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Old 05-25-2013, 04:53 PM
 
Location: Lone Star State to Peach State
3,405 posts, read 2,792,337 times
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My mom just informed me she will start infusion therapy for her R.A.
Anyone been through this? Can you tell me what she is about to experience?
Did it help you?
Medicade covered 80 her insurance 20. Thank goodness.
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Old 05-25-2013, 07:15 PM
 
Location: OH>IL>CO>CT
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Did she tell you which of several possible medications will be infused ??


Some basic information here:
Infusion Treatments For Rheumatoid Arthritis | LIVESTRONG.COM
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Old 05-25-2013, 07:57 PM
 
Location: Lone Star State to Peach State
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No,she could not remember the medication.
I did visit that site before posting here. Thx
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Old 05-25-2013, 10:08 PM
 
Location: southern born and southern bred
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I can't be much help except to tell you I have a friend who gets the infusions and YES they definitely help her. The only specific things she has said is that they take awhile so she carries her Kindle, that there are lots of others there getting infusions at the same time-so she can spend time talking to them and that she gets chills really,really bad during the infusion so the facility now provides her with a warm blanket.
Sorry that is all I know but I can call and ask her specific questions if you would like me to.
Bottom line is that she really is helped.
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Old 05-28-2013, 12:12 AM
 
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Has your mother taken anything else for RA? Such as injections, including Enbrel, Humira?

The infusion therapy was the first biologic therapy approved, it is done via IV. It was quickly followed by injection therapy of biologics. I do believe Medicare covers such, you might wish to look it up. I read an
article (sorry I don't have the URL for now) that doctors get tremendous reimbursement for infusion therapy if done in their office. I had a rheumatologist who insisted on doing infusion therapy, and had a very nice infusion clinic set up! I went to another who prescribes Enbrel, which is a 2x/week self-administered injection.

I believe the infusion is called Remicaide.

To my knowledge, the injections are as effective as the infusion, and much more convenient. I would insist on a trial of injections first, then go to infusion therapy.

Also, I believe medicare Part A pays for infusion. I believe Part D will pay for injections, but my information might not be accurate or up-to-date. I think that's why those with Medicare were more or less "forced" onto infusion therapy when Remicaide first came out.

I realize I'm not giving much information here, other than to check out alternatives and insurance coverage. Also, do NOT ask your doctor's office about insurance coverage, they can be biased, check with the plan itself. Good luck---

and I've used enbrel for many years with no problem. Don't be afraid to give yourself a shot, its quite easy, just a sub-q = under the skin. Easier than running to the doctor x's/month!
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Old 05-28-2013, 12:17 AM
 
Location: Lone Star State to Peach State
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First infusion is Tuesday. I plan on checking up on her.
Many thanks posters!!!!
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Old 05-28-2013, 10:40 AM
 
Location: NoVa
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I know of an infusion called Remicade. That is what was out when I was working for a Rheumatologist group. More may have come out since then. She can plan on spending several hours there.

I was dx with RA as well and I use Humira injection once weekly and it has made a world of a difference. I hope your mother gets some relief.
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Old 05-28-2013, 05:32 PM
 
Location: Lone Star State to Peach State
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Remicade is the one. she says she can now open and close her hands after 1 treatment.
she is extremely tired though.
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Old 05-28-2013, 05:54 PM
 
Location: NoVa
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Quote:
Originally Posted by Gilah G. View Post
Remicade is the one. she says she can now open and close her hands after 1 treatment.
she is extremely tired though.
That's good. Yep, the treatment is gonna take it out of her.....
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Old 05-29-2013, 04:54 AM
 
Location: Bella Vista, Ark
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Quote:
Originally Posted by Gilah G. View Post
Remicade is the one. she says she can now open and close her hands after 1 treatment.
she is extremely tired though.
The good news is she has some mobility in her hands. That is wonderful. the bad news, she says she is very tired. This is what we are all living with right now. Medicine has come so far and we are so lucky, but for every positive med or treatment there seems to be a down side. We have to make our decisions on treatments based on good information from our doctors and weight the pros and cons.
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