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Old 03-14-2018, 01:39 PM
 
Location: Alexandria, VA
15,143 posts, read 27,776,049 times
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Wow!!! Just WOW! Typical patient is grossly overweight? Hmmmm - I weigh 103, how much weight do you think I should lose?
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Old 03-14-2018, 01:59 PM
 
Location: Middle of the valley
48,519 posts, read 34,833,342 times
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Quote:
Originally Posted by Flamingo13 View Post
Wow!!! Just WOW! Typical patient is grossly overweight? Hmmmm - I weigh 103, how much weight do you think I should lose?
I'm 125 for not overweight either. I have not seen any numbers for obesity increasing FM..... it's possible, but I haven't seen any data.
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Old 03-14-2018, 02:28 PM
 
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Hi,

Doctors wanted to diagnose me with FB too although it's supposed to have certain points on your body that are tender and hurt...I found that I have a muscle imbalance...always doing physical things more with my right side...so much so that my right side had to work double time in order to compensate the left side...getting my muscles in balance using the Pete Egoscue methods has helped tremendously...hope this helps someone.
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Old 03-14-2018, 03:28 PM
 
Location: South Dakota
4,173 posts, read 2,569,029 times
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Quote:
Originally Posted by Haksel257 View Post
Fibromyalgia (like many diseases) is a set of symptoms, with many causes.
This is true. Fibromyalgia is mostly a catch all name when they don't know what else to call it. Fibro means muscle fibers, and myalgia means pain. There are many theories on what causes it, but no one really knows. For a long time it was never taken seriously so funding was limited. In the ads for Lyrica it says that Fibro is caused by overactive nerves. But what causes overactive nerves in the first place? What is the root of the problem? At this point only the symptoms are being treated since the root cause is not known. Rarely do prescription drugs cure anything. This is how they make their money, by treating symptoms.

I started to get this around 1996. Mine is mostly in all my muscles, a burning weakness in all my cells 24/7 with painful joints thrown in for good measure, plus the usual symptoms. No pressure points for me. Some believe that fibro, and CFS (chronic fatigue syndrome) are the same disease just manifesting differently. Some think it is simply Hypothyroidism. Others believe it could be caused by a stealth or retrovirus, or other infections that don't show up on standard tests. Fibromyalgia symptoms also mimic other diseases which must be ruled out.

Misdiagnosis of Fibromyalgia - RightDiagnosis.com

Dr. Jacob Teitelbaum, a worldwide expert on this has been around forever, and has a treatment plan that treats many areas. He believes that everything from hormone imbalances to infections need to be treated. He is very trustworthy although the fda, and big pharma don't like him since they are left out, and can't suck our money away.

https://secure.endfatigue.com/

Vitality 101 |

Hypothyroid's 300 symptoms.....

https://hypothyroidmom.com/300-hypot...many-you-have/

Phoenix Rising is an excellent site for those with possible Fibro/CFS/ME although it is mostly a cfs/me site. I really like their forum. They really get into all the research.

Phoenix Rising — A Chronic Fatigue Syndrome (ME/CFS) and NeuroEndocrineImmune (NEI) Conditions Website

Another possibility is that Fibromyalgia is a form of MS.

https://www.verywell.com/multiple-sc...mptoms-2440787

Iron overload, or Hemochromatosis which is deadly unless treated, is fairly common. It can be genetically caused and can have many of the same symptoms as fibro. Giving blood brings the level down as well as avoiding iron, and vitamin C which helps to absorb iron. It is especially prevalent in people with Celtic, or northern european heritage of any age. It stores iron in our organs causing them to malfunction.

Hemochromatosis Symptoms, Diagnosis, Treatments and Causes - RightDiagnosis.com

I really like this site as she tells her story. Follow the links for great info on Iron Overload.

NOT fibromyalgia. What I have is FATAL. (please SHARE)

--------------------------------------
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Old 03-14-2018, 03:49 PM
 
3,205 posts, read 2,622,430 times
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Originally Posted by kapikap View Post
I am being treated for fibromyalgia, it is a diagnosis so far ,visiting the rhumetologist for 6 months now.

I have pain in most all joints and a stiff neck. I also am suffering arthritis an 2 radiculopathies. I also have restless legs and arms, can't stop stretching and rotating my wrist and ankles.insomnia in addition.

