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Old 09-07-2016, 01:34 PM
 
Location: Southern California
29,267 posts, read 16,728,168 times
Reputation: 18904

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Quote:
Originally Posted by Luvvarkansas View Post
I had a torn meniscus and had surgery to clear it about 2 years ago. It did not work and I still have pain in my knee. I hope I didn't make it worse.
This same MD that talks about arthritis setting in once cut, says as long as one can BEND knees, there is cartlidge there. When they "clean" it out all cartlidge is gone. That is where is Prolotherapy work comes into play about avoiding surgery.
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Old 09-07-2016, 01:46 PM
 
4,901 posts, read 8,749,130 times
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Quote:
Originally Posted by jaminhealth View Post
This same MD that talks about arthritis setting in once cut, says as long as one can BEND knees, there is cartlidge there. When they "clean" it out all cartlidge is gone. That is where is Prolotherapy work comes into play about avoiding surgery.
I can still bend it all the way up with just a tiny bit of pain, I just can't put a lot of stress on it without paying for it, as I did when I tried to help hubby mow the yard. It hurt worse for over a week. It still hurts and twinges at odd times, even "twitching" sometimes, and still "catches" and has to be sort of twisted and "popped" loose, just like it did before the surgery. I can still walk fine, though, so that's something to be thankful for.

I also sleep well, which, after reading others' experiences with bad sleep, is another thing I can be thankful for.

My FM is mainly pain and stiffness instead of fatigue although, after a hard few hours of housework or cooking, once I get on the couch with heating pad to the back for a couple of hours, it feels like I have a ton of bricks on top of my head when I try to get up. It passes and I get on up and feel fine...well, relatively fine. I NEVER feel fine...I take that back...sometimes, when I've taken my tramadol/acetominophen mixture, I feel pretty darn good and the world seems wonderful. (it does not make me high, I just feel great because of the almost complete absence of pain)
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Old 09-07-2016, 05:22 PM
 
Location: Middle of the valley
48,518 posts, read 34,815,517 times
Reputation: 73729
At the peak of my symptoms my brain fog was horrible. I honestly thought I had a stroke.... couldn't do math in my head, remember a simple list - it was quite distressing. The combination of my body failing and my mind scared the beejeesus out of me.

It took me a couple years to get back to being active and being able to rely on my brain again.
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Old 09-08-2016, 02:21 AM
 
Location: Eugene, Oregon
11,120 posts, read 5,583,894 times
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Try eliminating all MSG and aspartame from your diet. It's not easy to do, as they are hidden in many prepared foods. If you see an ingredient such as "vegetable broth" or "hydrolized vegetable protein" in foods, it may contain unlisted MSG. It's in most, if not all, water-pack canned tuna. Chinese-food restaurants in the USA are notorious for loading their dishes with MSG.
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Old 09-08-2016, 09:48 AM
 
Location: near bears but at least no snakes
26,656 posts, read 28,659,091 times
Reputation: 50525
Quote:
Originally Posted by Steve McDonald View Post
Try eliminating all MSG and aspartame from your diet. It's not easy to do, as they are hidden in many prepared foods. If you see an ingredient such as "vegetable broth" or "hydrolized vegetable protein" in foods, it may contain unlisted MSG. It's in most, if not all, water-pack canned tuna. Chinese-food restaurants in the USA are notorious for loading their dishes with MSG.
Good thought, but this illness is much more than just MSG. Most people who have this illness are cooking for themselves and trying to eliminate allergens such as wheat and dairy. Most people are eating lots of vegetables and if they can afford it, they eat organic to avoid ingesting pesticides. People make their own broth from bones. People are making a point of breathing fresh air and avoiding household chemicals. There are a lot of things that make the symptoms worse; it's like a boatload of causes, an overloaded sinking ship.
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Old 09-08-2016, 12:43 PM
 
885 posts, read 1,166,120 times
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Thank you all for your input.
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Old 09-09-2016, 08:52 AM
 
Location: Colorado Springs
15,219 posts, read 10,299,568 times
Reputation: 32198
Quote:
Originally Posted by Luvvarkansas View Post
If it were as simple as taking Mucinex everyone in the world would be cured of FM. I find it hard to believe.


I went to a supposed "specialist" about 15 years ago who said that guafenison (spelling) was the magic pill. He also put me through a battery of allergy tests and then started me on shots. Oddly enough I had a severe reaction to Keflex which I had to take for an infection and wound up in the hospital from severe side effects of the Keflex. I had taken it before and never had a problem until I started taking these shots. Coincidence? Maybe.


