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Old 09-18-2019, 06:06 AM
 
11,448 posts, read 22,045,313 times
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If OP wants to try something non-medical, non-invasive just to see if it works - go see the practitioners at Feldenkrais Institute in Chelsea. You can get a one on one appointment for probably around $150, and if that's too much, just go to one of the basic classes for $25.

Article in NY Times: Trying the Feldenkrais Method for Chronic Pain
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Old 09-18-2019, 08:48 AM
 
1,956 posts, read 715,251 times
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Quote:
Originally Posted by Kefir King View Post
In reality "Pain Management" means addiction to opioids like oxycodone, hydrocodone, butalbital, codeine and their ugly sisters. This choice is a slippery slope.


Is it possible that "myofascial pain syndrome" is another fancier name for "fibromyalgia." Has the term "fibromyalgia" worn out it usefulness as a method of transferring patient wealth to the medical profession so fancier terminology was deemed necessary. This has some earmarks of quackery about it. Proceed with caution.


O/P Which drugs have you tried?


Very Important: Who diagnosed you with myofascial pain syndrome? Self diagnosis, internet diagnosis, a friend?





NEVER count on that. It can cost you a FORTUNE.

Kefir's posts illustrate why you need to see a trained medical specialist rather than listen to amateur opinions (starting with the bizarreness that MPS might be tic douloureux... they have absolutely nothing in common! MPS is not fibromyalgia either, although at least both involve muscle, unlike tic douloureux). A lot of pain management is procedural and involves local anesthetics (eg, trigger point injections with local anesthetics in MPS) rather than systemic drugs, plus a patient can decline opioids and deal strictly with non-opioid procedural and pharmaceutical options for pain management (of which there are many), but I won't go into something that is not my specialty and not my patient, on a public forum. Enough just to direct the person to the right place.


No, PCPs will generally NOT refer out of network (they don't refer patients by searching the web or looking at the Best Doctors issue of a local magazine, but have a list of in-network specialists to which they routinely refer patients for specialty/subspecialty problems) - nevertheless, still always double check that every physician you deal with is a part of your insurance network AND your insurance covers his/her services, because yes, otherwise you'll be paying 100% of the medical bill from your pocket.
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Old 09-18-2019, 10:11 AM
 
3 posts, read 583 times
Reputation: 10
Firstly thank anyone who responded.

I was hoping that there was someone who was dealing with this or maybe has or have a friend who is.

Billiions of dollars are lost in productivity.
Billions of dollars are wasted on useless testing and billed to insurance companies.
Billions of dollars for useless addictive habit forming drugs

All off our tax dollars.

This is the most concise and understandable video I've found on the web in regards without getting deeply. neurophysical science.

https://youtu.be/_RRo8fBABUk

This is the the true science of it.

I am not sure how to multi quote so I'll respond to everyone in one post

Nycrefugee

My primary care physician diagnosed me.
He referred me to his rheumatologist buddy. He knew nothing about it and was simply ready to pump me with useless muscle relaxers and NSAIDS.

DanArt

Yes. Going to big medical facilities or centers and seeing what the most updated information and treatments for MPs seems outgoing. It's like going to those dentistry schools for free braces where the student does work on you or those barber schools who give free haircuts. Like a crash test dummy. U haven't tried that yet.

Yeah self treatment is by far the most effective approach. Operation? There is no operation for myofascial pain. I've read endless forums of people getting operations for sciatica related pain and they still have it after an operation or surgery. Meanwhile they just had muscle knots deep in their but ( piriformis muscle to be exact). The cheapest route...

I have healthfirst insurance and I believe I get the worst of the worst treatment. I don't have any reference point to compare it to tho.

Kefir king

Neurologists have no idea about this diagnosis and if they do they really don't care to treat it with diligence or serious effort. Just pull out the white pad and pump the prescriptions. Maybe run some useless tests to bill the insurance company.

