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Old 08-19-2014, 07:08 PM
 
Location: Northern Virginia
5,104 posts, read 5,401,165 times
Reputation: 12617

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Quote:
Originally Posted by apexgds View Post
No, I don't watch every one, but if I'm getting 8 in an hour, imagine how many I have to scroll past each day. It's getting hard to find the stuff I'm actually interested in.
http://www.nytimes.com/2014/08/18/bu...sociation.html

"About 30,000 Americans have the disease, which attacks nerve cells and ultimately leads to total paralysis, though the mind remains sharp. Life expectancy is typically two to five years from the time of diagnosis."

And you're annoyed it's clogged your news feed?
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Old 08-19-2014, 07:37 PM
 
5,574 posts, read 5,838,891 times
Reputation: 16494
Quote:
Originally Posted by HokieFan View Post
http://www.nytimes.com/2014/08/18/bu...sociation.html

"About 30,000 Americans have the disease, which attacks nerve cells and ultimately leads to total paralysis, though the mind remains sharp. Life expectancy is typically two to five years from the time of diagnosis."

And you're annoyed it's clogged your news feed?
Really? THIS is one of the big things annoying me about this whole campaign. If you're not all RAH RAH ALS ICE BUCKET CHALLENGE!! YAY!! then you're an evil person with no heart.

You know nothing about me, what I've been through, what my loved ones have been through. You know nothing about the causes I have worked tirelessly for and raised tens of thousands of dollars for.

So take your damn guilt and shove it.
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Old 08-19-2014, 07:51 PM
 
Location: Canada
9,077 posts, read 8,351,665 times
Reputation: 19444
Quote:
Originally Posted by HokieFan View Post
http://www.nytimes.com/2014/08/18/bu...sociation.html

"About 30,000 Americans have the disease, which attacks nerve cells and ultimately leads to total paralysis, though the mind remains sharp. Life expectancy is typically two to five years from the time of diagnosis."

And you're annoyed it's clogged your news feed?
I've known about this disease for years and I fear getting it more than any other disease.

For anyone who cares to watch, this is what the ALS challenge means.

This Is How The #IceBucketChallenge Started [VIDEO]
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Old 08-19-2014, 09:01 PM
 
933 posts, read 1,207,954 times
Reputation: 1029
On a different note, I feel kind of horrible for saying this, but there are a lot of diseases as bad, if not worse than ALS, which means we are actually doing a disservice to a greater percentage of people by concentrating our donating effort on one disease.

This year:

About 46,000 people will be diagnosed with pancreatic cancer and around 40,000 will die from it.

About 159,000 people will die from lung cancer this year.

About 232,000 people will be diagnosed with breast cancer and about 40,000 people will die from it.

About 97,000 new cases of colon cancer and about 50,000 deaths.

I HAVE watched my grandfather die a slow death from pancreatic death (obviously not as long as ALS, but you get the point), and let me tell you should fear this just as much as ALS. Just looking up four cancers, they all have high incident rates and high deaths. I really do fear that this ice bucket challenge could be deflecting donations from organizations trying to fight these more common, at least in pancreatic cancer's case, close to as deadly, diseases.

What I'm trying to say is, if I, or anyone for that matter, don't want to participate in this matter don't call us "party poopers". I would venture a guess that donations for organizations fighting these more prevalent diseases are down this month.
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Old 08-20-2014, 01:18 AM
 
Location: Folsom
5,083 posts, read 7,735,645 times
Reputation: 3551
Quote:
Originally Posted by bus man View Post
What annoys me is the whole idea of ordering me to do something. Fact is, I don't want to dump ice water on my head, and I don't want to contribute $100 to ALS. (Nothing at all against ALS research, but I have already determined the amount and recipients of my charitable giving.) Thus far no one has nominated me, but if they do, I guess I'll just have to be a party pooper and do neither.
Totally agree with you. Most people who are doing it, are just "following the leader" or out for their one time fame for glory. It's so boring to watch these videos especially as they list all their friends.

