Quote:
Originally Posted by BarbaraMN
I'm sorry your family is going through this right now. I wanted to comment on therapy rates in Minneapolis. Yes, what you noted in your post are the going rates for therapy here but you certainly wouldn't pay those rates. My son receives twice-weekly speech therapy at no cost to us through the public school system. He started at 18 months old (he was deaf) and is now four. They are terrific.
A child with autism can receive excellent therapy through the schools at no cost. My nephew, while not autistic, is in an autism program that involves speech and occupational therapy. Even the busing to/from is included. As another poster mentioned, you may also qualify for disability assistance through the state that could even give you some time to take care of yourself.
You would still have out-of-pocket expenses like nutritional programs but your overall costs would be significantly reduced.
These programs are not unique to Minneapolis but I'm assuming you have already worked with your local school system.
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I'm not in MN, so I don't qualify for any programs in MN, and each EI program is run by the states, but funded by the federal government. The state I am in right now, does the bare minimum for children with autism. We are moving to Hampton/Newport News, VA, which has much better services than even MN does.
Just as an example, when we moved here, we were military stationed in Germany. My son received over 7.5 hours a week of therapy from three different therapists for his "global developmental delays". Once we moved here those were cut to one hour a week. Then, they were cut to no hours of therapy, because they had no therapists. I got him into the public school system at 3 years old. Tried to get the state to fund some kind of behaviorial therapy training for parents, and could not get them to do it. So our only option was for my husband to request reassignment, and move to a state with better more sophisticated services. As it stood where we are, every specialist was at least a day's drive away, there is only one-deep therapist in any pediatric field, and services are not given by priority-- they are given by age. We were bumped from three private programs because my child could get equivilant services through the School District. Equivilant services meant-- 4 hours of individual speech therapy going down to one hour a week and 1 hour of OT cut to less than an hour a week with no sensory therapy. Where we are moving to my son qualifies for a special autism school that slowly integrates him into a regular classroom-- includes known methods of behavior modification (ABA therapy), a dedicated speech TEAM, and OT which is over 2 hours a week and includes sensory integration-- all paid for. And no mental retardation waiver for SSI benefits here. Autism in most states is considered by SSI mental retardation, which means you qualify for MEDICAID and SSI if your child is mentally retarded regardless of income.