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Old 12-21-2009, 08:56 PM
 
25 posts, read 65,369 times
Reputation: 26

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Well, I've been diagnosed with SS today. I've been reading through the forums and have been encouraged with the conversations and a little discouraged with others. My daughter was diagnosed with Lupus SLE at age 17, now 15 years later her mother got diagnosed with Sjogrens Syndrome.

I have had lens implants last year, does anyone know how this will effect my eyes? I did write to my eye surgeon, so if I find out, I'll post an answer.

I also take 800 mg ibuprofen to stay out of pain for my back and now it appeared to help with my hands that have been swollen for a week and a half now. [I'm 62.]

One more thing, I did read about a young lady who has SS and doesn't think she'll ever get married, don't give up hope, my daughter married a wonderful man 8 years ago. Do not give up hope.
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Old 12-22-2009, 06:15 AM
 
346 posts, read 700,108 times
Reputation: 255
I know nothing, I mean really zero about your medical condition (never even heard of it)...but I just wanted to say good luck. I've had my own issues since 1992 and can only tell you to just keep your head up, avoid depression as hard as it can be sometimes. Just be well, ood luck and Happy Holidays.




Quote:
Originally Posted by ConnieJoe View Post
Well, I've been diagnosed with SS today. I've been reading through the forums and have been encouraged with the conversations and a little discouraged with others. My daughter was diagnosed with Lupus SLE at age 17, now 15 years later her mother got diagnosed with Sjogrens Syndrome.

I have had lens implants last year, does anyone know how this will effect my eyes? I did write to my eye surgeon, so if I find out, I'll post an answer.

I also take 800 mg ibuprofen to stay out of pain for my back and now it appeared to help with my hands that have been swollen for a week and a half now. [I'm 62.]

One more thing, I did read about a young lady who has SS and doesn't think she'll ever get married, don't give up hope, my daughter married a wonderful man 8 years ago. Do not give up hope.
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Old 12-22-2009, 10:11 AM
 
25 posts, read 65,369 times
Reputation: 26
Default Your not alone.

We've never heard of it either! I can see that it will be interesting once I see a rheumatologist. I pray that he doesn't put me on to many pills, I hate taking pills!

You have a wonderful Christmas and New Year too.
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Old 12-22-2009, 12:30 PM
 
Location: Sunshine N'Blue Skies
13,320 posts, read 19,701,123 times
Reputation: 11644
Sjogren's Syndrome Causes, Symptoms, Diagnosis and Treatment on MedicineNet.com
Here is an article on Sjogrens.....
I know it.....its not fun taking pills.......seems they start to add up after awhile..........
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Old 12-22-2009, 05:14 PM
 
Location: Mostly in my head
19,652 posts, read 53,695,203 times
Reputation: 18605
I know 2 people w/it and they both seem to manage just fine. If you were diabetic, would you refuse to take insulin? Meds are just the same, if you need them, you need them.
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Old 12-22-2009, 11:58 PM
 
Location: Florida
6,262 posts, read 16,994,964 times
Reputation: 4690
Quote:
Originally Posted by SouthernBelleInUtah View Post
I know 2 people w/it and they both seem to manage just fine. If you were diabetic, would you refuse to take insulin? Meds are just the same, if you need them, you need them.
SO true! No one could hate to swallow a pill more than I. I have the doctor check the size of them before prescribing cause I do not ,won't and refuse to swallow those horse pills. But I do take the meds I need to. And as much as I hate swallowing pills I've learned to ask for liquid form if available.
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Old 12-23-2009, 11:14 AM
 
Location: Mostly in my head
19,652 posts, read 53,695,203 times
Reputation: 18605
I just saw something at my pharmacy, a pill swallowing aid. I didn't look too closely b/c I don't have that problem but it looked to be some sort of gelatin granules you take w/the pill, to help it slide down better.
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Old 12-23-2009, 12:38 PM
 
1,009 posts, read 3,554,645 times
Reputation: 753
Quote:
Originally Posted by DreamWeavin View Post
No one could hate to swallow a pill more than I. I have the doctor check the size of them before prescribing cause I do not ,won't and refuse to swallow those horse pills.
You would need to calculate your "consumption ratio", but blending tablets with sugar-free pudding is one option.
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Old 12-23-2009, 12:41 PM
 
Location: Florida
6,262 posts, read 16,994,964 times
Reputation: 4690
Quote:
Originally Posted by SouthernBelleInUtah View Post
I just saw something at my pharmacy, a pill swallowing aid. I didn't look too closely b/c I don't have that problem but it looked to be some sort of gelatin granules you take w/the pill, to help it slide down better.
If they are too large and dont come in liquid form them I ask for the type that can be crushed. I have a pill crusher.
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Old 12-24-2009, 09:29 AM
 
25 posts, read 65,369 times
Reputation: 26
Thank you for your advise. I don't have a problem taking pills i.e. swallowing them. I take vitamins all the time. I should qualify that it's a life long mindset that I don't want to take drugs of any kind! I have such leg pain at the end of a day, I'm in pain all night and my feet get sudden shocks of pain. I also have swollen hands that are incredibly painful throughout each night. That's what brought me to the doctor in the first place. However, I have noticed that drinking water and sticking with a vegan diet will help greatly. Last night for dinner, I ate wrong things, (cheese, meat, spicey foods) and I suffered for it. It's now time to just stick with natural foods and just drink plenty of water. Yes I agree it will be something that I must manage, along with a good doctor.
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