uhhh..help please? post strep glomerulonephritis (blood pressure, sore, swelling, symptoms)

[tiffela74]

Hi all.....I have an odd request...my 6yr old has recently been tentatively diagnosed with post strep glomerulonephritis. Has anyone else had a child (or as a child) dealt with this before? The Drs say its pretty rare, its the first case that her pediatrician has seen, and appearently the only one in 10yrs around here that they know of.
we can get some infor off the web of course, but much of it is conflicting, and rather baffeling and Id sure like some "been there, done that" advice/comments.
So if anyone can help me out, Id sure appriciate it!!!!
Thanks,
Tiffany

[mm_mary73]

Originally Posted by tiffela74

Hi all.....I have an odd request...my 6yr old has recently been tentatively diagnosed with post strep glomerulonephritis. Has anyone else had a child (or as a child) dealt with this before? The Drs say its pretty rare, its the first case that her pediatrician has seen, and appearently the only one in 10yrs around here that they know of.
we can get some infor off the web of course, but much of it is conflicting, and rather baffeling and Id sure like some "been there, done that" advice/comments.
So if anyone can help me out, Id sure appriciate it!!!!
Thanks,
Tiffany

definitely not common since the onset of antibiotic therapy. I am assuming that you will be seeing a nephrologist, preferrably a pediatric specialist, ASAP!

[tiffela74]

they think she got it from a case of mild strep that we didnt even know she had. She had a sore throat that lasted about 2days max, no fever, no swelling, no white spots, so i let it go w/a single dose of tylonal. (oh yes, i have been kicking myself, racked w/sick guilt since then)
anyhow, theres not a nephrologist in our area, so our pediatrician has been going this team effort w/a ped. nephro. up in Portland at the Childrens hospital. Every test/symptom/anythig at all, he is sending up and calling him to talk over. Not a move has been made w/o consulting him first. And we're all under the understanding that if she looks like there is any way she might turn for the worse or doesnt respond to the meds, up to Dornbechers she goes.
At this rate, she looks and feels fine. But we're being very very cautious and watching her so closely. shes getting daily blood pressure checks, and so far so good, no puffyness, no fever, no symptoms at all besides her pee looking like ketchup.
We're taking this minute by minute. I was just hoping someone out there had been through this before.....
thanks so much for your response!!
Tiffany