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Old 04-24-2016, 01:16 PM
 
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From reading your symptoms, it sounds like you have more than one thing going on, but nothing too ominous. I don't think all of these issues need to be tied together.

I have the same issue with my shoulder(s) and I have flare-ups from time to time. I've been told I have bursitis/tendonitis. I am now having issues with more and more joints and though I am still young, I contribute that to the fact that I am getting older. I'm still in the process of investigating these other issues, so what can you do.

As for your TMJ, why are you wearing the mouth guard on and off?

If you have a lot of tension in your shoulders/back, you really need to work on alleviating that. It is possible that you still might suffer from migraines after that, as many people have migraines anyway for no discernible reason.

Quote:
Originally Posted by highlanderfil View Post
So the headaches now at least are predictable: towards around 2 pm, I start getting a pressure-like cramping feeling on the top right and left of my head, above the eyes and ears; then it travels to my nose (which is not congested, like, AT ALL - I wish it was always like that without the pain). The really weird thing is that around the same time I get the same crampy feeling in my stomach, as well and, pardon the mental image, going to the bathroom actually helps (yeah, wtf, no idea). This is how this entire week has gone - yesterday was really awful, today I think I was able to stop it by taking Excedrin Tension and going to get a massage (and asking the masseuse to focus on my head and face). Tomorrow I'm going to try avoiding the computer as much as possible and see if the same thing happens.
Someone suggested your diet/caffeine (and if you keep a food journal for awhile, you might be able to notice patterns, which hey you might be on a bathroom schedule for now) but I am also wondering if your computer usage is contributing to your tension headaches. I am not really a headache person but if I'm on the computer too much, especially when I'm wearing my contacts, I will get a tension headache directly above my eyes and into the center of my forehead.
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Old 04-24-2016, 01:27 PM
 
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Originally Posted by mm4 View Post
Gum chewing can induce TMJ, which goes away when stopping.
Yeah, that's the first thing my dentist asked. I don't chew gum, though.
Quote:
Too many citrus beverages can cause acid reflex, which goes away when reducing intake.
I've stopped eating citrus fruits and was never much of an OJ drinker. I think the next thing on my list to cut out is going to be chocolate in all its forms, health benefits of the dark stuff be damned.
Quote:
Shoulder damage takes several years to heal.
Yep, I'm certainly starting to sense this may be the case. How do I work out my upper body while accounting for that, though?Funny, I read the same article yesterday. It still doesn't hurt to stay hydrated though - I definitely get headaches from playing soccer and running outside if I hadn't had a drink of water or Gatorade prior.

Last edited by highlanderfil; 04-24-2016 at 01:43 PM..
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Old 04-24-2016, 01:34 PM
 
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Omigod, what a discouraging combination.

I'll weigh in with three suggestions.

The one thing everyone knows for sure about TMJ is that it's linked to stress. You can see yourself that you improved on vacation. I once had to leave town for two months, and my TMJ disappeared. And never recurred. I know we all say, oh, no, I can't possibly just walk away from my life for that long - I have work responsibilities, family responsibilities. But what if a month or two off could solve some problems long-term? See if you could somehow take a vacation from your life - preferably go to some pleasant smaller town that appeals to you, and leave your cell and laptop behind. (You can allow yourself an hour or two a week at the library to check emails.) By the way, did they give you jaw/neck exercises, or anything else? By the way, I'm guessing the problem is linked to stress, not exercise, but maybe you're a perfect candidate for one of those walking desks.

Second, obvious there is often a correlation between headaches and tension/stress too. Have you talked to anyone about possible non-drug treatment: magnesium/vitamin B supplements, biofeedback, acupuncture?

And, maybe GERD is related, too. It's my impression that you can curb GERD with some lifestyle changes of what you eat, when you eat, and how you sleep.

