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I have had a terrible experience with a second Dr ( and one social worker ) in this area that we live and I just do not feel safe here anymore .
It is the same issue and Ihave lived worldwide and this is has never happened to me .
Ihave only my husband and my youngest daughter who is almost 18 and that is it so no one to tell but it has really bothered me . Ihave been a forum member a long time so not looking for any advice , just need to say something about this .
My husband got a job in this tiny cluster of cities in Southeastern Oregon last summer and wanted daughter and I to come join him . We reluctantly did from Seattle and it has been a nitemare . First husband got laid off ( Aviation mechanic ) and was working as a CNA at a loacl nursing home until daughter graduates in May . I finished a 5 yr taper off of a dangerously high miss scripted amount of a very dangerous drug class in early Dec and it has had catastrophic results to my health .
It has essentially trashed my sympathetic nervous system and I cannot regulate my temp , BP, heart rate , swallow well and a bunch of other things . I stand up or sit up and my heart rate flies up on 168 ( so far ) and my BP will drop to 88/48 ( so far ) . It is that Postural Othostatic Tachicardia Syndrome ( POTS) caused by the drug I was on for 25 yrs and Iam just about bed/couch ridden .
Yesterday my husband and Istruggled to get my heart rate down under 85 resting and 88/50 BP up .
When I stand heart rate is 111-168. I cannot breathe like this .
This is dangerous and needs to have medical support . Plus we have never dealt with this before . HUsband was in the middle of nursing school while working as a CNAbut obviously has had to take leave .
The Dr I saw was the last straw for us . Iswear this is the second medical Dr that I have managed to swing a visit with . ( that is very hard also ) that has given me a religious lecture . I am not kidding . I cannot get treated here . This one on Thursday told me I needed to get right with Jesus , Did I have a spiritual home? He wanted me to go to his church . Did I know the Bible ? have Iread the Bible ? I was shocked and saddened . My husband was stunned . I am terribly ill , very sick and do not need this . Idid not go for spiritual counseling , the first Dr said much the same , I had a normal ER Dr diagnose me here and he assigned me a social worker to help coordinate advanced care/home health , therapy etc , the Social Worker asked us a loaded political question , I looked at him like I did not hear what he said and he never did what he wants supposed to do nor would he return our calls . I needed this care .
I want to leave here now . My daughter wants to graduate and will not go . I am too sick to leave on my own . I want to go home to my Dr and where Iknow people . The experience here as ill as I am has been terrifying . I at least want to make it to Portland several hundred miles away. I feel like I am in the Twilight Zone .
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