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Old 06-10-2009, 07:38 PM
 
3 posts, read 80,899 times
Reputation: 19

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Yes I was diagnosed and my doctor told me to continue to use the foot powder as long as it is working for me.

Like I said I put it on several times a day on the infected area and the bumps never get as big as a golf ball it starts to reverse itself, if I don't use the powder though it gets really bad and extremely painful and it last a very long time.

I believe the ingredient is Salicylic acid that works, I also use Denorex shampoo sparingly.
[SIZE=3] [/SIZE]

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Old 06-27-2009, 10:38 PM
 
1 posts, read 22,068 times
Reputation: 10
Hello, I am 22 Years old . I started getting big lumps that were very painful under my arms when I was 16... I kept it a seceret and didnt tell anyone. Not even my parents. I avoided the docter for years. It eventually got worse. The lumps would get huge and they would open up and drain and the pain was unbelievable. I finally had to tell my mom and I went to the docter. They initially diagnosed me with Falliculitis and I just accepted that but one day when I had to go to the dr. for a non related issue, My dr. was unavailable and I had to see a different one. Just by chance I started talking about my underarms and once she saw it she immediately told me I had Hidradenitis Suppurativa.. I have already been on so many antibiotics... I do warm compresses which relieve the pain and swelling but other than that.. nothing works for me. I dont EVER wear tank tops. I dont go to the beach or the pool. Theres days where its so painful I can barely get dressed. I cant even lift my arms... My hope is that as more people become aware of this disease that more discoveries will be made about causes and effective solutions... My left underarm has been lesion free for months now! yay! no pain no lumps.. nothing. My right underarm I still have severe problems with. I know because of scar tissue that I will never have normal looking underarms but I find it a comfort that there are so many honest and brave people out there to share there stories and help me to feel less ashamed and alone.
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Old 08-10-2009, 12:53 PM
 
2 posts, read 43,961 times
Reputation: 13
i started getting the boils when i was around 9 then srtaed getting them under my arms when i was in my teens and my dr kept saying it was because i was overweight. In 2001 i could only raise my right arm half way and the lesions wouldnt heal and my left arm was almost as bad so i finally got referred to a dermatologist and they told me what it was and said i needed the surgery. I had my sewat glands removed from both arms and had a skin graft. the graft site was probably the most painful part. i had to sleep on my back fro six weeks with these huge pillow type things under my arms to hols them apart so the skin wouldnt graft together.. it was very uncomfortable but in the end it was worth it because i don't get them under my arms anymore but i do get them every where else. I also had some under my breasts and when the dr did the surgery he just lanced those and put staples in so now it just looks like railroad tracks under my breasts and i still get them there also so I'm till looking for something that will help with the flare ups
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Old 08-11-2009, 03:08 PM
 
3 posts, read 80,899 times
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Hi Brownsugapoet, Doctors tend to blame everything on someone being overweight, I believe its either they are really tired and they just don't want to pursue it any further or its just plain laziness in their part. It was like when I was young and went to a sleep away camp and the nurse used to give us kids the same green medicine no mater what we had let it be a cold or a sprained ankle. lol Anyway I'm going off the subject, try the foot powder from the dollar store its in a yellow bottle its worked wonders for me.
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Old 09-16-2009, 03:41 PM
 
1 posts, read 21,850 times
Reputation: 11
Default Possible cure for HS

[FONT=Arial]I have been suffering with HS for over 2 years. I recently went to see a consultant in South Wales called Dr Alun Evans (Private clinic in Bridgend and Cardiff) - he specialises in dermatology. He claims to have treated patients with HS for over 7 years. The prescription is 300Mg of Clindamycin and 300mg of Rifampicin taken twice a day . He claims that after taking them for 3 months a patient can be totally cured from the disease. I have been taking them for approx 2 weeks and have already found a vast improvement. Since taking the tablets I have not had any new abscesses and for the first time in 2 years I am pain free!. There does not seem to be any information about this combination of tablets and just thought you may want to let people know that there does seem to be a cure for the disease.[/FONT]

[FONT=Arial]Hope this information is of use.[/FONT]
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Old 09-16-2009, 04:03 PM
 