The transcutaneous electrical nerve stimulation is horrible for this. It irritated the nerve that is compressed my excessive muscle tension. Real backwards way of treating it.

Massage therapy works well but its SOOOO damn expensive. 150 dollars for an hour visit times 100 visits... do the math. I have to work for 8 to 11 hours for one 1-hour massage.

Elnrgby

My pcp MD did diagnos me and referred me to a specialist.

Every hospital in NYC has a multi disciplinary pain clinic ? Where at ?

I said in my original post on the second paragraph I googled weil Cornell for myofascial pain syndrome and went to the MEDICAL DOCTORS there. They were not trained, even tho their website advertises it, or professional about it.

Chiropractors are the biggest medical crooks I've ever encountered

I've lurked this board for a while... park Chester investments, housing lotteries and the real thing I find relative is the homeless people situation.

Go by Penn station mainly 33rd 34th and 35th st between Broadway and 8th Avenue. Look at all the homeless and dishelved people walking around with very visible limps, hobbles and faulty movement patterns. Unless they broke their leg or so they probably have a untreated musculoskeletal / knot issue. They're everywhere. Skeletalmuscular pain is very big.
Doctors have no idea how to really treat it in any cookie cuttermass produced fashion so they just throw pain killers at people, they become addicted and end up hurt, homeless and on heroin.

Heck, look at some of your office colleagues with Frankenstein like necks. They may be complain about tension headaches and neck pain that never desists which manifest from being at the keyboard for extended periods of time.They may just have knots in their neck muscles. A doctor will send them to the moon and back with ZERO relief or real .


Here's the science behind it for any internet neurologists.

Hey maybe even someone you know is effected by chronic musculopain and is hooked to some pain meds and this can give them some insight as to what's happening.

I have never taken any prescribed drugs and put of network physical therapy does cost a fortune
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Old 09-18-2019, 10:39 AM
 
1,956 posts, read 715,251 times
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Sorry, I don't have time to try to figure out what most of your post is about, but NYU Langone Center for the Treatment of Pain at 240 E 38th St, phone 212-201-1004 is a reputable pain clinic, and every other medical center in NYC has a good pain clinic too. Call your insurance, ask if NYU is in their network, if not then which pain clinics are in their network, ask if you need referral - if you do, ask your PCP for the specific referral, make an appointment at the appropriate pain clinic and call your insurance the second time to ascertain that they'll pay for it. Sorry, I need to go now.
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Old 09-18-2019, 06:18 PM
 
8,312 posts, read 8,821,116 times
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When doctors can't figure it out, they send you to a rheumotologist or an integrative medicine doctor.

I have some weird stuff too, not the same problem as yours. I've searched on medical databases like medline.net and some others to find studies on my particular problem. If I find something relevant, I contact the author for referrals or seek treatment directly from the author. I've gotten a few doctors this way. When I do visit the doctor, I find myself "suggesting" possible treatments or medications. Doctors just can't think of everything in the short amount of time during the office visit. Sometimes, my suggestion is shot down, sometimes the result is "sure, we can try that."

NYPL sometimes offers a 2 hour workshop on medical databases. That's how I found out about them. Nassau County has or used to have a medical library open to the public.

Is there some sort of support group for your particular medical issue? They may have some referrals.
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Old 09-20-2019, 09:21 AM
 
Location: New York City
8,507 posts, read 6,495,731 times
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have you tried sourcing a doctor through zocdoc?
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Old 09-21-2019, 07:01 AM
 
Location: Manhattan
21,810 posts, read 28,903,224 times
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O/P. No disrespect but why are you avoiding the question:


WHO DIAGNOSED this condition for you?


elnrgby,


My in network PCP has given me and my late husband a total of about a half dozen to a dozen specialists. NONE of whom were in our insurance network. I think that he may have a list of specialists but I think that is most likely a list of specialists who will give him kickbacks, not a list of specialists in my UHC Medicare Complete Mosaic Plan. I tell him every time that Doctor Bigbucks is NOT in my network but it doesn't get much of a response. This makes a lot of work for me, and even a sense of fear, and the net result is a growing disrespect for my PCP who may soon lose me as a patient (or a cash cow.)
But that can be a case of "Stick with the devil you know" or "Out of the frying pan, into the fire."


