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Old 03-13-2018, 08:23 AM
 
2,737 posts, read 989,268 times
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I am being treated for fibromyalgia, it is a diagnosis so far ,visiting the rhumetologist for 6 months now.

I have pain in most all joints and a stiff neck. I also am suffering arthritis an 2 radiculopathies. I also have restless legs and arms, can't stop stretching and rotating my wrist and ankles.insomnia in addition.

Could I possibly not have fibro ,but something else? Multiple blood work does not point to another direction. No Lyme lupus or thyroid issues. Trigger points are positive in multiple locations.

Can fibro be confused with something else? My doctor is an old timer, and knows his stuff. Very involved withy health.

The reason I ask if it can possibly be something else, is because I am a male. I have been getting checked out by many different specialist, and have finally getting treated for something.

I am excited to find a diagnosis for my fatigue and pain, but not excited of what I am looking forward to. 6 different meds , to take daily ,is not fun.
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Old 03-13-2018, 09:18 AM
 
Location: Nantahala National Forest, NC
10,867 posts, read 2,050,370 times
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Why do you not believe the diagnosis from these health care professíonals???

6 meds, I take more than that....it's no big deal.

Just be glad there are treatments available for you...
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Old 03-13-2018, 09:57 AM
 
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Men can get it too. I strongly suggest asking your doctor to do a full vitamin panel on you. I was found to have low vitamin D, B12, and some others I cannot remember off the bat. Anyway, fibro patients are usually low on the vitamin D, and it makes a world of difference on pain levels and fatigue. Are you taking anything to help you sleep? Getting a decent night's sleep is crucial to keeping the pain at bay.
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Old 03-13-2018, 10:59 AM
 
Location: Middle of the ocean
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FM frequently manifests with RA, it's like insult to injury.

I am going to assume the 6 meds are not just for the FM?

The only thing I can offer is my FM has diminished greatly (after about 5 years), and I no longer take medication for it on a daily basis.

I wish I could tell you I did "X" and it went away, but I can't.
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Old 03-13-2018, 11:18 AM
 
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One medicine diminished my pain significantly, and that was Lyrica. I take as little of it as possible to get some relief. When I have to work or stand on my feet a lot and that spot in my back starts killing me, a little Tramadol takes care of that.

I hope you find something that helps. My daughter has had that "restless wrists" thing too, and it's miserable for her.
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Old 03-13-2018, 11:25 AM
 
Location: Middle of the ocean
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Quote:
Originally Posted by Luvvarkansas View Post
One medicine diminished my pain significantly, and that was Lyrica. I take as little of it as possible to get some relief. When I have to work or stand on my feet a lot and that spot in my back starts killing me, a little Tramadol takes care of that.

I hope you find something that helps. My daughter has had that "restless wrists" thing too, and it's miserable for her.
Yes, Lyrica worked for me too, for years. When I started I could hardly walk, they thought it was the RA but treatment, along with injections of prednisone (yuck) did nothing. For me, it took awhile to start working and I had to titre up.
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Old 03-13-2018, 01:38 PM
 
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I am taking cymbalta for depression, and presodone (?) Gamapentin, cyclobropine for symptoms.

I am told that if the meds does not do the trick, last try would be an epidural. I hope I don't reach that level.

It really sucks sleeping in 2 -5 hour shifts. Feels like crap always.

Another reason I am doubting is because I am told I am being treated for pinched nerve, but diagnosed as Fibro. I guess doctor wants to keep me in positive spirits.
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Old 03-13-2018, 02:03 PM
 
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an isolated example ... a friend was "diagnosed" with FM and lupus and RA several times in her teens/early 20's. Had many symptoms similar to yours. No treatments at the time were efficacious, so she just learned to "live with it" as best as possible. She'd also been tested for allergies with negative results.

Years later, she had a event that was very close to anaphylactic shock. Fortunately, a strong Benadryl dose mitigated much of the symptoms and she recovered in a day.

In accordance with the routine suggested by my ND, I put her on a rotation diet. In short order, she discovered her celiac disease/gluten sensitivity was a problem if not a trigger cause for 95% of her "symptoms". Essentially, she had no FM or lupus despite repeated diagnoses to that effect for years with multiple doctors and tests. Many decades later, the RA has manifested itself in some of her joints, mostly where she had old horseback riding injuries or running injuries.

While her case may not be the same as yours, be aware that FM and lupus can be "misdiagnosed" and treated without beneficial result.

In her case, just following a gluten free diet solved so many ongoing issues that it was quite revealing as to the limitations of conventional medicine.

Personally, I'd be seeking the input from an ND who may have a very different approach to testing the causation of your difficulties and possible alternative solutions.

Best wishes for your journey.

PS: IMO, the "better" ND's are the ones who have affiliated their practice with a conventional MD practice. Gives them access to tests and treatments that are beyond what they may be limited to by license in their practice.

Last edited by sunsprit; 03-13-2018 at 02:11 PM..
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Old 03-13-2018, 02:19 PM
 
Location: Middle of the ocean
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Quote:
Originally Posted by kapikap View Post
I am taking cymbalta for depression, and presodone (?) Gamapentin, cyclobropine for symptoms.

I am told that if the meds does not do the trick, last try would be an epidural. I hope I don't reach that level.

It really sucks sleeping in 2 -5 hour shifts. Feels like crap always.

Another reason I am doubting is because I am told I am being treated for pinched nerve, but diagnosed as Fibro. I guess doctor wants to keep me in positive spirits.
I'm not second guessing your doctor, but a few commments:

Cymbalta is used for FM. It actually worked spectacularly for me, but the side effect of dry mouth/coughing was horrible. I could hardly hold a conversation. If you are using already, why not increase the dosage and see if that helps with FM instead of adding things?

I do not know what cyclobropine is. Cyclobenzaprine? The muscle relaxant?

My doctor has never given me the option of an epidural, that seems like it should be a last, last resort, after trying to manage via various meds (I had to go through a few to find what worked).

What do you mean you are being treated for a pinched nerve BUT diagnosed with FM? That doesn't make sense to me. You don't lie to patients to keep their mood up.
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Old 03-13-2018, 03:48 PM
 
Location: Alexandria, VA
10,285 posts, read 18,347,120 times
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That pinched nerve/FM diagnosis thing has me shaking my head as well - what does that mean?
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