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Old 02-13-2018, 03:36 PM
 
25,388 posts, read 24,169,505 times
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It's a long story. To cut it down, nobody on any link in this chain - insurance, pharmacy, doctor - let me know that I was supposed to have an appointment "once a year by law" (it's been two years with the doctor auto-refilling, what on earth???) and now the doctor refuses to refill my Restasis (for dry eye syndrome) until I see someone in their offices.

I have an appointment for Thursday but will be out tonight, as this has been days of me trying to figure out what the hell is going on...obviously I reordered ahead of time like always, but too far ahead and they won't refill.

I have a call into the doctor. The receptionist lazily informed me that "they have patients" (no shoot, really?) and it could be some time before the doctor gets back to me.

So...if I don't take Restasis for a few days does anyone have any idea whether this will be a problem? The issue is that the reason I started the Restasis was horrific. My condition causes my eye to feel like it's ripping open in the morning as literally the cells don't attach properly and they "stick" to my eyelids and rip up and away from my cornea when I open them in the morning (when I'm not medicated). This is considered permanent. Since the Restasis the issue has cleared up and it's like a godsend. If it happens again it will be devastating. I can't see when it does, I can't drive and the pain is indescribable.

Thanks so much for any help.
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Old 02-13-2018, 04:05 PM
 
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OP: Can't help on the Why's for your medication. I've been taking eye supports for years but all alternative and I do well on them for these 79 yr old eyes. I'll be glad to share if you want to hear, let me know.
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Old 02-13-2018, 04:12 PM
 
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Quote:
Originally Posted by jaminhealth View Post
OP: Can't help on the Why's for your medication. I've been taking eye supports for years but all alternative and I do well on them for these 79 yr old eyes. I'll be glad to share if you want to hear, let me know.
Thank you.
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Old 02-13-2018, 05:10 PM
 
2,743 posts, read 6,988,672 times
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I have Graves and very dry eyes, though not on Restasis. I used to have to soak wash cloths in warm water and lay them on my eyes for several minutes every morning before I could open them.
Now I use Lacrilube every night (actually the Target generic brand) and it helps tremendously. I have to rinse the ointment out or my vision is greasy blurry for a while.

Good luck! I remember the pain intensely!
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Old 02-13-2018, 05:14 PM
 
25,388 posts, read 24,169,505 times
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Quote:
Originally Posted by jerseyj View Post
I have Graves and very dry eyes, though not on Restasis. I used to have to soak wash cloths in warm water and lay them on my eyes for several minutes every morning before I could open them.
Now I use Lacrilube every night (actually the Target generic brand) and it helps tremendously. I have to rinse the ointment out or my vision is greasy blurry for a while.

Good luck! I remember the pain intensely!
Thank you! I'm going to see if I can find this.
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Old 02-13-2018, 05:24 PM
 
Location: Southwest Washington State
18,886 posts, read 12,498,870 times
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I am a Restasis user. I have to get my prescription re-prescribed every year.

I have just discovered this product, GenTeal Tears (severe). I am using it at night to supplement the Restasis. It is very soothing.

Find a different doc, and make an appointment. Your present doc sounds sort of like a jerk. And it is his mistake for continuing to prescribe for two years.
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Old 02-13-2018, 05:25 PM
 
25,388 posts, read 24,169,505 times
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Quote:
Originally Posted by silibran View Post
I am a Restasis user. I have to get my prescription re-prescribed every year.

I have just discovered this product, GenTeal Tears (severe). I am using it at night to supplement the Restasis. It is very soothing.

Find a different doc, and make an appointment. Your present doc sounds sort of like a jerk. And it is his mistake for continuing to prescribe for two years.
Thank you very much.

I have an appointment for Thursday. We have switched insurance since I started with him. I was kind of forced into a small selection of specialists at the time. Let me see if that has opened up with this new insurance. We just got it.
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Old 02-13-2018, 08:13 PM
 
Location: Middle of the ocean
27,511 posts, read 17,660,829 times
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I haven't taken restasis in years, but it is the type of drug that builds up to effectiveness, so I think losing the benefits is not instantaneous. I think, I am not positive.

The Genteal Tears is really good, I think they also sell it as a ointment/gel that is stronger (lasts longer) which could be perfect before you go to sleep. Beware that with both your vision is blurry right after using, so give yourself a few minutes.
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Old 02-13-2018, 08:51 PM
 
25,388 posts, read 24,169,505 times
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Thanks, Mikaela.
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Old 02-14-2018, 02:56 AM
 
15,833 posts, read 18,460,249 times
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ER room if it happens before your appointment.
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