I did come across a hilarious video on the subject that I think you all will enjoy.

http://www.buzzfeed.com/daves4/just-donate-the-money

Quote:
Originally Posted by Liberty2011 View Post

For anyone who cares to watch, this is what the ALS challenge means.

This Is How The #IceBucketChallenge Started [VIDEO]
Thanks for sharing. That's inspirational. The copycats not so much.

Last edited by caligirlz; 08-20-2014 at 01:34 AM..
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Old 08-20-2014, 01:47 AM
 
1,728 posts, read 1,333,017 times
Reputation: 1080
I didn't know about this ice bucket challenge thing until I saw this post. I don't care if people do this or not, but I do wonder how healthy it is pour ice water on your head.
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Old 08-20-2014, 05:48 AM
 
5,574 posts, read 5,838,891 times
Reputation: 16494
Quote:
Originally Posted by ashleynj View Post
I didn't know about this ice bucket challenge thing until I saw this post.
How is this possible? Have you not turned on a TV or gotten on the internet for the past 2 weeks?
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Old 08-20-2014, 08:10 AM
 
Location: Las Vegas, NV
2,761 posts, read 2,369,570 times
Reputation: 4809
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Old 08-20-2014, 08:15 AM
 
15,254 posts, read 16,839,861 times
Reputation: 25432
Quote:
Originally Posted by winkosmosis View Post
What is ALS?
Amyotrophic lateral sclerosis - Wikipedia, the free encyclopedia
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Old 08-20-2014, 08:29 AM
 
15,254 posts, read 16,839,861 times
Reputation: 25432
Quote:
Originally Posted by David910 View Post
On a different note, I feel kind of horrible for saying this, but there are a lot of diseases as bad, if not worse than ALS, which means we are actually doing a disservice to a greater percentage of people by concentrating our donating effort on one disease.

This year:

About 46,000 people will be diagnosed with pancreatic cancer and around 40,000 will die from it.

About 159,000 people will die from lung cancer this year.

About 232,000 people will be diagnosed with breast cancer and about 40,000 people will die from it.

About 97,000 new cases of colon cancer and about 50,000 deaths.

I HAVE watched my grandfather die a slow death from pancreatic death (obviously not as long as ALS, but you get the point), and let me tell you should fear this just as much as ALS. Just looking up four cancers, they all have high incident rates and high deaths. I really do fear that this ice bucket challenge could be deflecting donations from organizations trying to fight these more common, at least in pancreatic cancer's case, close to as deadly, diseases.

What I'm trying to say is, if I, or anyone for that matter, don't want to participate in this matter don't call us "party poopers". I would venture a guess that donations for organizations fighting these more prevalent diseases are down this month.
Of course there are lots of terrible diseases out there that affect and kill thousands of people every year. Raising money for ALS may be the "cause of the day," but I doubt if it will have any long-term effect on fundraising for other serious illnesses. Each of those you named has its own marketing and fundraising team.

The only people I would call "party poopers" are those who grumble because the ice bucket challenge is silly or a way for people to post videos of themselves. The silliness hurts no one and seems a low price to pay for the great benefit of funding research and helping families affected by the disease.

If I were going to be grumpy and cynical toward fundraising efforts, it would be based on the plethora of pink breast cancer stuff that you see for sale every October. It seems to me that most of the t-shirts, pins and hats you see people wearing are created to make a profit for the manufacturers. I'm curious about what percentage of the sale of a pink t-shirt with a ribbon on it goes to fight breast cancer. People buy that stuff and think they're "doing" something, but without money going to someone doing research or providing mammograms or something, they're not. I'm a 52-year-old woman and my mother had breast cancer and I've had friends with breast cancer. The threat of BC is very real to me, but I can still see that a lot of the hype around breast-cancer awareness month is just an opportunistic money grab by manufacturers. At least so far, you can't say that about the ice-bucket challenge.
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