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Old 08-08-2017, 02:33 PM
 
7,997 posts, read 10,380,366 times
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I have Lyme. The CDC is useless when it comes to Lyme. Also, if your test is negative, don't believe it. The tests have been shown to be horribly inaccurate, missing as many as 70% of cases in a Johns Hopkins studies. In Virginia, doctors are even required by state law to tell patients that the tests are inaccurate.

You need to find a Lyme Literate doctor. You can go to the International Lyme and Associated Diseases Society's website. They have a physician referral link. www.ILADS.org.

I also advise you to watch the documentary Under Our Skin and it's sequel Under Our Skin Emergence. They are available on Amazon Prime, Netflix, etc.
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Old 08-08-2017, 08:25 PM
 
Location: Tampa Bay Area Florida
7,937 posts, read 20,328,893 times
Reputation: 2026
Quote:
Originally Posted by CarnivalGal View Post
I have Lyme. The CDC is useless when it comes to Lyme. Also, if your test is negative, don't believe it. The tests have been shown to be horribly inaccurate, missing as many as 70% of cases in a Johns Hopkins studies. In Virginia, doctors are even required by state law to tell patients that the tests are inaccurate.

You need to find a Lyme Literate doctor. You can go to the International Lyme and Associated Diseases Society's website. They have a physician referral link. www.ILADS.org.

I also advise you to watch the documentary Under Our Skin and it's sequel Under Our Skin Emergence. They are available on Amazon Prime, Netflix, etc.
Thank You
I know people who have Have Lyme as well and went undetected for a lot of years..Dr will be testing for Lupus as well...MS has already been ruled out...Everyone likes to blame my symptoms on Peri-Menopause which in fact plays 85% of how I am feeling since I am IN Peri but this just feels way off all these pains in my muscles.
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