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Old 12-25-2009, 11:57 AM
 
3 posts, read 15,353 times
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i would like to hear from others who have a lvad device and how they are adjusted. i have a lvad now about four months and would like to hear from others who have it and some suggestions on making life with it a little easier
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Old 12-25-2009, 01:47 PM
 
Location: Mostly in my head
19,634 posts, read 53,495,108 times
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I don't have one but I worked w/people at LDS Hospital in Salt Lake City for several years. They either had a new one or were in for a replacement after 4-5 yrs. Since the hospital is one of the leading hospitals that do LVADs, you could contact them for resources. They might not give you patients' names (won't actually), but they may have organizations of users. Good luck!
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Old 12-26-2009, 07:21 AM
 
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thanks for the info,i didn't know there were other hospitals besides the mayo that does lvads
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Old 12-26-2009, 03:21 PM
 
Location: Mostly in my head
19,634 posts, read 53,495,108 times
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Yes, LDS gets people from OK, WYO, MT, AZ, etc. They do quite a lot, maybe as much or more than Mayo; they did their first one in 1993..
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Old 12-26-2009, 04:56 PM
 
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thanks again for your reply.i guess i'm still nervous about the long term effects
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Old 12-26-2009, 06:49 PM
 
Location: Mostly in my head
19,634 posts, read 53,495,108 times
Reputation: 18543
For some people, it is now considered the permanent treatment. The new ones last a long time and people are living good lives. You need to talk to the counselor at your treating hospital. They have - or should have - people who deal with these issues.
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Old 08-07-2010, 08:48 AM
 
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I hope someone is still aroound here. I had a Heart ware Lvad placed August 31 of 2009. So far it has ben a goooooooood thing. I have started to walk about one month ago and have to take it easy or I get dissy.
Ivadheart how are you doing know that you have had your lvad for almost 1 year?
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Old 08-15-2010, 11:22 PM
 
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Just wondering how you are doing with your LVAD. I had mine implanted on February 2nd. Was home 6 weeks after and after a few more months of slowly regaining my strength, and getting my weight back to somewhat normal, feel quite good. Not able to go back to work yet should be able to do some if I can work from home. I look forward to see how your doing.
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Old 09-10-2010, 11:11 AM
 
Location: United Kingdom
1 posts, read 4,585 times
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Hi, I had a massive heart attack on October 22 2009, I had an LVAD put in November 12 2009 in the United Kingdom where I moved to from France 35 years ago; this is as a bridge until heart transplant. I left the hospital on December 18 2009. I was re-admited to hospital on January 7 with a chest infection. I was back in hospital for only 6 days, and I have been at home ever since. I have worked very hard at becoming fit again, and I enjoy a full life, including sex (I have a 2 year old son that keeps me busy by the way I am 53) I returned to work for 3 days per week on August 3 2010, I am a Vocational Trainer & IT Tutor.

While I was in the hospital, with a lot of will power and determination I was walking and using stairs 19 days after my operation. For those ofyou who have just been fitted with an LVAD it DOES get better.

I have set up an LVAD Forum yesterday for all the LVAD patients I met along the way. I am the only member so far as I have not yet given the address to my LVAD Co-ordinator or anyone else for that matter. Moderator cut: sorry, too new to post links, see TOS

Last edited by SouthernBelleInUtah; 09-10-2010 at 11:42 AM..
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Old 10-08-2010, 05:08 PM
 
1 posts, read 4,498 times
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Default Lvad

It has been over a year since i have received my lvad
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