Good luck.
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Old 04-24-2016, 01:36 PM
 
3,780 posts, read 2,394,554 times
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Quote:
Originally Posted by city living View Post
From reading your symptoms, it sounds like you have more than one thing going on, but nothing too ominous. I don't think all of these issues need to be tied together.
Hopefully not. Problem is, they've kind of piled on top of each other recently and it's been super frustrating.
Quote:
As for your TMJ, why are you wearing the mouth guard on and off?
It's a pretty silly reason, but for a while I was developing random canker sores; the only time I only really seem to get them is either when I chew on pens while concentrating at work (horrible habit from childhood which I've broken) or wear a mouth guard. I do clean it routinely but it doesn't seem to help. Since I hadn't given much thought to TMJ being the source of my troubles, I wasn't really focusing on needing to wear it every night, but now that it's been identified as a possibility, I'm going to take it in to my dentist to have it looked at, cleaned professionally and replaced, if need be.
Quote:
If you have a lot of tension in your shoulders/back, you really need to work on alleviating that. It is possible that you still might suffer from migraines after that, as many people have migraines anyway for no discernible reason.
Yeah...it's kind of all started after I hurt my shoulder, which is why I don't think it's inconceivable that the pain stems from it. I am going to try a different chiro and maybe acupuncture to see if that does anything.
Quote:
Someone suggested your diet/caffeine (and if you keep a food journal for awhile, you might be able to notice patterns, which hey you might be on a bathroom schedule for now) but I am also wondering if your computer usage is contributing to your tension headaches. I am not really a headache person but if I'm on the computer too much, especially when I'm wearing my contacts, I will get a tension headache directly above my eyes and into the center of my forehead.
It's not far-fetched either. Analyzing the last 36 hours or so, yesterday I barely spent any time in front of the screen and was generally OK (I did develop a "regular" headache by the end of the day, but those are less scary since I am familiar with the feeling and know how to get rid of the symptoms), but today I am using the laptop a bit more and am starting to notice the same familiar cramping feeling in my right nostril which is sending pain behind the right eye and in that general part of my head. That's kind of a new thing that bugs me the most. On the flip side (also really odd) is that when this happens, my sinuses are SUPER clear and it's easy for me to breathe through the nose. They are NEVER usually this clear, especially not when I'm sat inside. I'm going to try the gaming glasses - just need to work out a way to get them cheap-ish. Gunnar Glasses seem to be well-reviewed, so I'll give those a go.

I'm not even sure caffeine is the problem, tbh, since I hadn't had any in 48 hours, yet the symptoms are still kind of there. I did take an Excedrin Tension earlier today which seemed to briefly help, but now it's coming back again. At least it's not as bad as it was on Thursday.
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Old 04-24-2016, 01:43 PM
 
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Quote:
Originally Posted by Clarallel View Post
Omigod, what a discouraging combination.
Yep. My doc seemed a bit too eager to diagnose me with dysthymia (a form of chronic depression) simply based on the fact that the whole mess is making it harder for me to do normal stuff I otherwise would be doing (or pass up on out of sheer laziness, but that's another matter altogether ). But, quite honestly, when your face feels the same as your stomach does when you've been kicked in the nuts, it makes it very difficult to do anything but curl up on the couch and wish you'd pass out for an hour or five.
Quote:
The one thing everyone knows for sure about TMJ is that it's linked to stress. You can see yourself that you improved on vacation. I once had to leave town for two months, and my TMJ disappeared. And never recurred. I know we all say, oh, no, I can't possibly just walk away from my life for that long - I have work responsibilities, family responsibilities. But what if a month or two off could solve some problems long-term? See if you could somehow take a vacation from your life - preferably go to some pleasant smaller town that appeals to you, and leave your cell and laptop behind.
Sounds heavenly on principle, not really realistic given my life situation. Plus, even if I were to some how figure out a way to do that, the amount of stress on the flipside that would result from having to catch up to life would just send me back to where I was before.
Quote:
By the way, did they give you jaw/neck exercises, or anything else? By the way, I'm guessing the problem is linked to stress, not exercise, but maybe you're a perfect candidate for one of those walking desks.
Yeah, I'm definitely going to look into the standing desk. If nothing else, maybe I'll burn a few extra calories a day and improve my posture.
Quote:
Second, obvious there is often a correlation between headaches and tension/stress too. Have you talked to anyone about possible non-drug treatment: magnesium/vitamin B supplements, biofeedback, acupuncture?
I have - acupuncture keeps coming up. I'm not a giant fan of being stuck with needles (I've had acupuncture for a bad back when I was 17 and lying down with 40 needles stuck in your back, afraid to breathe because they just keep digging further in is just creeptastic), but on the evidence of them working, I might just buck up and do it.
Quote:
And, maybe GERD is related, too. It's my impression that you can curb GERD with some lifestyle changes of what you eat, when you eat, and how you sleep.
Could be. Acid reflux has definitely been tied to stress and it's entirely possible I'm feeling the after effects of a messy 2015.
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Old 04-24-2016, 05:40 PM
 
