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Old 02-02-2016, 06:13 PM
 
13 posts, read 8,590 times
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Quote:
Originally Posted by Chemistry_Guy View Post
Growing up the doctors all said that I would be very short and small because I was in the 30th percentile for height and the 15th for weight. By 14 I was average height but still very low in weight. I hit a monster growth spurt from 17-18 or so and I reached my adult height of just under 6'4, but I was very skinny, around 150 lbs. During my early 20s I bulked up a bit to my current size, about 220 lbs. Being a late bloomer runs in my family, though, so it was somewhat expected.
Wow, what a change! Well, that is good to hear. I'm unsure of my own growth curve (if a late bloomer) but my husband is the tall one and was always 90+ percentile (height).
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Old 02-03-2016, 06:23 AM
 
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Originally Posted by SF_Girl View Post
Thanks for the input & suggestion. If he were only short I would have less concern, but he has difficulty gaining weight, near constant dark circles under eyes, paleness, frequent GI issues (diarrhea and/or mucus in stools), intermittently pale stools, and frequent bloating - so this gives us concern.

We've had him tested - pretty much all the non-invasive tests - and they came back great. He's been tested twice for celiac (bloodwork, not the biopsy) and those were neg. Our pediatrician thinks we're worried about nothing. Developmentally and athletically he is thriving - has exceeded most milestones, super high energy, happy, etc.

So it's the above, coupled w/ a 6'2" father (I'm on the shorter side so it's probably me!), that makes us wonder if something else is going on. With all the medical advise saying no problems, then I can just hope he gets some spurts later in life.

Sigh. It's amazing how when you have a child you feel that ever cell in your body works toward making sure that child's life is as good as it possible can be.
Quote:
Originally Posted by SF_Girl View Post
Thanks everyone, for the continued responses. Although we've had almost every test imaginable, one thing the Pediatric Gastroenterologist suggested is a food study for potential lactose issues. So we're going to try an elimination diet and see if that helps w/ the symptoms. I suppose the next step would be to do the same for glutens (even though he's had two negative celiac tests, I suppose he could have some type of gluten allergy or intolerance).
Specifically which tests did he have for Celiac and what were his numbers? Did he have the full panel?

A lot of his symptoms could be lactose related or simply just allergies.

I would also suggest getting him tested for Cystic Fibrosis as his symptoms are consistent with mild forms of that and even more so if he seems to have had a lot of upper respiratory stuff in the past, bronchitis, etc.
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Old 02-03-2016, 01:46 PM
 
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Originally Posted by Qwerty View Post
Specifically which tests did he have for Celiac and what were his numbers? Did he have the full panel?

A lot of his symptoms could be lactose related or simply just allergies.

I would also suggest getting him tested for Cystic Fibrosis as his symptoms are consistent with mild forms of that and even more so if he seems to have had a lot of upper respiratory stuff in the past, bronchitis, etc.
Qwerty - I'll have to check on the celiac tests. Are you versed in those? This last test I seem to recall had 2-3 associated tests that the GI doc felt cleared him (but I have remained uneasy only b/c I heard it's difficult to detect in young children, and are unsure if this is true).

Re: CF, I was tested while pregnant and am not a carrier so I think he's clear there - and no upper respiratory issues (just what feels like a persistently stuffy nose)
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Old 02-03-2016, 02:50 PM
 
Location: Foot of the Rockies
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^^I literally threw up my hands this morning when I read the new post. People here are just throwing out ideas. It's frustrating to me, as a pediatric nurse, to read this stuff. . . "get this test done, get that test done, eliminate this food, that food, some other food", etc.

This child is under the care of a pediatrician and a GI doc. Second, even third opinions are fine, but not from random CD posters, most of whom have no health care background and none of whom have ever even seen this kid!
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Old 02-03-2016, 05:14 PM
 
13 posts, read 8,590 times
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Originally Posted by Katarina Witt View Post
^^I literally threw up my hands this morning when I read the new post. People here are just throwing out ideas. It's frustrating to me, as a pediatric nurse, to read this stuff. . . "get this test done, get that test done, eliminate this food, that food, some other food", etc.

