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Old 06-01-2019, 02:08 PM
 
Location: Pennsylvania
16,346 posts, read 10,334,620 times
Reputation: 28473

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offering any advice, medical or otherwise.


You know you better than I do.


Just keep trying and looking and enjoying.

 
Old 06-01-2019, 03:28 PM
 
Location: Central NY
4,662 posts, read 3,241,188 times
Reputation: 11932
I can't say a lot to help you, BDL. I can only share my experience and if any of it strikes a note with you, good.

I am at least 10 years older than you (I'm 77). I think if you look the word "tired" up in a dictionary, you'll see my picture.

I started to write a long detailed tale about what happened, but who really wants to read that!!
I struggled for a long time till I was forced into retirement and finally needed surgery. Got through that, moved a couple more times (exhausting but I wasn't traveling across the country).

After a while, I began to notice how exhausted I was, no energy, no enthusiasm, no interest. I could not understand what was going on. Kept saying things like..... how did I get so lazy, when am I going to do what I should be doing, etc.

I kind of think you are experiencing some of that now. You don't have to agree. It's hard to admit, sometimes, that things are changing and we don't know why. We keep expecting 100% when we don't have that anymore.

You worked at a very hard job for a long time. Then made plans to move, made all the arrangements, found someone to help you transport dogs, moved into your house, without much of a break in between all that activity.

Sooner or later everyone runs out of steam. And it's one big disappointment. I've had my share of that. But we have to come to terms with it.

It would be "nice" if we could blame our health. Then we might be able to get help and get back to normal. But sometimes it's just life.
 
Old 06-01-2019, 04:02 PM
 
Location: Atlanta
319 posts, read 510,351 times
Reputation: 515
Quote:
Originally Posted by Umbria View Post
The fact that you didn't experience exhaustion when horseback riding says something (what????). You were happy & content and perhaps your adrenalin kicked in. Get yourself a horse - put it in the backyard and go riding everyday. OR ~ get one of those small horses and have it move right in.

Find that thing that really makes you happy - it may have nothing to do with medical issues.
I have had horses and they do make you happy but they canít live in a back yard. They need a pasture.
 
Old 06-01-2019, 04:22 PM
 
13,318 posts, read 25,554,182 times
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I have my five senior dogs and they are great housemates. I am not tired when not moving (and horseback riding isn't really movement) but when walking or carrying things or such, I have no stamina whatsoever. I'm fine sitting around thinking or writing or not moving- no mood problems (and boy would I know what that is) and no brain fog. Sleeping some 12 hours a night and if I do errands or something minor, need to rest afterward. It's like I have lead in my limbs but not my brain. Not like depression at all. Glad I'm seeing my doc on Monday to discuss what is next in testing, etc.
 
Old 06-01-2019, 04:41 PM
 
Location: Pennsylvania
16,346 posts, read 10,334,620 times
Reputation: 28473
Quote:
Originally Posted by PAhippo View Post
offering any advice, medical or otherwise.


You know you better than I do.


Just keep trying and looking and enjoying.

I meant NOT offering any med advice.
 
Old 06-01-2019, 09:54 PM
 
Location: Tennessee
23,572 posts, read 17,553,447 times
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Based on whatever initial findings you get, I'd be seeking out top flight specialists in those disciplines. Don't settle for less.
 
Old 06-02-2019, 08:52 AM
 
13,318 posts, read 25,554,182 times
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Quote:
Originally Posted by Serious Conversation View Post
Based on whatever initial findings you get, I'd be seeking out top flight specialists in those disciplines. Don't settle for less.
Thank you. I am certainly hoping for some usable findings. Then likely I'll have to go to Denver. Still glad I didn't stay around medical mecca (Boston area) just in case of medical needs. I am still very happy that I moved to this lovely community in southwest Colorado. It feels more like home than congested eastern Mass. ever did.
 
Old 06-02-2019, 08:44 PM
 
3,455 posts, read 2,326,093 times
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Here's a good link from Johns Hopkins about the various Lupus antibody tests: https://www.hopkinslupus.org/lupus-t...s-blood-tests/ The anti-Smith antibodies are the most specific for lupus, but if you don't have them, it does not rule out lupus, as only about 20% of people w/lupus have them.

Based on your description of your fatigue occurring when you are moving, I would want to rule out cardiac and pulmonary causes, especially if bringing your ferritin and serum iron levels into the normal range does not improve your fatigue.

Wishing you the best of luck in finding out a solution to your fatigue so you can enjoy your retirement more!
 
Old 06-03-2019, 07:08 AM
 
13,318 posts, read 25,554,182 times
Reputation: 20500
Quote:
Originally Posted by LoriNJ View Post
Here's a good link from Johns Hopkins about the various Lupus antibody tests: https://www.hopkinslupus.org/lupus-t...s-blood-tests/ The anti-Smith antibodies are the most specific for lupus, but if you don't have them, it does not rule out lupus, as only about 20% of people w/lupus have them.
...t a solution to your fatigue so you can enjoy your retirement more!
Thank you. I have seen the Hopkins site and am going to see my PCP today to see what's up next. Actually, I am enjoying retirement, but not active as I hoped to be. This goes way back and I always thought it was the night shifts. I absolutely like not working, though. Never blinked an eye at that aspect of retirement!
 
Old 06-03-2019, 02:44 PM
 
13,318 posts, read 25,554,182 times
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Well, my PCP wants to rerun some tests but continues to be confident that I have Chronic Fatigue Syndrome (which is not auto immune). She told me some more about CFS (not auto immune, so the good news is not lupus or such) and says that there should be more iron and B12 assist to prevent anemia, that I don't currently have it, and might well have had low iron stores for a long time (ah, those miserable hideous pre-menopause days).
So I went out for a good Italian lunch, some local ice cream and got my new bike adjusted. The little walk in and out of town with the bike was exhausting and the chain came off. I don't want to mess it up trying to fix it! I have hoped to ride the bike on the bike trail (no cars) across from my street for "mild exercise" as suggested.

I am very glad I don't seem to have MS or lupus or such. No fibromyalgia, which many people with CFS have. Guess I'll have to forget about the romance I was imagining with a local fine guy who is a very avid hiker. To hospital tomorrow to rerun tests. Thank you all for your good wishes.
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