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Old 11-28-2017, 07:16 AM
 
97 posts, read 37,209 times
Reputation: 187

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Question for those who have had a myomectomy or are familiar with the procedure.


I had a myomectomy in April and had 10+ fibroids removed during the procedure. My surgeon was not able to remove all of the fibroids to preserve my uterus. So we're almost 8 months out from my procedure and I am still experiencing excruciatingly painful menstrual cycles. Before the myomectomy, I was taking hydrocodone during my cycle. Now I'm just taking liquid Tylenol.


The surgeon, who is a fertility specialist, sent me back to my OB/GYN for follow up care. I had an IUD and the surgeon removed it prior to surgery then switched me to continuous BC pills (skipping the week of inactive pills). I continued the BC pills after surgery because to be honest I was terrified to have a cycle because of the pain that I had had prior to having the myomectomy. I finally opted to get another IUD and was told to stop taking the BC pills. I completely understood, there was no need to have both. Now that I have the IUD, my periods are still extremely painful. I still experience clotting and heavy bleeding. At one point I was going through 4 feminine napkins in an hour. My OB/GYN's office told me that they don't consider my issue to be an emergency unless I'm going through 7 feminine napkins within an hour I'm feeling lightheaded and having all of those awful PMS symptoms. Is this normal? How long did it take for your cycles to not be as painful after the myomectomy? I'm thinking that I need to have an ultrasound and hoping that I haven't developed more fibroids
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Old 11-28-2017, 12:30 PM
 
2,151 posts, read 715,317 times
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Hell no, that isn't normal or everybody would bleed like that. I could go through 2 napkins on a walk to the deli and back when I had fibroids. Can you find another doctor and get another opinion since obviously you're in distress and pain and need someone to help you? Feeling lightheaded can't be good for your quality of life, especially if you have to work or drive or commute. You could go to a GP or internist and they would probably find you anemic during that kind of bleeding. How long does it last and how old are you?

Anyway, if you're being "treated" and are still bleeding too heavily and feeling unwell, you either need to see someone else or tell the doctors you're seeing that YOU consider it an emergency and want them to take another approach. As for me, if they told me what they told you, I'd be asking around already for someone else.

I don't know what the answer to your problems will be and mine were different, but I hope you find someone who can help you get some relief.
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Old 11-28-2017, 09:05 PM
 
Location: Mostly in my head
19,341 posts, read 51,940,414 times
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I would be looking for a hysterectomy.
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Old 11-29-2017, 12:30 AM
 
2,151 posts, read 715,317 times
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Quote:
Originally Posted by SouthernBelleInUtah View Post
I would be looking for a hysterectomy.
SouthernBelle, don't even use that word here. I once responded to a poster whose life sounded not worth living with the gynecological problems that she outlined and told her it was what she needed and I got hated on, like I had some nerve to use the "H" word on a stranger. Besides, the OP could be 22 or something and not ready for those thoughts.

Being me, and the age I am, I agree there are worse things than a hysterectomy.
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Old 11-29-2017, 06:31 AM
 
97 posts, read 37,209 times
Reputation: 187
Thank you both for responding!

I'm 35. I bled for 3 weeks last month and so far, I've been bleeding for a week this month. I receive iron infusions due to malabsorption issues so I asked them to check my iron levels now to see if this constant, heavy bleeding could be causing more issues. I saw a gyn. yesterday who removed the IUD and scheduled me for an ultrasound to see if more fibroids had developed. I agree with you both this is affecting my quality of life and I'm giving serious thought to having a hysterectomy at this point. I admit that the thought of having a hysterectomy gave me anxiety but at this point, I don't know if I have any other options.
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Old 11-29-2017, 04:25 PM
 
Location: Georgia, USA
20,197 posts, read 24,739,694 times
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I am old enough to know many women who have had hysterectomies. Few have had significant complications, and many said their only regret was not doing it sooner. One who did regret it was infertile, and that was before many of the high tech procedures we now have to help couples achieve pregnancies.

In the past, consideration was given to removing the ovaries, but usually not until about age 40, unless either ovary, or both, looked abnormal at the time of the hysterectomy. These days, most gynecologists will leave normal ovaries if the patient does not have risk factors for breast or ovarian cancer. That's a discussion that needs to happen before the hysterectomy, with the patient's wishes coming first.
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Old 11-29-2017, 08:44 PM
 
2,151 posts, read 715,317 times
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I had a female doctor tell me to "take everything out" because, she said, she was a doctor and I had no idea what she'd seen. I said N-O, the ovaries stay. It was my decision and I kept them since they were healthy.

Moonpie - seeing a different doctor is the way to find out if you have other options and what they are. I never met anyone who wanted a hysterectomy, but ended up having one because the alternatives were worse. Once I was OK with it in my head, that was the hard part to me. Or the important part, since no surgery is easy.
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Old 01-10-2018, 09:12 AM
 
1 posts, read 126 times
Reputation: 10
Moonpie, good luck!

It sounds like you are going through quite a lot! I am 40 years old and considering a hysterectomy for fibroids. I have too many to count and many are quite large in size. My periods, which have always been heavy, are getting progressively heavier and more painful. I am dreading my period's arrival each month. The first three days are profoundly painful. I have gotten migraines my entire life, so have usual experiences of pain; however, I find this pain staggering. Myomectomy is one of my options, but I am concerned that, considering the volume of fibroids, this surgery would still leave me with the same problem.
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