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Cesar, that is so great that treatment is working for you! Very glad to hear when someone tries a treatment that actually works! However, I've had this horrible disease since I was about 9 years old, I am now almost 23. I learned from many doctors that although a treatment works and it seems that the disease is gone, it does not go away if you let it go without any working treatments long enough. My case was severe enough that surgery was necessary, and to me it sounds as though bluegreen may need it as well. I hope since this was posted, you have gotten the surgery, bluegreen, because it is very serious. My plastic surgeon that I have been seeing specializes in this disease, and has performed the surgeries on people with cases even worse than my own (which I cannot even begin to imagine what that is like,) informed me that had I waited another 6 months to a year, there really would not have been anything they could do. Personally, although the scars are not so small, it's totally worth it. I feel more healthy, I have color back in my face and I can actually move freely and live my life more comfortable. So I recommend the surgery all the way.
My wife has severe case of HS, how bad is the pain, and is it constant? She takes many antibiotics and has prescription for MS Contin for pain management, she also adds other pain meds on top of theses meds, very worried about over use, please comment.
Billy, the pain is pretty bad. Antibiotics are really not a good solution to this disease, as she may build a tolerance as well as the fact that the antibiotics will kill the bacteria in her body that she needs, so her immune system (already weak from hs) will begin to become even more weak over time. She should really see another doctor or specialist, because I would be very worried about that. I seriously don't blame her for using pain medication more than someone should, before I started my surgery I could barely walk 2-3 weeks out of the month. So time for activities and getting things done was very limited. Not only is it physically painful, but it also takes a serious mental toll. The sores themselves hurt, but you also feel sick whenever they get bad. No energy. It's really unpleasant. But like I said, you may want to urge her to see someone who actually knows what they are doing with this disease so your wife can actually live again.
Colloidal silver is one of the oldest natural "antibiotics" in the world. Silver drops are STILL used in every delivery room across the world to prevent the growth of bacteria in a newborn's eyes. True colloidal silver consists of micro particles of silver suspensed in a solution; there is a lot of hype online about colloidal solutions - many are ionic and not true colloidal and consist of only 5-25 parts per million. That's NOT the product you want. Look for 500ppm and higher solutions and note that they will be brown in color. Everyone is different and HS impacts everyone diffferently. After decades of suffering with HS and having tried the weaker solutions of colloidal silver with absolutely no results whatsoever, after a terrible outbreak in Sept I used 500ppm colloidal silver and experience rapid recovery of the boils that had ruptured yet kept draining. The outbreak occurred in an area that had plagued me for many years and usually, even after "healing" I could still feel "it" under the skin. For the first time I can honestly say it's gone from that particular spot. CSilver will NOT cure you but it may help you keep the disease under control and inhibit outbreaks. It's recommended that you take a probiotic if you use 500ppm+ silver products because it will disrupt the good bacteria in your gut. Higher concentrations (1,100ppm+) are not recommended for use for more than 6 weeks and I reserve the "big guns" for outbreaks and maintain on a lower concentration. I do not profit in any way from recommending this silver solution and while I'll admit there are many 'testimonials' online promising a cure for HS with low concentrations that never worked for me, my HS condition has improved significantly since using TRUE colloidal silver.
I've been taking around 1000 mg of turmeric daily to help the HS in my armpits. Additionally, I've *tried* to make poultices out of turmeric, tea tree oil, and olive oil (moisturizing helps, I think), but I am too sensitive for bandaids there (have a WORSE rash from bandaids than from the HS right now) and I really don't know how to keep the poultice on and the turmeric stains everything from clothes to skin to nails. However, the outbreaks have SERIOUSLY diminished since I started this regime. It took about a week to kick in.
