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Old Yesterday, 09:45 PM
 
688 posts, read 242,462 times
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Quote:
Originally Posted by Luckyd609 View Post
Even though it sounds drastic to have your thyroid removed I would take that over cancer. Have the aspiration and go from there.
That would be a reasonable person's method, I suppose. I am so afraid of having my thyroid removed, I will examine various avenues before that if that is the ultimate suggested course.
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Old Yesterday, 09:54 PM
 
688 posts, read 242,462 times
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Quote:
Originally Posted by guidoLaMoto View Post
You have two things going on.


If your TSH was "way off," then you either have over- or under- active thyroid function. (Way off hi or lo?) Those kinds of thyroid problems are really common, so it wouldn't be rare to have Grave's or Hashimoto's thyroid problem plus a mass or cyst. [Let's forget about a pituitary problem for the sake of this discussion.]


If the doc called it a cold nodule, we presume it is a solid nodule and not a cyst-- ultrasound is good at telling the difference. "Cold" means it's not functioning thyroid tissue, so it shouldn't affect the TSH one way or the other.


Thyroid ca can present as a cold nodule ("hot" ones are rarely ca.) Therefore, waiting to aspirate it for diagnosis purposes is unwise. The longer you wait if it is ca, then the more time for it to metastasize and become a worse problem. Thyroid ca is very treatable when caught early....The aspiration procedure isn't as bad as having a tooth pulled.


I'm guessing your TSH was high, suggesting under-active thyroid, but not so far off that the doc felt treatment was absolutely required just yet. Taking thyroid replacement at this point would suppress your own thyroid function and screw up the value of a thyroid scan, should they feel another one is important in the near future.


As far as living without a thyroid, I've been doing it for 21 yrs now- one cheap pill every AM. I played amateur hardball until age 60 (my eyes went before my legs) and did most of the work building my own house last year at age 68. --Ah looks bad, but Ah feels fahn!
OK, listen -- thanks for your reply. The TSH was 0.19. The portal for the test results is down, so I'll get more info tomorow. I'm glad to hear you've been feeling fahn for so many years taking the thyroid meds. That is encouraging.
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Old Yesterday, 09:57 PM
 
688 posts, read 242,462 times
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Quote:
Originally Posted by WoundedSpirit View Post
I had a huge nodule on my thyroid, and having the aspiration was really not bad. Due to the size of the nodule, although the aspiration was inconclusive, when they went in to remove it, cancer was found behind it so they took the whole thyroid gland. The unpleasant part was afterwards when I had to do the radio-iodine treatments, including an ablation and a full body scan. Preparation for the ablation meant going totally hypothyroid, and that was unpleasant. The ablation was a large dose of radio-iodine followed by 3 days of isolation due to being radioactive.

As long as you take your thyroid replacement meds if your thyroid is removed, you shouldn't have any problems. My daughter went through the same thing a few years later. We are both just fine.

A funny anecdote-- it was halloween a few days after my surgery. I still had steri-strips all around my neck, and it scared a few little children when I went out in public.
Thanks again. You all are giving me courage to go through with the aspiration.
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Old Yesterday, 10:04 PM
 
688 posts, read 242,462 times
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Quote:
Originally Posted by arwenmark View Post
I had been hypothyroid for years but no other problems. I had an ultrasound done for something else on my neck and they found a nodule. did a needle biopsy which was inconclusive. So I had the entire thyroid removed and it was Papillary cancer. I was suppose to have the follow up radioactive iodine but for certain reasons I did not have it. this was three years ago and I have been on Levothyroxine since then, no real problems to speak of, though now I am concerned as I have some lymph node pain in my neck and have a hard time getting doctor to do anything about it or check it out.
I think I did the right thing going for the full thyroid removal though.
It's hard to understand why the doctor isn't moving to diagnose this problem you are having better. I am glad I went to a very kind doctor who is an assistant professor of endocrinology at a university. She listened to me and is working with me, holding my hand throughout this. I explained how reluctant I am, she did not pressure me, but is still my "friend," meaning she is sympathetically doing what she can, given my limited desire to have my thyroid removed. I thank you all for your answers. It helps. Most likely I'll have the aspiration done soon, and pray for wisdom. I hope you feel better.
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Old Today, 01:27 AM
 
Location: America's Expensive Toilet
1,139 posts, read 726,404 times
Reputation: 2399
So I had an overactive gland, and they gave me 3 options for treatment: surgery, trying to kill off just the right amount of thyroid to make me 'normal,' or trying to stabilize me with meds. Surgery was my last resort, so I went a few years of being stabilized on meds before they found cancer after a biopsy. Had the surgery + radioactive iodine treatment. Been living without my gland for well over a decade and feel fine. I request name brand meds though because they tend to be more consistent dosage-wise. No other complications but recovery kind of sucked. Definitely have a biopsy before resorting to surgery imho. No need to remove your gland if it's otherwise functioning properly. My mother has a nodule but it's been checked out multiple times and she's fine, she doesn't have any other thyroid issues.
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Old Today, 07:26 AM
 
Location: The Driftless Area, WI
2,271 posts, read 803,750 times
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Quote:
Originally Posted by Cindi Waters View Post
OK, listen -- thanks for your reply. The TSH was 0.19. The portal for the test results is down, so I'll get more info tomorow. I'm glad to hear you've been feeling fahn for so many years taking the thyroid meds. That is encouraging.

Curiouser and curiouser.


Your doc sounds like she's compassionate & knows her stuff.


You have a low TSH, suggesting either over-active thyroid or under-active pituitary (not likely, but not impossible). Her reluctance to treat just yet suggests it's not so over-active that there's symptoms.


Your nodules are cold, ie- not producing significant amounts of T4, so we can't blame them for the low TSH. Only ~10% of cold nodules turn out to be cancer, and the fact that you have more than one also makes ca even a little less likely. The colder areas might just be normal thyroid tissue suppressed by the hotter surrounding functioning thyroid cells.


Without complete details & the ability to examine you and the scans, (not to mention what the heck do we all know?) we can't tell you what to do. But in regards your original question, by our collective experiences, we can tell you that needle bx is easy and life without a thyroid, should it come to that, is no problem.


Best wishes.
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