This child is under the care of a pediatrician and a GI doc. Second, even third opinions are fine, but not from random CD posters, most of whom have no health care background and none of whom have ever even seen this kid!
Katarina, not to worry - I would never make any medical decisions based on CD!!!
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Old 02-03-2016, 05:20 PM
 
Location: Foot of the Rockies
84,992 posts, read 98,847,978 times
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Originally Posted by SF_Girl View Post
Katarina, not to worry - I would never make any medical decisions based on CD!!!
Thank Goodness!
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Old 02-03-2016, 10:20 PM
 
Location: A Yankee in northeast TN
9,495 posts, read 13,353,236 times
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Quote:
Originally Posted by Katarina Witt View Post
Second, even third opinions are fine, but not from random CD posters, most of whom have no health care background and none of whom have ever even seen this kid!
I don't know that a medical background is an absolute necessity for people to suggest possible causes.
I asked the question I did because I have a child with a very rare/obscure genetic condition that has many of the same symptoms as OP's child.
I would think others are also making comments or asking questions because they know of people who suffer from similar symptoms. I don't think most people mean it to be medical advice, but rather a "Hey, have you considered this?" type of thing.
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Old 02-04-2016, 07:54 AM
 
13 posts, read 8,590 times
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Quote:
Originally Posted by DubbleT View Post
I don't know that a medical background is an absolute necessity for people to suggest possible causes.
I asked the question I did because I have a child with a very rare/obscure genetic condition that has many of the same symptoms as OP's child.
I would think others are also making comments or asking questions because they know of people who suffer from similar symptoms. I don't think most people mean it to be medical advice, but rather a "Hey, have you considered this?" type of thing.
Agree. The feedback is helpful to consider things we may not have thought of (and I don't leave this all to our pediatrician, or even the GI specialist b/c this is MY child and I feel in my gut there is an issue, even if collectively we have not been able to prove it). You never know when someone will offer some advice or experience that will be the missing piece of the puzzle. Having said that, I won't go out and make medical decisions on it - but will do more research, raise as questions to his doctor, and so on. So for me, very helpful.
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Old 02-04-2016, 08:13 AM
 
Location: Foot of the Rockies
84,992 posts, read 98,847,978 times
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Quote:
Originally Posted by DubbleT View Post
I don't know that a medical background is an absolute necessity for people to suggest possible causes.
I asked the question I did because I have a child with a very rare/obscure genetic condition that has many of the same symptoms as OP's child.
I would think others are also making comments or asking questions because they know of people who suffer from similar symptoms. I don't think most people mean it to be medical advice, but rather a "Hey, have you considered this?" type of thing.
I guess it's an "occupational hazard" with me, and I wasn't even thinking about your question, TBH.

There have been lots of recommendations to have the child tested for this, that and the other. One does need to take into consideration the child going through all this testing for random diseases/conditions. A lot of these tests are unpleasant (blood draws, stool sample collecting, X-rays, etc). When I was working, we tested lots of kids for celiac (fewer in the last few years, though) who had no symptoms that brought such testing to the doctor's mind. Of course parents' concerns should be taken seriously. There have been many times when a parent said "I have a feeling" and they were right. It's a fine line.
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Old 02-04-2016, 08:26 AM
 
Location: N of citrus, S of decent corn
34,588 posts, read 42,755,715 times
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My son was rather small through high school. He took Ritalin and one of the side effects is stunted growth/low appetite. He decided to stop at about sophomore year, because he played basketball and was tired of being small. Anyway, he is 6'4" now and I think he was still growing in college.
I think if both parents are of average height, there is a good chance that her son will be also. Sometimes boys don't stop growing until their early 20s.
If OPs son has some dietary issues, then he might definitely gain height quickly once they are resolved.

Last edited by gentlearts; 02-04-2016 at 08:42 AM..
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