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Old 04-22-2015, 01:39 PM
 
1,316 posts, read 1,709,438 times
Reputation: 2027

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You might find this article helpful.
I did.

"My body, however, is completely unpredictable. Maybe today I could go for a walk down the block. Maybe I could do it tomorrow and the next day too, but the following day I might not be able to get out of bed at all. Did I do too much? "Moderator cut: copywrite violation. 1-2 sentences and link

https://invisibleillnessbattle.wordp...bout-the-fear/

The article talks about having to do a "cost-benefit" analysis.
Which I found very familiar, altho I had never conceptualized it that way.
So when I wake up I take survey - how do I feel.
And try to figure how much I can do, and if I do this, will I have to give up doing that.
and if I do this will I "pay" for it with fatigue or pain.
In my case it is unpredictable - I can feel fine and energetic one minute, and feel like complete crap the next, and be unable to move.

I found this article comforting bec. I know that I am not alone in this.

If you read it, I'll be interested to know if it was helpful.

Last edited by SouthernBelleInUtah; 04-22-2015 at 08:42 PM..
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Old 04-25-2015, 01:40 AM
 
977 posts, read 1,109,345 times
Reputation: 1927
I have fibromyalgia, CFS, Reynaud's, damaged discs, and osteoarthritis (plus a bunch of the pesky pains that go along). That was a remarkable article! Thank you for posting it! I live alone and I get very weary of the constant, unrelenting struggle just to keep going day to day.
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Old 04-25-2015, 05:27 AM
 
6,757 posts, read 8,281,607 times
Reputation: 10152
Excellent article, both for chronics and the people who love them. I am both.
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Old 04-25-2015, 09:49 AM
 
Location: Alexandria, VA
15,143 posts, read 27,772,702 times
Reputation: 27265
Quote:
Originally Posted by artangel View Post
I have fibromyalgia, CFS, Reynaud's, damaged discs, and osteoarthritis (plus a bunch of the pesky pains that go along). That was a remarkable article! Thank you for posting it! I live alone and I get very weary of the constant, unrelenting struggle just to keep going day to day.
Wow! Are you my twin? I have the same things!! (I'm trying to fight them but losing)
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Old 04-25-2015, 09:57 AM
 
Location: NW Nevada
18,158 posts, read 15,621,649 times
Reputation: 17149
Quote:
Originally Posted by ellenrr View Post
You might find this article helpful.
I did.

"My body, however, is completely unpredictable. Maybe today I could go for a walk down the block. Maybe I could do it tomorrow and the next day too, but the following day I might not be able to get out of bed at all. Did I do too much? "Moderator cut: copywrite violation. 1-2 sentences and link

https://invisibleillnessbattle.wordp...bout-the-fear/

The article talks about having to do a "cost-benefit" analysis.
Which I found very familiar, altho I had never conceptualized it that way.
So when I wake up I take survey - how do I feel.
And try to figure how much I can do, and if I do this, will I have to give up doing that.
and if I do this will I "pay" for it with fatigue or pain.
In my case it is unpredictable - I can feel fine and energetic one minute, and feel like complete crap the next, and be unable to move.

I found this article comforting bec. I know that I am not alone in this.

If you read it, I'll be interested to know if it was helpful.
I'm the same way. I think we all are. Pain , especially, can be very hard to predict. It can come and go like the wind. But, any chronic conditions level of effect varies widely. Thanks for the link. Chronic sufferers should learn as much as we can. It can be very disheartening, coping with chronic conditions. Never knowing minute to minute.

Not long ago, I was having a froggy day. Felt good. So I decided to do some things. Things that required larger amounts of time and physical commitment. In other words, they had to go, start to finish. No turning back or stopping. Doing so would screws things up, bad.

One was getting my truck fixed. Doing it myself. It was the kicker. Started crashing halfway through. Rrr..uh oh. But, I got it back together. And "paid for it". It can sucketh, living on a crap shoot.
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