Location: Raleigh
8,007 posts, read 5,287,613 times
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Quote:
Originally Posted by grimsby View Post
I've known about my hs for about four years now (30 year old male. Smoked cigarettes from 18-28)<> Also, if you can, from time to time, "bake yourself" in tea tree oil. Get naked, apply it to where you need to, then wrap up in a bathrobe. You'll know when to put clothes on.
<>
Love Yall, Good Luck...
Grimsby
Tea tree oil is a very effective healing agent for acne and other skin conditions. I used to rep for Melaleuca and they have very high quality products. Aloe vera works well for other conditions, so it might be effective too. It is available as a lotion and a drink. You could try breaking off pieces of a plant and rubbing the gel directly. It has many antibacterial agents.
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Old 10-03-2009, 01:03 AM
 
1 posts, read 21,767 times
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Default 15 years of pain

hhhmmm... very interesting to go through and read everyone's posts. well I've been living with this lovely condition since I was 18-- or at least that is when it got so bad it was noticeable to me. so that was about 15 years ago. It got remarkably worse when I was pregnant-- hormones/pregnancy make everything worse. unfortunately it never really got much better afterwords, just stayed on the same destructive path for the last 9 years. this will be my second time on Accutane, lovely drug-- all the rage. the first time I was being treated by a derm at John Hopkins but had to stop taking it after only a few months because I moved back to the west coast. This time I've been on it for about 3 months now and the doctor is just not as positive about it all-- which doesn't help. on the up side he said he has never seen anyone in their 70's with the disease-- whoopie, something to look forward too. as for my arm pits, they are a scared up mess and this latest doctor has told me that there simply is not very much viable tissue for the disease to attack any more. I still get some spots there but nothing like I use too. so now it is flaring up more and more under my breasts (which hurts more than I could ever could imagine) and of course between the legs on the upper inner thigh. nothing sexy about this disease at all. There have been plenty of days where I have thought to myself this is a seriously debilitating disease that makes normal day to day function, not to mention work, freaking impossible. I feel pretty freaking certain that I could go on disability with this but I feel like that is admitting defeat! but still, this just sucks! okay so I don't have any helpful hints or advice, I'm just sharing because it is midnight, I've been in pain all day and well... yeah.
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Old 10-05-2009, 07:32 AM
 
2 posts, read 43,961 times
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SJMAY I know exactly how you feel!The flare ups under the breasts are the worse and depending on your breast size that can make the pain a lot worse. So me being a DD when i do get them I have a hard time doing anything because it's so painful just to move period. I can't sleep on my stomach and I can't sleep on my back or sides because they're worse because the weight of the twins are pulling so that makes the pain worse! I have missed a few days of work because of it and the thoughts about disability have also crossed my mind so you are not alone!
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Old 12-01-2009, 11:33 AM
 
1 posts, read 21,620 times
Reputation: 12
Hi folks...I have had HS for 24 years (since I was 14). I am done...tired of the pain....and not being able to move my arms when I get a bad flare up. And let me tell you...viable or not viable skin...you will still get them & in golf ball size too, cause I still get them (I hardley have any skin that isn't scar tissue under my arm) & they are as painful, if not more painful, than ever. I am asking to have the surgery!
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Old 12-02-2009, 06:15 AM
 
305 posts, read 1,482,973 times
Reputation: 149
I am still keeping up with this forum. I've been taking Tumeric 3x/day, 450 mg. The drainage has decreased immensely, but has not stopped. I'm going to ask about the Clindamycin (which I use as a topical antiobiotic) and the Rifampicin tomorrow when I see the doc.

I haven't gotten any new lumps under my arms. Just having some minor drainage there. But my lady parts are now getting boils. So not nice. Talk about a buzz kill in the romance department!

For those of you who talked about Disability, the Social Security Administration DOES recognize HS as a debilitating, permanent disability. So if you need to file for disability because it has become unbearable to work when you have constant outbreaks, leakage, odor (you KNOW how bad that can be!), it's time to file for disability. Just make sure you document everything especially all the things you can't do now that you could before.

Psychologically, I think this condition is worse than the phsyical aspects. I once asked my doc if I could get cancer from HS. He said no. I have found several references online that greatly differ in that potentiality.

If the odds of 50-50 were better for having the surgerical intervention, I would do it. But I know that right now it is considered a high risk surgery for complications.

Good luck. Please, everyone keep in touch.
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