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Old 05-31-2007, 05:46 AM
 
Location: NoVa
18,434 posts, read 28,545,142 times
Reputation: 19578

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OK, I don't normally post about my daughter. I will pm someon who knows what I am going thru. Right now I need to get some feelings out.

My daughter is 11 and she has Aspergers Syndrome. We have known this since she was about 4. If you dont know what that is, it is Hi Functioning Autism. Her last statement to me was, "Right now I feel like ripping my feet off!"

OK, I know that she is gonna have a bad day. The cat meowed at her over and over, about 7x. And she did, I saw her. DD told her to stop, and she didn't. Yesterday I had to take her to therapy. I haven't had to do that in over a year. I am thinking its her hormones and with that maybe she might need a small increase in the one med she is on.

Ok. just took a big breath in and out. I had been telling her she needs to get dressed for school, this is everyday... we all know we must get dressed. She tells me she knows she will have a bad day....because of the cat. And truthfully, she will. I will get a call at about 3:15.

She kept on and on this morning, meltdown of her sorts. My husband NEVER sees this side of her, because I think for some reason, somehow, she doesn't want him to. I don't know how she does it. I think in her mind she thinks she may get in trouble. He is always mumbling and grumbling about something. I am the stable constant. If you can imagine that.

Now she is out of her room, talking to the cat, loving her, dressed. She tells the cat, "see Lucy, I calmed down, and she is loving the cat. She is dressed nicely in the clothes I gave her to wear and she is beautiful."

Now it is me that is a mess. When she told me that she was just gonna rip her feet off I told her go ahead, just make sure you get dressed first, and handed her the clothes. She has her brush, her hair is long. She is doing that step with out my prompting.

She told the cat she has to brush her hair now. I am crying, I dont know if she sees me. I dont know if I am happy sad mad or glad at this point.

What I know is that the Lord would not have blessed me with my dd if he did not think I could handle her different problems. What doesn't break us makes us stronger, right?

Now she is acting as if it never even happend. Will she have a bad day at school today? Probably. Will I get the call, yes. Will I sit there at my desk, right after lunch with the teacher explaining to me what happened with tears running down my face for what seems like all of the world to see? Yes. I hope she will be fine, but I can't say that she will. The good thing is that she is with a group of people who know why she does what she does and why she learns the way she does, etc.

Well, I am so sorry for the long post, now its past time for me to get in the shower and get ready for work, but I still have to do it

Will I have a bad day? I hope not.


Hope your day is good.
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Old 05-31-2007, 07:30 AM
 
Location: Chattanooga TN
2,349 posts, read 9,499,661 times
Reputation: 1197
Ah Cinder, I do understand. I have had experience w/autism and YES it is hard (especially in the morning ). Bless your heart. ((((((virtual hug))))))
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Old 05-31-2007, 10:14 AM
 
3,079 posts, read 4,996,849 times
Reputation: 5309
You can vent any time you want or need to. Parents of special needs children never get a break. If you're not dealing with your child in the moment you're off somewhere worrying about how they're doing, waiting for the phone to ring. You're always worrying about their future, your future, expenses (not everything is covered under health insurance).

It's a challenge of monumental proportions that most people just don't get. So if you need to jump on-line and post a little frustration, go right ahead. I promise to provide at least a willing audience of one.
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Old 05-31-2007, 12:24 PM
 
2,775 posts, read 2,584,820 times
Reputation: 2967
what's the worst case scenario regarding venting, a few folks like me read what you wrote and then say a prayer for you (how bad can that be?) :-)
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Old 05-31-2007, 03:56 PM
 
Location: NoVa
18,434 posts, read 28,545,142 times
Reputation: 19578
Thanks guys. After I dropped her off this morning I called her teacher and let her know what happened and to look out for any possible.....meltdowns.


She thanked me for that. The whole day went by and I was miserable worrying about her. She did great!! I did a little coaching on the way to school, if she feels upset, in the way of mad or sad, either way, to calm down and let the teacher know she needed a break.

Teacher said her morning was just a little shaky but overall she had a great day, thank you all!

Robyn
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Old 05-31-2007, 07:23 PM
 
Location: In the sunshine on a ship with a plank
3,413 posts, read 7,838,760 times
Reputation: 2214
I've helped raise an autistic child through puberty- and it's no picnic. It sounds like you're doing all the right things. I hope you were pleasantly surprised by the turn of events today- and I hope you are patting yourself on the back for helping to diffuse what could have been a really bad day for your daughter.
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Old 05-31-2007, 07:39 PM
 
Location: Coachella Valley, California
15,538 posts, read 35,670,187 times
Reputation: 13133
Cinders, I can't relate to what you are going through now, but I have been to hell and back with my oldest son. I offer you many hugs and well wishes and I will say some prayers for you and your daughter.
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Old 05-31-2007, 08:19 PM
 
Location: Miami. Florida
942 posts, read 2,329,901 times
Reputation: 892
Cinders, I know exactly what your going through. As you know I have had my own up and downs with my sona nd thankfully you were there for me to give me good advice and lots of questions for his psychiatrist. Not only that but I have also made an appt. with a pychologist to vent all my frustrations, worries and impotence that comes form raising special needs children. My prayers are with you and your family and if you want to vent you can email me whenever you feel the need.

I received awesome advice from everyone on this forum and Im sure you will too!!
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Old 05-31-2007, 11:22 PM
 
Location: The mountians of Northern California.
1,354 posts, read 5,630,597 times
Reputation: 1270
Hang in there, I can relate. My DD has high functioning autism and we have had some very similiar mornings to yours! Its challenging to say the least!!
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Old 05-31-2007, 11:24 PM
 
Location: The mountians of Northern California.
1,354 posts, read 5,630,597 times
Reputation: 1270
Cinder, I forgot to add my DD's favorite thing to say when she is upset in general, is 'that makes me wrong.' I don't know where she got it, but she says it countless times each day.
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