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Old 05-28-2016, 09:08 PM
 
165 posts, read 121,029 times
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On Wednesday I had a CT scan to check on calcification in my heart Good news no calcification.....bad news evidence e of.pulmonary fibrosis. Now need to get a HDCT scan of.my lungs and an appointment with a pulmonologist. Anyone have any experience with this? Everything I have read is pretty scary. Thankz
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Old 05-31-2016, 07:36 PM
 
Location: Fredericksburg, Va
5,120 posts, read 12,746,433 times
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I have a good friend with this...she has to take precautions...no smokey environments...stay inside on high pollen days, etc...but she's doing ok. I think the trick is a good doctor.
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Old 06-28-2016, 10:07 AM
 
Location: Portland, Oregon
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So sorry to hear of your diagnosis.

A relative has been diagnosed with that disease. From everything I read it is progressive and cannot be cured but there are drugs available to make you more comfortable. Life span 5 years, average 3 years from diagnosis often from complications such as a heart attack.
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