i have had hs since i was 15..now 28..i have found that tanning helps with the sores..it drys them out and helps with itching and smell..it also helps to hide some of the scars ..i also have a friend in nursing who helped me find sterile lancing needles at a medical store..i found that if i open the painful ones with the lancing needle and let it drain then swab it with rubbing alcohol they not only stop hurting but heal faster..instead of a sore that hurts every time i move for the next 6mths i have a scub that i just have to keep clean for 3..and it also helps to keep them from forming the cluster of sores..it sounds crazy i know and u can only do what works best for you..but i will say that as extreme as it sounds..and alittle warped anyone who has had one of those sores know the pain and agony of it ..it works it helps with pain instantly...and then i also keep alcohol pads in my purse and car that way every time i go to the bathroom or itch or even think about it i can wipe my infected areas it help loads also...if nothing else try the tanning i promise it helps
I have been suffering from HS for several years now. Until about a year and a half ago ago I felt like I was living in a nightmare that I couldn't wake up from! I found a recipe online for homemade deodorant because using something like Dove or Degree stung too much, but I didn't want to smell even worse than I had to! This recipe contained organic coconut oil, arrowroot and baking soda:
6-8 Tbsp Coconut oil (solid state)
1/4 cup baking soda
1/4 cup arrowroot powder or cornstarch (arrowroot is preferred)
My bumps and sores in my armpits went away after a few weeks, so then I started using it on the sores under my belly and in my groin and after a few weeks those were gone, too. If I stop using it they come back, but I've been using it faithfully for more than a year and haven't had any recurrences. I was almost suicidal over the pain, the smell, the embarrassment! Now I feel like I have a new life. That sounds melodramatic, but if you suffer from this then you know what I'm talking about and how deeply it can affect your everyday life. I still have scarring, so I never wear clothes that show those parts of my body, but at least I no longer have to deal with the terrible pain and isolation.
I don't know if it will help anyone else, but I wanted to share what worked for me.
Oh, also, I bought a lot of cotton baby cloths (like for diapers, they are in the baby department and cost around $10 for a pack 12). I would fold those up and put them in my armpits and under my belly to absorb all of the blood and pus. I think that doing that helped them heal much faster and kept my clothes from getting ruined.
Good luck, I hope each of you are able to find something that works for you. If not my remedy, then hopefully something else!
I'VE READ LOTS OF BLOGS ABOUT HS AND HS SURGERY! Sadly i did not know it was such a wide range of people with HS. I have suffered with HS since i was 13 years old and now i 25 i will finally have the surgery on 04/01/11. ITS VERY PAINFUL AND ANNOYING! I have mixed emotions about the surgery from reading all the HS blogs, but knowing i am not the only person suffering is kind of a relief. I read where some say its caused by over weight, i have been loosing weight gradually and still no changes, i did the antibiotics and that didnt work but a couple weeks. This has caused so much pain and sadly i will still have occurences in other places. My self esteem is still on high and some people say they want to kill themselves due to HS, i know its life changing but please remit that, you can still live your life and enjoy life. See your self as a strong individual and keep prayer and hope alive that a cure will be found.
PLEASE ANYONE WHO HAS HAD THE SURGERY PLEASE LET ME KNOW THE OUTCOME, AND HEALING PROCESS.
Hi bluegreen13, ive had four surgerys in all two on my armpits and two under my breasts but turns out they didn't help atal they just came back, the doctors have told me many things cause it such a smoking, genetics, obesity etc yet i have many people to vouch this about it not being true, they caused me alot of pain and ive been on near enough 2 years worth on antibiotics and ive got to say they have done nothing.
with healing my arms were tricky, one of my armpits did not heal probably and i had to have it packed to be able to heal, i hope it didnt get to that with you.
I have had hs since I was 11yr old n now am 24. My first surgery I was 16yr old. I have had 5 surgeries n only 2 were successful. As hs continues to occur no matter what soultion I try n trust me I've tried them all more than once it can become very depressing. I to have high self esteem but I had to gain it. I still still get insecure at times but I have figured out that hs is apart of me n its not going away antime soon
hi i have been suffering with HS since i was about 8 ive been looking for a place where i could talk to people about the pain and disgust i feel with my self if any one could really write me back about what helps them i would appreciate it
hi freemee1,
ive been very curious of haveing surgery for HS I have been suffering with this since i was 8 years old i am married now with a baby but ever since i had a c section ive been getting it on my c section scar and on my lower abdoman. these are places ive never gotten HS on that area its been really stressing me out because even though my husband knows i have this disease ive always tryed my hardest to hide it from him. i wear long sleaves to bed and i face the opposite way from him when showering and washing my arm pits. its very hard im still very ashamed of this and i would like to know if any one else have found a different method to calm-not cure, but calm the situation. I cant wear white and sometime it even hurts to to put deorderant please help me!
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Colloidal Silver - Be Sure to Get the REAL Thing
