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Old 11-17-2008, 08:15 PM
 
Location: "The Sunshine State"
4,356 posts, read 8,585,636 times
Reputation: 2847

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I had a very good endo doc in NJ who kept my weight at 117 lbs for 4 years when I went Hypo. I moved to a rural area of Fl. 3 years ago. There is no endo doc to be found anywhere. I even called one and hour away and he did give me an apt. but I saw a nurse practitioner when I went there. I told them I needed by T3 & T4 tested.They refused. When I called to get an appoinment to get my results they cut me off and said they would not see me anymore. Why would they not test that. someone told me I needed those results also. The question is that I have gone from 117 lbs to 142 lbs in the last three years. I have no choice but a Walk In Medical place and see a nurse practitioner there. I have been on either 100 mcg of Levoxyl or 88. They switched me twice in three years. Also all my hair is falling out. My fiance thinks a Walk-In place is good and do not need to see a top notch endo. Any input?
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Old 11-18-2008, 08:30 AM
 
102 posts, read 235,738 times
Reputation: 27
Do you have your medical records from your previous doctor? If not, get them. With your medical history I would find a good endo. Weight gain and hair loss and the switching of dosage with no stabilization of symptons does indicate a problelms that needs to be addressed. Yes, your T3 & T4 need to be checked, yearly at least. The walk in clinic may be able to do the tests and also refer you to an endo. Good luck!
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Old 11-18-2008, 04:12 PM
 
Location: East valley
3,073 posts, read 3,488,670 times
Reputation: 4263
You don't need any specialist to have thyroid tests done. A regular family doctor is good enough. Find a doctor and give them your medical history including the pills you are currently taking and tell them what symptoms you have.
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Old 11-18-2008, 04:19 PM
 
Location: Oxford, OH
1,463 posts, read 2,368,162 times
Reputation: 816
I have talked about going to an endo dr. for some time. My dr. and I don't agree on my thyroid level. I have taken meds for probably 30 years. I damaged my thyroid at the end of college from having mono and went around with a temp for a long time. I was always thin and now really struggle with my weight. My dr. worries about osteoporosis from being on this long term. He lowered it a few years ago and I have gained 30 pounds. I have knee problems so now that just makes that worse. What can the endo dr. do???? I'm going on 60 and need a knee replacement but can't lose the weight in order to have the surgery. I'm about 170 and need to lose so the rehab will be easier. I get so frustrated about my weight.
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Old 11-18-2008, 06:05 PM
 
Location: Kirkwood, DE and beautiful SXM!
10,079 posts, read 11,405,376 times
Reputation: 25022
Go to the website for the American Association of Endocrinologists. You can put in your zip code and thyroid disfunction, and a list will come up for specialists within a certain mileage range. I also have a severe thyroid problem and take a high dosage of synthroid. Since I do not have an endocrinologist in my area, my family doctor takes care of it. I think most family practitioners err on the side of caution and do not prescribe the higher dosages that a specialist might. I understand your frustration and hope that you can find someone soon. People who are not hypothyroid don't understand all of the side effects.
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Old 11-18-2008, 06:34 PM
 
Location: Pasadena, CA
139 posts, read 347,873 times
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A very good website with a lot of information is About.com. Search Mary Shoman. This post won't display the direct url.
This is a great site for researching the many questions you have and has helped me a great deal. I had been diagnosed with Hashimotos Disease in '98 and am Hypothyroid because of it. The hardest hurdle is adjusting to the need for a daily medication. Please go to the website. You can develop a good plan to manage your symptoms.
Good Luck, and I hope that you'll feel better.
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Old 11-22-2008, 08:31 AM
 
Location: Oxford, OH
1,463 posts, read 2,368,162 times
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Thanks for whoever started this thread. I looked up that website and they listed typical issues with your thyroid. Even with taking pills for years and years it was like looking at my life! Wow. So I have made an appointment with an endo dr. for Dec.11th and now I am excited that maybe they can help me with some things I don't feel like my regular dr. really understands. thank you!
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Old 11-23-2008, 09:12 PM
 
3,191 posts, read 5,683,781 times
Reputation: 2083
If you are any where near Jacksonville , DM me and I will give you the name of a really good primary care doctor...I think she will work with and listen TO you.
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Old 11-23-2008, 10:02 PM
 
Location: Florida
6,270 posts, read 12,499,131 times
Reputation: 4551
My endo put me on a low dose of Synthroid last summer to try to reduce a cyst I have on my thyroid gland. Even on such a low dose-man I lost weight! I can't lose anymore weight as I'm already too thin. I refused to continue taking it.
I did read that synthroid is being sold on the streets as a weight loss pill. Have you noticed it doing that?
I didn't notice any other side effects-what kind are you having?


Quote:
Originally Posted by SXMGirl View Post
Go to the website for the American Association of Endocrinologists. You can put in your zip code and thyroid disfunction, and a list will come up for specialists within a certain mileage range. I also have a severe thyroid problem and take a high dosage of synthroid. Since I do not have an endocrinologist in my area, my family doctor takes care of it. I think most family practitioners err on the side of caution and do not prescribe the higher dosages that a specialist might. I understand your frustration and hope that you can find someone soon. People who are not hypothyroid don't understand all of the side effects.
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Old 11-24-2008, 03:27 PM
 
Location: Kirkwood, DE and beautiful SXM!
10,079 posts, read 11,405,376 times
Reputation: 25022
Quote:
Originally Posted by DreamWeavin View Post
My endo put me on a low dose of Synthroid last summer to try to reduce a cyst I have on my thyroid gland. Even on such a low dose-man I lost weight! I can't lose anymore weight as I'm already too thin. I refused to continue taking it.
I did read that synthroid is being sold on the streets as a weight loss pill. Have you noticed it doing that?
I didn't notice any other side effects-what kind are you having?
I don't know anything about it being a weight loss pill and it shouldn't be sold on the street. I had an enlarged goiter and had radioactive treatment. No nodules. Side effects can include extremely dry skin, excessive thirst, frequent urination. I have had these symptoms most of my life, but was only diagnosed as hypothyroid in the past 6 years. Let your doctor know that you are losing weight. He/she will probably have you add healthy meals to your diet. I would rather have your problem than mine, but medical issues are never fun. Good luck with your treatment.
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