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Old 09-04-2019, 06:21 PM
 
9,693 posts, read 9,434,843 times
Reputation: 12290

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Really frightening.

Drug to Treat Rare Disease Costs Millions
Pricing Creates a Crisis

Dawn Patterson keeps a multimillion-dollar drug in the fridge, next to a bottle of root beer and a jar of salsa.
My jaw really did drop, Ms. Patterson said. I was like, what? This is crazy

https://www.dangolka.com/the-6-million-drug-claim/
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Old 09-04-2019, 06:54 PM
 
Location: SW Florida
9,950 posts, read 7,211,456 times
Reputation: 14790
Quote:
Originally Posted by Cida View Post
Really frightening.

Drug to Treat Rare Disease Costs Millions
Pricing Creates a Crisis

Dawn Patterson keeps a multimillion-dollar drug in the fridge, next to a bottle of root beer and a jar of salsa.
My jaw really did drop, Ms. Patterson said. I was like, what? This is crazy

https://www.dangolka.com/the-6-million-drug-claim/
Wouldn't be an option for me.
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Old 09-06-2019, 11:24 AM
 
Location: Fredericksburg, Va
5,214 posts, read 13,502,226 times
Reputation: 7405
Hubby needs Mercera shots about monthly...sometimes more. $27,000.00 per shot is what is charged to Medicare...and they pay the entire cost.
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Old 09-06-2019, 12:16 PM
 
Location: SW Florida
9,950 posts, read 7,211,456 times
Reputation: 14790
Quote:
Originally Posted by cb at sea View Post
Hubby needs Mercera shots about monthly...sometimes more. $27,000.00 per shot is what is charged to Medicare...and they pay the entire cost.
That must be the only thing Medicare pays the entire cost for, then.
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Old Yesterday, 01:27 PM
 
7,672 posts, read 2,323,952 times
Reputation: 9337
Cha Ching
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Old Yesterday, 04:05 PM
 
9,767 posts, read 6,460,312 times
Reputation: 18538
Quote:
Originally Posted by Travelassie View Post
That must be the only thing Medicare pays the entire cost for, then.



They pay MrsM's Prolia (7,800.00 every 6 months)
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Old Yesterday, 04:29 PM
 
Location: Eastern Tennessee
2,588 posts, read 1,896,863 times
Reputation: 6873
Reminds of the saying: "we had an unlimited budget but exceeded it"
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Old Yesterday, 05:52 PM
 
Location: SW Florida
9,950 posts, read 7,211,456 times
Reputation: 14790
Quote:
Originally Posted by mike1003 View Post
They pay MrsM's Prolia (7,800.00 every 6 months)
Well, that's nice to know they pay the full reimbursement for some things! I know the Prolia is pricey too.
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Old Yesterday, 06:14 PM
 
5,698 posts, read 8,236,343 times
Reputation: 5981
The companies are recouping the cost of researching and coming up with a treatment. You can’t expect them to do it for free. In a non-rare disease the cost can be spread out between more people. That’s not possible when it’s rare. As someone with a rare disease I’d love for a treatment to be available.
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Old Yesterday, 06:33 PM
 
Location: Early America
1,749 posts, read 850,783 times
Reputation: 3830


Drug companies once shunned investment in rare diseases because, with such a small market, there was little incentive. But that began to change after the passage of the Orphan Drug Act, a 1983 law that provides government subsidies for clinical trials as well as tax incentives and additional monopoly protection to companies that develop products for rare diseases.



Well, there you go. Drug companies are abusing this.
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