Could I possibly not have fibro ,but something else? Multiple blood work does not point to another direction. No Lyme lupus or thyroid issues. Trigger points are positive in multiple locations.

Can fibro be confused with something else? My doctor is an old timer, and knows his stuff. Very involved withy health.

The reason I ask if it can possibly be something else, is because I am a male. I have been getting checked out by many different specialist, and have finally getting treated for something.

I am excited to find a diagnosis for my fatigue and pain, but not excited of what I am looking forward to. 6 different meds , to take daily ,is not fun.
I want to reiterate what done others have stated.

Fibromyalgia is not a diagnosis, it is a list of symptoms.

The medicines prescribed for fibromyalgia are not a cure or treatment for a disease, they are just a way to aleviate some or all the symptoms referred to as fibromyalgia.

So in other words, if you manifest the symptoms that make up the description of fibromyalgia, then you have it. It doesn't mean that the CAUSE of your symptoms is the same as everyone else manifesting those symptoms.

You CAN'T be misdiagnosed as long as you show the symptoms.
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Old 03-14-2018, 03:53 PM
 
Location: South Dakota
4,173 posts, read 2,569,029 times
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Originally Posted by parentologist View Post
The typical patient is an overweight female.
Please include at least two sources for this claim. Thank you.

It is true that more females than males get this, but I've never seen the overweight part included in a list of symptoms. Gaining weight is more of a result from fibro, not a cause. I now weigh approx 133 at 5 ft 7 inches which fluctuates a little. Most of my life my set point was 115 lbs no matter what I ate, and my fibro started back when I didn't weigh much. Of course being overweight brings it's own set of problems.

I must add that after one has had chronic pain it hurts like hell to exercise. You already hurt like hell. But I try to force myself to do it anyway since if I don't I get deconditioned rapidly. People can gain weight AFTER they get fibromyalgia because of the pain, and lack of energy issues. There are many people out there that were very active beforehand that had to scale back because of said pain, and lowered stamina. I was one of them that couldn't do what I used to do. I've read countless stories on forums of others in the same boat.
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Old 03-14-2018, 04:28 PM
 
Location: South Dakota
4,173 posts, read 2,569,029 times
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Quote:
Originally Posted by rugrats2001 View Post
You CAN'T be misdiagnosed as long as you show the symptoms.
Except that if they just label it as fibromyalgia, and not what it really is you are then not being treated properly. For instance, if your pain is being caused by cancer, or iron overload you can die from either one of these. There is also MS, and lupus which fibro mimics. They need to dig deeper.

Hemochromatosis: Very common, and very unknown. Get yourself tested.

https://www.hemochromatosis.org/#overview

Last edited by mlulu23; 03-14-2018 at 05:03 PM..
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Old 03-14-2018, 06:07 PM
 
3,861 posts, read 3,151,256 times
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I am a little overweight. Weight loss is always recommended for good health. Less stress in the joints.

I am under 50 years of age. I did have an excercise plan, combination yoga stretches and light weights. I do better with symptoms from middle spring to start of fall. The weather affects me.
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Old 03-14-2018, 06:15 PM
 
Location: Middle of the valley
48,519 posts, read 34,833,342 times
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Quote:
Originally Posted by kapikap View Post
I am a little overweight. Weight loss is always recommended for good health. Less stress in the joints.

I am under 50 years of age. I did have an excercise plan, combination yoga stretches and light weights. I do better with symptoms from middle spring to start of fall. The weather affects me.
Would tiring out your body with cardio reduce the restless limbs part? For FM yoga stretches are insanely helpful. I would take a muscle relaxant and stretch. Also, a TENS machine, get the cheap Made in China one from Amazon for $20, works great. Capsacian (sp?) cream is a good counter-irritant.
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Old 03-14-2018, 06:37 PM
 
Location: Southern California
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I was told by an endo MD in 1999 while I was working to get my thyroid "fixed" that your thyroid is fine but you have Fibromyalgia...I said what is that? He proceeded to show me charts of the tender points and sell me on his guaifensen program. Not buying it.

For me, my issue was thyroid afterall when I finally got it supported in 2002.

There is a lot of info on the thyroid/FM connection link.

I have a good deal of body pain from arthritis and gym injuries so if I have this Fibro issue I do not know, and I agree it's a lot of stuff gone wrong. Adrenals included.

I've taken no pharma drugs and work with all supplements for what I deal with...ibuprofen for pain.
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