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Old 09-20-2008, 05:37 PM
Status: "Summer, please don't leave!" (set 7 days ago)
 
Location: Asheville, NC
11,467 posts, read 25,695,605 times
Reputation: 4201

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Does anyone else have this? It's a congenital defect of the heart where the pulmonic valve is narrowed and leaks. I get similar symptoms to MVP, such as flutters. Has anyone ever had to have surgery for it? What are your symptoms if any? I didn't get any symptoms until 21 and now I'm 37. I'm on a very large dose of Verapamil 240 mg twice a day. I get an echo done every couple years and they watch it. They say depending how it progresses, I may or may not have to have surgery.
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Old 09-20-2008, 08:48 PM
 
Location: Twin Cities, MN
638 posts, read 2,801,421 times
Reputation: 281
Are you seeing a really good cardiologist? If your symptoms are bad enough you will require some sort of intervention.

Have they talked to you about an interventional procedure called a valvuloplasty? This is also known as a balloon dilation and can be done in the cardiac cath lab. Talk to your docs about this; it is much less invasive than actual heart surgery.

Last edited by JenLee; 09-20-2008 at 09:10 PM..
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Old 09-21-2008, 09:41 AM
Status: "Summer, please don't leave!" (set 7 days ago)
 
Location: Asheville, NC
11,467 posts, read 25,695,605 times
Reputation: 4201
I have a great cardiologist! He doesn't think I need vulvaplasty at this point.
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Old 09-21-2008, 09:19 PM
 
Location: Twin Cities, MN
638 posts, read 2,801,421 times
Reputation: 281
So then your symptoms are *just* the short bursts of irregular heart rhythm, I would guess? That is good that that is your only symptoms, even if it doesn't feel good when it happens. You are on a very large dose of Verapamil (I'm guessing that you're on the sustained release form?). Have you discussed other medication choices with the cardiologist?

I tell patients that it's your body, go ahead and discuss medical treatments with the doctor, since doctors aren't gods.
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