I cannot take Mucinex. My thyroid was removed in 2013 and in the course of having that done the doctor paralyzed one of my vocal cords. Sometimes, especially at the beginning of a respiratory infection, the vocal cords slam shut and I have brief periods where I cannot get a bit of air in. That is a scary, horrible feeling. I was taking Mucinex the first time I had an episode not realizing it actually made my situation worse. The second time it happened I realized there was a connection between the Mucinex and the severity of my breathing issues.


It seems like most surgeries cause additional problems.
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Old 09-09-2016, 10:08 AM
 
Location: near bears but at least no snakes
26,656 posts, read 28,659,091 times
Reputation: 50525
Quote:
Originally Posted by chiluvr1228 View Post
I went to a supposed "specialist" about 15 years ago who said that guafenison (spelling) was the magic pill. He also put me through a battery of allergy tests and then started me on shots. Oddly enough I had a severe reaction to Keflex which I had to take for an infection and wound up in the hospital from severe side effects of the Keflex. I had taken it before and never had a problem until I started taking these shots. Coincidence? Maybe.


I cannot take Mucinex. My thyroid was removed in 2013 and in the course of having that done the doctor paralyzed one of my vocal cords. Sometimes, especially at the beginning of a respiratory infection, the vocal cords slam shut and I have brief periods where I cannot get a bit of air in. That is a scary, horrible feeling. I was taking Mucinex the first time I had an episode not realizing it actually made my situation worse. The second time it happened I realized there was a connection between the Mucinex and the severity of my breathing issues.


It seems like most surgeries cause additional problems.
There is no magic bullet for fibromyalgia because it's different for each person. Although there is a guaifenesin protocol (Dr. St. Amand) that some drs believe in, it may come close to working and I think he had the right idea, but mostly, it doesn't work. I remember reading about it after I got rid of my own fibro and realizing that by taking a certain amino acid, I had accomplished the same thing. I distinctly remember concluding that he was on the right track (but I can't remember why at this point in time. )

People with fibro usually become more and more allergic and obviously will become allergic to things they are eating or come in contact with every day. Allergy shots do help because they lessen the load and give your body a break from fighting. But other than that, it's avoiding the allergenic foods (find out what your are!), eating a really good healing diet, avoiding chemical products, cigarette smoke (the list goes on and on) but eliminating whatever is making your body work so hard), getting tested for vitamin and mineral deficiencies, trying to somehow get tested for amino acids, and getting 20 minutes of gentle aerobic exercise every single day. Even getting your magnesium levels up by using easy-to-absorb magnesium oil, is part of the cure. It's so complicated that very few people ever get better and it is definitely not a one size fits all cure.
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Old 09-09-2016, 11:10 AM
 
Location: Southern California
29,267 posts, read 16,728,168 times
Reputation: 18904
My big medicine to help me thru the last 20 yrs has been grape seed extract and one of our members just reported on how pycnogenol has helped her so much. I started with pycnogenol in 1995 and took it a whole year and then went to grape seed extract and now use both. This is in the Allergy area.

Getting the immune system strong is what it does for our overall health. Addresses some 69 health issues...>Fibro has got to be in the mess of it all.

Yes on surgeries, they are traumas to our bodies in more ways than we ever could realize.
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Old 09-11-2016, 08:11 PM
 
Location: Pueblo, CO
466 posts, read 1,062,031 times
Reputation: 284
Smile don't

Quote:
Originally Posted by eok View Post
Just because a doctor ruled out Lyme disease doesn't mean you don't have Lyme disease. A lot of cases of Lyme disease are very hard to diagnose and get ruled out as not being Lyme disease. It's likely a lot of cases of fibromyalgia are actually undiagnosed Lyme disease.

You can also be treated for Lyme disease and the doctor can say you're cured when you actually aren't cured yet. They jump to conclusions about it, because of how hard it is to test reliably.

I don't have fibromyalgia or Lyme disease myself, nor any symptoms of them. I'm just summarizing what I've read about them.
Don't talk/write about something you don't really know anything about it. We fibros are sick and tired of it. Fibromyalgia is a real illness, just not curable yet, because doctors don't really know the cause for it. It isn't in our head either. When my fibro started I was tested for everything a doctor or I could think of and finally in 1992 I got the diagnose fibromyalgia, what didn't help much, because nobody really understood it. So please, keep your thoughts for yourself if you are (lucky you) are not affected by it. We have heard it all.
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