fatigued with hair loss.
Today I found out I do not have thyroid anti-bodies which means I do not have Hashimoto's disease, the most common reason people have low thyroid. So now I'm wondering do I even have hypothyroid and do I need to be on any meds being they are not helping?? My doctor never wants to spend more than 5 minutes with me and says that if the number are OK and I still feel bad that is the best they can do, well that certainly doesn't help me. Unfortunately in my area endocrinologist are very hard to come by so switching isn't an option right now.
Anyone out there with a similar situation that can offer any advice?
Can you have hypothyroid without thyroid antibodies?
I am so confused
I too have hypothyroidism and it took a while to get it diagnosed and under control. Unfortunately, I had gained a bunch of weight while trying to get it under control, nails and hair both were a mess and I had the dryest skin ever on my feet of all places. I didn't go to an edocrinologist just my regular family doctor. She was amazing with the diagnosis, and getting it under control. My meds have been lowered 3 times but as I said it took a while. I also think if you haven't already done so and of course if you need to, even a small weight loss helps get things under control faster. Try going to your family doctor, explain your frustration and see what they can come up with. Often times I think the specialists get frustrated a lot faster. Good luck with this. No one understands how absolutely horrible a slow thyroid can be.

Take your meds as prescribed by the specialist but also talk out your concerns with your family doctor! Good Luck.
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Old 05-31-2012, 08:32 AM
 
791 posts, read 2,643,359 times
Reputation: 337
Quote:
Originally Posted by TiredOfSFL View Post
Did all those meds include T3? One can be changed from brand to brand of T4 meds (i.e., Synthroid, Levoxyl, Levothroid) and it won't make any difference for obvious reasons. T4 may work OK for some people but women in particular need T3, which is the active form of thyroid hormone. One thing I learned from years of participating in an active thyroid forum is that 1) the conversion of T4 to T3 happens in the liver, a healthy one, but most people have some degree or another of liver damage and don't even know it. 2) Selenium is needed for this conversion and, again, most people usually don't get enough of it, not to mention that because it binds with some heavy metals whatever we may get in diet may be flushed out of the body that way. And another thing that is very important is to get enough iodine, especially when taking thyroid meds, otherwise our risk of developing certain types of cancers, like thyroid, will increase.

A good website where you can get information about all of the above and more is
Thyroid Mistreatment, Hypothyroidism Scandals, and Thyroid Treatment Problems | Stop The Thyroid Madness, have you been there already? The owner of this other website http://ithyroid.com/ substains that thyroid problems are due to multiple nutritional deficiencies, I learned a lot from reading articles and studies in there.

Thanks for the info. I will check this site out. At one time I was taking Levoxyl + T3, I'm now on 95mcg of Armour. I have heard that selenium is a necessary supplement especially for thyroid issues and am now taking it.

Thanks!
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Old 05-31-2012, 08:34 AM
 
791 posts, read 2,643,359 times
Reputation: 337
Quote:
Originally Posted by Pammyd View Post
I too have hypothyroidism and it took a while to get it diagnosed and under control. Unfortunately, I had gained a bunch of weight while trying to get it under control, nails and hair both were a mess and I had the dryest skin ever on my feet of all places. I didn't go to an edocrinologist just my regular family doctor. She was amazing with the diagnosis, and getting it under control. My meds have been lowered 3 times but as I said it took a while. I also think if you haven't already done so and of course if you need to, even a small weight loss helps get things under control faster. Try going to your family doctor, explain your frustration and see what they can come up with. Often times I think the specialists get frustrated a lot faster. Good luck with this. No one understands how absolutely horrible a slow thyroid can be.

Take your meds as prescribed by the specialist but also talk out your concerns with your family doctor! Good Luck.
Yeah it's really been quite a nightmare to deal with. I'm glad for you that you have yours under control. I think I may just take a trip to my primary care and see what he has to say.

Thanks
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Old 05-31-2012, 08:58 AM
 
Location: Islip,NY
16,935 posts, read 19,672,707 times
Reputation: 17199
Time to switch doctors and get a second opinion.
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