2,484 posts, read 1,726,689 times
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Originally Posted by highlanderfil View Post
I'm extremely frustrated and so far have had no luck getting any help from either my internist or specialists, so I'm now appealing to the collective wisdom of C-D. I'll try to make it as brief as possible so as not to overwhelm. These issues may or may not be related, but in order to paint a holistic picture I'll list them all.

Vitals: 33-year-old male, decent physical shape (5 ft. 7, 150, almost-daily exercise, no smoking, virtually no drinking, no recreational drugs of any kind), office job.

0. I went ime I sit at my computer at home or at work or drive, or am not very active, I may as well lie down and fall asleep.

You need to see a neurologist. A good one. Most of them are good but take nothing less than a confirmative total look. I am concerned about some of these symptoms, especially at your age. The first thing I would do is an MRI of your brain and neck with contrast. There are a few things I'd have to rule out like an aneurysm, A-V malformation; early MS, early ALS, or something else yet to be determined. But, it may be nothing. Just remember, this is not a time or place for just guessing. Migraines are anything but uniform with regard to symptoms. And at times they are a diagnosis of exclusion.


The seasonal affect disorder is the second tier on the list and assumes no anatomically demonstrable problem with your head, and, oh, by the way, your heart function needs to be cleared too. Heartburn CAN BE HEART! See a cardiologist. You need an echocardiogram and a Holter monitor at the very least.

If you're just being mental (and you might be)you oughta just relocate. Michigan is one depressing cloudy windy cold dreary place for like 5 months out of the year. Not for everybody. But rule out that other stuff first and foremost. There are life threatening issues in the differential. Not unknown for docs to miss these things and I'm not entirely sure the work-up has been complete.

Last edited by TwinbrookNine; 04-24-2016 at 05:55 PM..
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Old 04-24-2016, 05:58 PM
 
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Quote:
Originally Posted by highlanderfil View Post
3. Last fall I started having symptoms that were eventually diagnosed as reactive hypoglycemia: getting really sleepy with my temples feeling like they are in a vice grip, usually after lunch. Tried messing around with my diet, the worst of the symptoms gradually went away but not entirely. Did a 5-hour glucose test, didn't really show anything except the fact that my sugar levels fluctuated around 90 in a fashion opposite of normal (i.e. spiked late and then fell). Got a thyroid and insulin test - all normal. Meanwhile, I will often feel lightheaded in the afternoon, like one would with a low blood sugar level.
I cant help you with the other issues but I am hypoglcymic, as are many other members of my family on my moms side. I too have been tested for diabetes and thyroid issues both of which came back normal.