Please don't feign surprise.

Last edited by Kefir King; 09-21-2019 at 07:32 AM..
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Old 09-25-2019, 12:11 PM
 
3 posts, read 583 times
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Quote:
Originally Posted by elnrgby View Post
Sorry, I don't have time to try to figure out what most of your post is about, but NYU Langone Center for the Treatment of Pain at 240 E 38th St, phone 212-201-1004 is a reputable pain clinic, and every other medical center in NYC has a good pain clinic too. Call your insurance, ask if NYU is in their network, if not then which pain clinics are in their network, ask if you need referral - if you do, ask your PCP for the specific referral, make an appointment at the appropriate pain clinic and call your insurance the second time to ascertain that they'll pay for it. Sorry, I need to go now.

Update.

I went to Weill Cornell rheuntomogy department as that where I was referred to by another doctor.

Systemic autoimmune diseases, arthritis and other musculoskeletal disorders alter the lives of more than 40 million people in the U.S., and arthritis is the most common cause of disability. Rheumatology is the specialty of medicine that cares for people with the more than 100 types of arthritis along with the complex diseases, including lupus, systemic sclerosis (scleroderma), vasculitis and inflammatory muscle disease, that impact the lives of so many patients. The rheumatologists at HSS are acknowledged as the best in the world in diagnosing and caring for patients with these disorders, and they advance medical knowledge and discovery of new therapies through their research studies and education programs. HSS physician scientists and clinicians work together to identify new targets for therapy and apply their insights to achieve the best outcomes for patients. - Weill Cornell rheumtpgy website.

These people are drug dealers and surgery assvocstors to the highest degree. Waste of time. I may dispute the entire visit with my medical insurance. They literally did NOTHING.

Kefir king you refuse to to read my post on 9-18-2019 at 10:11 am eastern standard time I said my primary care physician diagnosed me. You have disrespected me by not reading my post and still asking me who diagnosed me when I said who did.

I'm going to waste more tax money and go to another hospital, probably NYU Langone and see how they try to bill my insurance without addressing any issue.
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Old Yesterday, 08:59 AM
 
Location: Manhattan
21,810 posts, read 28,903,224 times
Reputation: 9949
Quote:
Elnrgby

My pcp MD did diagnos me and referred me to a specialist.

I am sorry I missed that line, NCFO.
I do not think a PCP could be trusted to diagnose such an exotic condition.


So did the specialist confirm the diagnosis? What treatment was suggested?


Quote:
These people are drug dealers and surgery assvocstors to the highest degree. Waste of time. I may dispute the entire visit with my medical insurance. They literally did NOTHING.

I agree completely. The United States has the most expensive and yet the WORST medical system of the developed world.


Quote:
Massage therapy works well but its SOOOO damn expensive. 150 dollars for an hour visit times 100 visits... do the math. I have to work for 8 to 11 hours for one 1-hour massage.

A friend goes regularly for a massage and says he LOVES it. I asked how much and how long: $75 for 2 hours. I am going to have to get myself in on that. Too bad it is Woodside, Queens. (I have had back pain for 46 years.)


What I would start with is to try to find these muscle "knots" and with mechanical or finger pressure and heat, try to massage them into loosening. Can you find them by feel?

Last edited by Kefir King; Yesterday at 09:26 AM..
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Old Yesterday, 09:25 AM
 
11,448 posts, read 22,045,313 times
Reputation: 9081
Quote:
Originally Posted by Kefir King View Post

A friend goes regularly for a massage and says he LOVES it. I asked how much and how long: $75 for 2 hours. I am going to have to get myself in on that. Too bad it is Woodside, Queens. (I have had back pain for 46 years.)
Can you get me the name of the place? Thanks
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