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Old 12-01-2018, 08:37 AM
 
Location: Sweet Home Chicago!
4,776 posts, read 3,298,677 times
Reputation: 5242

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This sounds nuts, but I've had a debilitating headache and pain radiating from upper jaw to top of head on left side of my face for a couple weeks. The pain seemed to center around my left eye. At first I thought it was sinus related so regular doc prescribed antibiotics, but no relief after a week so I went to an eye doc and she said I had some arthritis in my left eye. Never heard of such a thing and Interweb searches turn up little, other than "it's possible". I'm taking aleve and prednisone drops in my left eye and it seems better. She asked if I've ever had any other arthritis symptoms and the answer is no, nada, zip, I'm strong as a bull with no other pain and I exercise regularly. I have a follow-up appointment next week. Just wondering if anyone has had such a thing? and if so, what was the prognosis?
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Old 12-01-2018, 09:30 AM
 
Location: Nantahala National Forest, NC
19,088 posts, read 3,922,562 times
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No but that's fascinating...going to research it. Hope you're better soon..
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Old 12-01-2018, 12:18 PM
Status: "watching out" (set 18 days ago)
 
Location: Eastern Tennessee
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arthritis or arteritis?? No joints in the eye.

Giant cell arteritis -- google that.
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Old 12-01-2018, 01:19 PM
 
1,466 posts, read 710,872 times
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You can read more about it here, if you'd like:

https://www.arthritis.org/living-wit...-arthritis.php
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Old 12-01-2018, 06:59 PM
 
Location: Georgia, USA
21,812 posts, read 26,472,375 times
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Quote:
Originally Posted by flamadiddle View Post
This sounds nuts, but I've had a debilitating headache and pain radiating from upper jaw to top of head on left side of my face for a couple weeks. The pain seemed to center around my left eye. At first I thought it was sinus related so regular doc prescribed antibiotics, but no relief after a week so I went to an eye doc and she said I had some arthritis in my left eye. Never heard of such a thing and Interweb searches turn up little, other than "it's possible". I'm taking aleve and prednisone drops in my left eye and it seems better. She asked if I've ever had any other arthritis symptoms and the answer is no, nada, zip, I'm strong as a bull with no other pain and I exercise regularly. I have a follow-up appointment next week. Just wondering if anyone has had such a thing? and if so, what was the prognosis?
Perhaps your doctor said "iritis," not arthritis.

As oldgardener's link points out, some types of arthritis can have associated eye problems, but by definition arthritis involves joints. That is why you were asked about arthritis.

https://www.mayoclinic.org/diseases-...s/syc-20354961
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Old 12-02-2018, 07:21 PM
 
4,680 posts, read 10,587,051 times
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Quote:
Originally Posted by suzy_q2010 View Post
Perhaps your doctor said "iritis," not arthritis.

As oldgardener's link points out, some types of arthritis can have associated eye problems, but by definition arthritis involves joints. That is why you were asked about arthritis.

https://www.mayoclinic.org/diseases-...s/syc-20354961
This is all exactly true....

It is not possible to have "arthritis" of the eye....rheumatologic conditions like RA and Sjogren's can result in eye symptoms but its not "arthritis of the eye"

You must have misheard what was being stated..

The most common "itis" of the eye which is commonly associated with joint arthritis is "uveitis" but iritis and arteritis are also possible...along with scleritis

grampaTom is exactly right about the giant cell arteritis which would certainly "sound" the most like arthritis but that is a potentially serious diagnosis hard to believe they would have let you leave without at least doing lab work such as a sedimentation rate.
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Old 12-03-2018, 06:30 PM
 
Location: Sweet Home Chicago!
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Thanks for all the info. Had a follow up today and she said it's scleritis, which is apparently more common with people who already have arthritis. I was in a bad way when I first went to see her so must have heard it wrong. Anyway, still some inflammation, but much better so she wants me to continue with prednisolone drops and aleve for another week She said the cause is an autoimmune disorder in 50% of cases and for the other 50%, it's usually unknown.
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Old 12-04-2018, 09:51 AM
 
Location: Georgia, USA
21,812 posts, read 26,472,375 times
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Glad you are better!
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Old 12-04-2018, 10:17 AM
 
Location: The Driftless Area, WI
1,827 posts, read 679,756 times
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Quote:
Originally Posted by flamadiddle View Post
This sounds nuts, but I've had a debilitating headache and pain radiating from upper jaw to top of head on left side of my face for a couple weeks. The pain seemed to center around my left eye. At first I thought it was sinus related so regular doc prescribed antibiotics, but no relief after a week so I went to an eye doc and she said I had some arthritis in my left eye. Never heard of such a thing and Interweb searches turn up little, other than "it's possible". I'm taking aleve and prednisone drops in my left eye and it seems better. She asked if I've ever had any other arthritis symptoms and the answer is no, nada, zip, I'm strong as a bull with no other pain and I exercise regularly. I have a follow-up appointment next week. Just wondering if anyone has had such a thing? and if so, what was the prognosis?

Scleritis is a clinical diagnosis based on history & physical exam, and usually pretty obvious to the doctor on first presentation (the white of the eye inflamed/blood shot & vision often affected). If there is pain, it's usually obviously the eye as source with headaches or jaw pain secondary. Scleritis can be the first thing showing in what will turn out to be a more generalized auto-immune disease like RA later on.


OTOH- your description doesn't seem to emphasize the eye and sounds more like trigeminal neuralgia to me. (Eye doesn't get bloodshot in TN) You seem to have improved coincidentally with use of medicated eye drops after weeks of suffering without treatment. Trigeminal neuralgia usually takes a few days to a couple weeks to resolve by itself. Was it the meds or just time for it to go away by itself?
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Old 12-04-2018, 08:56 PM
 
4,680 posts, read 10,587,051 times
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Quote:
Originally Posted by guidoLaMoto View Post
Scleritis is a clinical diagnosis based on history & physical exam, and usually pretty obvious to the doctor on first presentation (the white of the eye inflamed/blood shot & vision often affected). If there is pain, it's usually obviously the eye as source with headaches or jaw pain secondary. Scleritis can be the first thing showing in what will turn out to be a more generalized auto-immune disease like RA later on.


OTOH- your description doesn't seem to emphasize the eye and sounds more like trigeminal neuralgia to me. (Eye doesn't get bloodshot in TN) You seem to have improved coincidentally with use of medicated eye drops after weeks of suffering without treatment. Trigeminal neuralgia usually takes a few days to a couple weeks to resolve by itself. Was it the meds or just time for it to go away by itself?
The OP already stated her problem was in fact scleritis and the symptoms described in the OP are classic for scleritis with pain radiating from jaw to head exactly as described the doc also made the diagnosis after an eye exam....it also typically responds to steroid treatment just as described by the OP

The symptoms sound NOTHING like Trigeminal Neuralgia which typically presents as SHORT bursts of intense pain, not pain that lasts a couple of weeks as noted...there would have also been nothing on an eye exam to suggest scleritis that was actually Trigeminal Neuralgia
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