I fixed my problem by:


1. Cutting all of the bread and other wheat products out of my diet completely.
2. Eating a piece of fruit every morning about 3 hours after I wake up. No citrus, only apples, bananas or some kind of melon (I really like cantaloupe).
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Old 04-24-2016, 05:59 PM
 
3,780 posts, read 2,394,554 times
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Originally Posted by TwinbrookNine View Post
You need to see a neurologist. A good one. Most of them are good but take nothing less than a confirmative total look. I am concerned about some of these symptoms, especially at your age. The first thing I would do is an MRI of your brain and neck with contrast. There are a few things I'd have to rule out like an aneurysm, A-V malformation; early MS, early ALS, or something else yet to be determined. But, it may be nothing. Just remember, this is not a time or place for just guessing. Migraines are anything but uniform with regard to symptoms. And at times they are a diagnosis of exclusion.
Yep. That's the trouble, though - how do I determine a good one vs. one who will just wave me off like my previous one has done?
Quote:
The seasonal affect disorder is the second tier on the list and assumes no anatomically demonstrable problem with your head, and, oh, by the way, your heart function needs to be cleared too. Heartburn CAN BE HEART! See a cardiologist. You need an echocardiogram and a Holter monitor at the very least.
Well, in the worst case scenario it could be both, as well.
Quote:
If you're just being mental (and you might be)you oughta just relocate. Michigan is one depressing cloudy windy cold dreary place for like 5 months out of the year. Not for everybody. But rule out that other stuff first and foremost. There are life threatening issues in the differential. Not unknown for docs to miss these things and I'm not entirely sure the work-up has been complete.
Nope, neither am I. I am working on relocation but it won't come for a couple of years at the earliest, unfortunately.
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Old 04-24-2016, 07:27 PM
 
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Originally Posted by highlanderfil View Post
Yep. That's the trouble, though - how do I determine a good one vs. one who will just wave me off like my previous one has done?Well, in the worst case scenario it could be both, as well.Nope, neither am I. I am working on relocation but it won't come for a couple of years at the earliest, unfortunately.

I'm assuming the symptoms you describe are real and you don't look or act "mental." That part is important.

Until you see the donut hole on an MRI machine, and see someone do an EKG, an echocardiogram, and maybe a Holter monitor, AND nobody has called you mental, then you haven't yet hit pay dirt.


People drop dead in their thirties, usually of an undiagnosed, but potentially diagnoseable condition. It isn't common, but it does happen. Avoid any doctor that "looks" affirmative action. I say that from years of experience. Just take my word for it.
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Old 04-24-2016, 11:31 PM
 
Location: Caverns measureless to man...
6,704 posts, read 4,165,907 times
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Quote:
Originally Posted by highlanderfil View Post
Yep. That's the trouble, though - how do I determine a good one vs. one who will just wave me off like my previous one has done?
Bad news is, the only sure way is trial and error. My wife is disabled with a serious genetic disorder that manifests in a number of confusing and seemingly contradictory ways, and it took years to get it diagnosed. We must have gone through almost a dozen doctors, and when we finally found the right one he literally diagnosed her before she was fully seated in her chair. He didn't tell us that at the time, but about a half hour into the examination, after doing some basic tests and asking the right questions, he said he knew from the way her back arched, the way her hips rotated and her knees splayed out, and the way her shoulder joints moved as she lowered herself into her chair. 3 years of doctor after doctor after doctor, and when we finally found the right one he nailed it within 20 seconds.

The American health care system is not designed to treat multi-morbid patients; most doctors want to hear 1 complaint - maybe 2, if you're lucky - and then get out the door to the next exam room, usually within 7 to 9 minutes. In my experience, an alarming number of American doctors are lazy and too rigid in their thinking. Most of them aren't interested in solving the problem so much as just getting rid of it, and if you make it too complex the way they get rid of it is to flee to the next patient. When you finally find the right one, you'll know it by the questions they ask and the time and attention they devote to the interview.

All you can do is just keep banging away until you find one that actually gives a damn. Meanwhile, you might want to find some online support groups for a couple of the conditions you describe, and ask the other members if any of them know a good doctor in your area. People who've been sick for a long time and had a hard time getting a solid diagnosis know a good doctor when they find one, and they're usually happy to pass along a good word.

Good luck. Sucks being sick when you're so young and take your health as seriously as you obviously do.

Oh, and by the way - have you researched trigeminal neuralgia? Some of the symptoms you describe almost sound like they may fit. It doesn't sound like an exact match to me, but might be worth considering - even if only to rule it out.
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