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Old 03-20-2013, 06:17 AM
 
Location: Glasgow Scotland
15,245 posts, read 12,447,072 times
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My husband suffers from this on his left hand. and after about ten years of this happening his hand is closing over now and nothing is offered by doctors to help... he drives a lot as is finding it getting more difficult with time.. has anyone else had treatment for this... also called Vikings disease.
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Old 03-20-2013, 06:22 AM
 
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I'm not a doctor, and this is only anecdotal, but supplementation with enzymes such as serrapeptase, nattokinase, lubrokinase, has been thought to help with peyronie's which is related to duyputren's. FWIW
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Old 03-20-2013, 06:39 AM
 
Location: Bucks, UK
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i dont know why, if he is experiencing significant functional impairment, he isnt being offered a surgical treatment option (of which there are several) - even in cases of bad general health due to other conditions, there are options which can be performed under local anaesthetic.

perhaps time to consider a different surgeon?
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Old 03-20-2013, 02:49 PM
 
4,951 posts, read 10,970,883 times
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There are newer treatment options including injectable enzymatic treatments such as Xiaflex which works best if there are "cords" rather than "nodules" in the palm.

There is also Percutaneous Aponeurotomy which is another Non surgical office procedure done by select hand surgeons, performed under local anesthesia a number of small "nicks" are placed within the nodules or cords to effect a release.

He should see a hand surgeon that specializes in this, there is no reason to do "nothing" if his hands are becoming contracted.
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Old 03-20-2013, 08:33 PM
 
Location: Syracuse IS Central New York.
8,516 posts, read 3,932,563 times
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My Dad had Duypuytrens. A hand surgeon released his hands, however it did not last all that long. However, his treatment was back in the early/mid 1980's.

I know that they are doing some different things for this now.
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Old 03-21-2013, 04:07 AM
 
Location: Glasgow Scotland
15,245 posts, read 12,447,072 times
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thanks to you all... two head doctors said it had to be left until it closed over completely before surgery can be performed, but this would mean he couldnt work, and we have a mortgage to pay.. but as you say new methods now being used since his last time at the hospital... as something has to be done....
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Old 05-15-2013, 12:41 PM
 
Location: SW France
14,207 posts, read 14,069,642 times
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I've only just stumbled across this thread.

I suffer from this and have found acupuncture to be a good treatment.

The little fingers of each hand were badly affected and the finger of the right hand was pretty much straightened in one session!

The left hand is worse and I'm continuing to have aggressive electro-acupuncture. I think it's good enough not to require surgery- I'll know next month.

The lumps and bumps are still on the palm of the hand but as I said the fingers are straightening up nicely.
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Old 05-15-2013, 01:13 PM
 
Location: Glasgow Scotland
15,245 posts, read 12,447,072 times
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Ill pass that on Jezer, thanks a lot. as it seems to be gettting worse and his ring on his pinky is stuck.. he cant get it off now..
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Old 05-15-2013, 02:46 PM
 
Location: SW France
14,207 posts, read 14,069,642 times
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I noticed this condition a few years ago and as is the case it got progressively worse. It's not really bad but I have these lumps appearing on the palms of the hand and on the little fingers.

My GP didn't even know exactly what was going on- I love GPs. A physiotherapist that I got chatting to told me what it was. The GP then looked into it and told me that the NHS would not operate until it got to quite an advanced state. Part of the reason for that is that the operation causes the hand to be out of action for a few weeks, and that the condition will continue and further surgery would be yet again be required.

Remember that cruise I went on Dizzy? Long story short I went for acupuncture for my back and whilst receiving treatment I mentioned the hand. The little finger of the right hand was sorted out within half an hour!

The left hand is harder to sort out and I am continuing to have electro acupuncture treatment on it.

On my return to the UK from that cruise I went to see a hand specialist at a private hospital- the appointment had been booked up prior to the cruise. The consultant said that even though the little finger of the right hand was bent at an angle of about 30 degrees he felt that if it did not improve with treatment then he would want to operate later in the year.

My feelings are that he suggests this because it would be done privately and perhaps, maybe perhaps, he's thinking of his finance situation.

I do think that the NHS are loath to operate until the condition is advanced due to their financial constraints.

My doctor's practice will not pay for my acupuncture which is costing 40 a treatment- I have one 45 minute session a week and have had about six sessions. I feel confident that the consultant will not insist on surgery- the finger is getting better, and I will strongly argue that I do not want surgery as things stand.

Dizzy- those are the basic facts of the situation. Ask away if you want to.

Last edited by Jezer; 05-15-2013 at 03:46 PM.. Reason: typo
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Old 05-16-2013, 11:17 AM
 
Location: TOVCCA
8,453 posts, read 11,313,334 times
Reputation: 12294
Have you heard about these non-surgical treatments?:

Medication (2 articles):

A quick fix for claw hand: New injection gives hope to millions of sufferers | Mail Online

Flesh-eating drug that relieves the misery of clawed hands | Mail Online

Radiation:

Radiation blast could end the misery of clawed hands | Mail Online
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