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Old 09-28-2012, 03:36 PM
 
90 posts, read 137,765 times
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can anyone recommend a doctor who has expertise or experience with lyme disease?
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Old 09-28-2012, 05:45 PM
 
Location: Everywhere and Nowhere
14,131 posts, read 27,107,573 times
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Can't your primary care physician recommend someone?
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Old 09-28-2012, 07:01 PM
 
90 posts, read 137,765 times
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primary care office has been a big disappointment. cannot count on them for any assistance unfortunately.
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Old 09-28-2012, 07:15 PM
 
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Pardon for intruding but this is beginning to read like a different thread around here, same subject.

To summarize my input to THAT thread, "Chronic Lyme Disease" is not believed to exist by many, including many physicians:

Chronic Lyme Disease
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Old 09-28-2012, 07:26 PM
 
Location: Everywhere and Nowhere
14,131 posts, read 27,107,573 times
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Quote:
Originally Posted by sullyguy View Post
Pardon for intruding but this is beginning to read like a different thread around here, same subject.

To summarize my input to THAT thread, "Chronic Lyme Disease" is not believed to exist by many, including many physicians.
The parasite that lives in the tick that carries lyme can also carry a number of other diseases like Babiosa that cause many of the same symptoms as lyme. Sometimes it takes extensive testing and different treatment regimens to get at the real source of the problem. I have a family member going through this now and it's not a pleasant experience. Many people who believe they have other conditions like MS are often found later to have Lyme.
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Old 09-29-2012, 06:43 AM
 
518 posts, read 1,296,104 times
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Quote:
Originally Posted by sullyguy View Post
Pardon for intruding but this is beginning to read like a different thread around here, same subject.

To summarize my input to THAT thread, "Chronic Lyme Disease" is not believed to exist by many, including many physicians:

Chronic Lyme Disease
Lyme Disease is very real, but treatment length/type varies by doctor. Because the disease itself is very controversial and antibiotics are expensive, most insurance companies don't cover treatment beyond a few weeks of antibiotics. That said, find an infectious disease doctor. That would be your best option. Best of luck.
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Old 09-29-2012, 07:04 AM
 
7,968 posts, read 9,727,619 times
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Quote:
Originally Posted by irvine View Post
Lyme Disease is very real, but treatment length/type varies by doctor. Because the disease itself is very controversial and antibiotics are expensive, most insurance companies don't cover treatment beyond a few weeks of antibiotics. That said, find an infectious disease doctor. That would be your best option. Best of luck.
Lyme disease is NOT controversial, although Chronic Lyme disease is. The treatment for Lyme is a few weeks of antibiotics. Continuing antibiotics past that has never been proven to be successful in studies (it actually can be harmful), so that is why insurance companies do not cover it. Not because antibiotics are expensive.
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Old 09-29-2012, 07:25 AM
 
1,256 posts, read 3,538,460 times
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Quote:
Originally Posted by spencgr View Post
Lyme disease is NOT controversial, although Chronic Lyme disease is
Yes, that is what my possibly-misunderstood-by-some post(s) said.

The reason I made =any= post in THIS thread was because the OP said her/his doctor was useless, suggesting the doctor is one of those who believe the science behind Chronic Lyme Disease.
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Old 09-29-2012, 10:22 AM
 
90 posts, read 137,765 times
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Quote:
Originally Posted by irvine View Post
Lyme Disease is very real, but treatment length/type varies by doctor. Because the disease itself is very controversial and antibiotics are expensive, most insurance companies don't cover treatment beyond a few weeks of antibiotics. That said, find an infectious disease doctor. That would be your best option. Best of luck.

Thanks for all the replies, at this point not joining the debate on whether it's real or not, controversial or otherwise. But was posting for just this reason, even for an infectious disease doctor, I'm interested in a recommendation if someone has one, rather than starting with a blind search.
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Old 09-29-2012, 10:25 AM
 
90 posts, read 137,765 times
Reputation: 94
Quote:
Originally Posted by sullyguy View Post
Yes, that is what my possibly-misunderstood-by-some post(s) said.

The reason I made =any= post in THIS thread was because the OP said her/his doctor was useless, suggesting the doctor is one of those who believe the science behind Chronic Lyme Disease.
Just to clarify, I find the primary care useless because they have gone to this boutique type practice where in order to see an actual doctor you have to pay a monthly membership fee. So my wife has been with a nurse practitioner, who took longer than I believe she should have to order any type of testing, and took a long time to report results. So ultimately we'll be looking for a new primary care practice as well, but for now I'm hoping to get a good reference for someone who can address the current condition.
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