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Old 04-26-2016, 06:38 AM
 
4 posts, read 3,603 times
Reputation: 16

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I found the forums and stories of others who have been through this not only to help calm my fears but to educate me on options and expectations. For that reason going to briefly tell you about my experience recently to add to the knowledge already on the forums.

I'm a male - mid 40's, no history of stones before but I do only have one kidney. About a month ago I had moderate pain in my left kidney and back, which would come in waves and move to my left lower abdomen and testicle. The pain in the back felt like the first time you weed eat each year, that pain from bending over with the weed eater all day. It would come and go, lasting about an hour then I'd be mostly fine the remainder of the day. I began peeing brownish then red then brownish pee and figured I better go to the doctor as I thought I might have cancer. Reading these forums helped ease my mind and made me realize it was more likely a stone.

Doctor sent me for a CT scan and found I had an 11mm in my kidney and an 8mm too. Referred me to a urologist. those urologist must make some good money because I could not get in to see them for a month, the pain was tolerable and no medication was needed. My pee changed colors from pink to brown to yellow through the month, the waves of pain in the back seemed to cause blood in the urine. The day before my appointment though I had severer flank/back pain, it subsided in an hour.

They did an xray and could only find the 11mm stone, I don't know where the other one went? Talked about my options and those were ureteroscopy or lithotripsy. I was very concerned about doing any damage to my remaining kidney, doctor recommended litho and scheduled me for the following Monday, which was yesterday.

At the hospital they took my weight, what little urine sample I could provide, did an EKG, blood pressure, and of course blood and IV. Waited a couple hours to go back, nurse came in and gave an injection of pre- anesthesia medicine and rolled me back. Last thing I remember was in the OR they put a mask on me and I was out.

Woke up in recovery no issues from the anesthesia, but felt like I had to pee really bad, my bladder was throbbing. Tried to pee and it burned like crazy but nothing came out. Laid there for about 10 minutes and kept trying to pee in the bottle but could not. I have a really high pain tolerance, but will say that feeling was a fullness and burning but not intolerable pain.

Got back to my room, they unhooked the IV and let me get dressed, went to the bathroom and pee'd pure blood. Noticed I had a string handing out my male part, obviously they put a stent in. Peeing was pretty painful but manageable, the description of feeling like your on fire or a wasp is stinging your insides is about accurate. It's tolerable but it hurts.

When I got home I immediately started drinking water, the pain in my bladder and left testicle where about an 8 out of 10. The testicle pain is the worse because it throbs and well it's naturally sensitive. I had not yet picked up my hydrocodone pain meds from the pharmacy so was not on any pain meds at this point. I constantly felt like I had to pee, but 4 out 5 times nothing would come out, the next hour I basically stood over the toilet. Wife got home with my meds took a hydrocodone and was still in severe pain that alternated between the back and the front. This lasted about 4 hours, it was bad enough I called the urologist nurse to ask if this amount of pain was normal, they told me either go to the hospital or take another hydrocodone, I opted for a second pain pill. Got in a hot tub with the cut off end of a plastic glove over my male part so as not to get it wet. The pains finally got better.

So just under 24 hours. The pain in my back from the litho is very tolerable, nothing more than a mild discomfort. It's true the more water you drink the less blood it will look like you will pass and the easier it will be to pee. It still burns and the color goes from pink to red to pink, from what I read it will clear up soon.

Having a new issue however, when peeing I feel the stent in my kidney being pressed down and it hurts more than the burning. The pain meds don't seem to be helping with this, anyone have any tricks to ease that? So far I've not seen any gravel or stones pass, they did not give me a strainer but if I look in the toilet I see what looked like a small piece of tissue and maybe a sand particle. There's been tiny blood clots that pass. I don't know if it's normal to leak blood but I'm having to change my underpants every few hours due to blood leaking.

So my experience so far is;

1) The litho was easy and the pain from the litho itself seems very mild
2) I still feel a pressure in my back, similar to what I felt before the litho so I wonder if they actually broke it up.
3) Have pain in my lower left abdominal and left testicle that shoots in waves, seems more tolerable with the pain meds.
4) Peeing hurts and is bloody, but the more water you drink the better it is. Having blood leakage in my underpants.
5) The stent is annoying but tolerable so far, the only bad part is now when peeing I feel the stent being pushed down in my kidney causing about a 6 out of 10 pain.

Based on what I've read from others my experience seems almost normal, for someone with high pain tolerance though I seem to be on the more painful side of the scale then others. Hopeful the worst part was last night and it gets better from here. To those that are having this done, yes it hurts post litho with a stent, drink a lot of water, don't fall behind on the pain meds, and you can manage through.
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Old 04-29-2016, 03:58 PM
 
4 posts, read 3,603 times
Reputation: 16
Almost the end of week one and the first 40 hours were the worst, mostly severe pain. Hydrocodone did not help but got Oxycontin on Tuesday and really helped get through the worst pains. Once the blood began to clear things got a little more tolerable. still hurts to pee as I have testicle pain and that darn stent pushed down in my kidney and I almost can't stand up. Did find that sitting down and bending over seems to help some as well as pee'ing in the shower with hot water hitting my back, that really takes the stent pain away. My wife was not thrilled by my discovery though

Hopefully get the stent out on Monday but I don't have a good feeling Ive passed the stones and I fear now that when the stent comes out I'm going to be in more pain, they will do an xray on Monday before the stent removal to check on stones progress.

Did anyone else have this much pain from their stent? After coming out did it get worse or better? Anyone?
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Old 04-29-2016, 11:28 PM
 
2 posts, read 1,358 times
Reputation: 10
Hey,

I just wanted to know about symptoms and causes for kidney stone.
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Old 04-30-2016, 08:03 AM
 
4 posts, read 3,603 times
Reputation: 16
my symptoms were in the 2nd paragraph in the 1st post. causes depend upon the type of stone, could be from the food you eat, to your weight, to your activity level, to hereditary. Until you pass a stone and analyze it or they do a urine test for 24 hours I don't think they can tell you the cause. Mostly they form because the urine is not saturated enough meaning people don't drink enough water and the urine forms crystals, although that's not the only cause.
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Old 05-02-2016, 04:21 PM
 
4 posts, read 3,603 times
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1 week and had followup with urologist today. The part I feared the most the stent removal As many have said here and on other forums, the anticipation was way worse than the actual act. I stood up and he pulled the strings and out it came, by the time I felt anything I looked down to see the end of the stent coming out. I did not feel anything except a burning but it was no where near as intense as peeing the first 24 hours after litho and the stent. Just like everyone else I can attest having gone through it, the fear and anticipation were much worse than the actual stent removal. Pain about a 3 out of 10, just a burning as it came out then it was all over.

They gave me an injection of Tramadol to help with any inflammation, so far no issues just a mild tingle in my back.

The xray today showed there are still stone fragments but the edges were blurry making the doctor think these were more like sand size particles clumped together and I'd just need to pass them. Followup in two weeks for another xray to see if they are gone or have moved.
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