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Old 05-16-2017, 09:10 AM
 
Location: Hillsborough
2,825 posts, read 6,925,589 times
Reputation: 2669

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My daughter was referred to PT at 12 months old after her well-child checkup, which was the first indication to me that there was any delay with her. She was able to roll and sit, but not crawl or stand at that time. The PT eval was done not only in my presence, but with my constant assistance, since most babies are not going to be very cooperative with a stranger. After the eval, we started regular PT sessions, and again, I was present and involved in all therapy sessions. I continued to be involved in my daughter's therapy sessions even when she was up to 5 years old. Therefore, I find it very odd that the OP describes

Quote:
The appointment went horribly, because the baby started crying as soon as she left the room. So she came back in and he continued to cry and reach for Mom. The PT nurses sent her home and told her next time to have someone else drop him off and leave him with them.
because this just strikes me as not how this works, especially not with an infant under a year old.

The PT referred us to our state's early intervention program, where my daughter was evaluated comprehensively for other delays. She was found to be developmentally delayed in multiple areas, and started receiving other services from early intervention besides the PT. She eventually received PT, OT, speech, and special education. Our pediatrician did some basic genetic studies at that time (12 months), including a karyotype (tests for chromosome abnormalities such as Down syndrome). After that, we went through a series of specialists, each of whom took about 6-12 months to get into: neurology, autism clinic, genetics, developmental peds, psycho-educational testing. Genetics was one of the longest waits to get into. Our second visit to genetics had a 13 month wait!

Finally, last year at age 7, she was given a genetic diagnosis of a mutation in a neuronal sodium channel, which explains her global delays because her neurons cannot appropriately communicate with each other. But that PT referral at 12 months was our first sign of any issue.

Last summer, my mom was complaining about a woman she knows who always carries her baby and her baby doesn't walk yet, and like I see here, my mom was blaming that mom for the baby not walking yet. The whole "coddling" argument. This really pissed me off, because I thought she should know better, given her own grandchild's history. I carried my daughter a lot too, because my daughter couldn't walk yet! And it was not my fault that she couldn't walk. We didn't know if for years, but my daughter has a genetic reason for her delay. Stop being so judgy.

I agree with HighFlyingBird: This OP needs to quit the daughter/daughter-in-law bashing.
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Old 05-16-2017, 09:25 AM
 
16,709 posts, read 19,410,227 times
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Originally Posted by Dragonmam View Post
If it were my child, I would want PT first, unless there were other symptoms that would lead you to consider an illness that could progress and no time to lose. If the child showed progress, then you would know restricted movement was the problem and that a few more months of PT and more crawl time will help them catch up.
Yes, next PT is scheduled for Thursday
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