U.S. CitiesCity-Data Forum Index
Go Back   City-Data Forum > General Forums > Retirement
 [Register]
Please register to participate in our discussions with 2 million other members - it's free and quick! Some forums can only be seen by registered members. After you create your account, you'll be able to customize options and access all our 15,000 new posts/day with fewer ads.
View detailed profile (Advanced) or search
site with Google Custom Search

Search Forums  (Advanced)
Reply Start New Thread
 
Old 07-07-2019, 08:12 PM
 
Location: Boca Raton, FL
5,165 posts, read 8,689,130 times
Reputation: 6166

Advertisements

Note: I posted this in the Health & Wellness section but no responses so I'll try here. I have been visiting doctor's offices lately (opthalmologists) and at 60, I'm considered young.

The doctor says he's heard of cases like mine but it's really rare.

I want to post on here and just get mentally prepared for the worst case scenario which would be a prosthetic eye but it could harm the good eye (20/50 with correction). The eye with the issue is my blind eye but the sensitivity to light is causing me discomfort.

History:
Birth - 26 weeks - 1.9 ounces - premature (obviously)
Too much oxygen left me with left eye blind, right eye 20/50 with correction

Wore contact lenses until my 30's
1991 - Cataracts form in both eyes
Finally found doctor to remove cataract in "good" eye (I was in my 30's) - went to over 30 doctors
(Went to Bascom Palmer in Miami many times)
Surgery done in hospital old fashioned way due to risk

**Doctor who did the surgery had the hands of an angel and died in a tragic accident 5 months after my surgery - otherwise, I'd be going to him all this time**

Doctor told me to never have anyone take cataract out of blind eye as it would cause good eye to have trauma. (This was late 1992)

Only change from 1993 to Present -
Blind eye's pressure would go up; I would go in and get it lasered; instant relief

Now:
Pressure is 45 to 52
Doctor said no opening now; eye is sealed due to huge cataract
1st doctor put me on drops (those did not work)
Just was put on another drop - prednisone acetate which is a steroid to bring down the inflammation

Doctor says he is trying different strategies because worst case I will lose the eye and have to have a prosthetic eye put in. He said the risk is low for the other eye to have trauma but cannot 100% guarantee anything.

Neither doctor I have gone to is real crazy about removing the cataract in the blind eye. Going the prosthetic eye route seems to be the direction. I would have to be referred to yet another doctor.
These are all opthalmologists.

(1) Would love to hear about anyone's stories and if you know someone who has had similar issues. Doctor said I am a super rare case.

(2) Do you know anyone or you yourself who has a prosthetic eye?

(3) If you were on these drops (prednisone acetate), did it help you? (I have read reviews)

(4) Any suggestions for bringing down eye pressure. The good eye is at 12 (normal).

Thanks for reading.
Reply With Quote Quick reply to this message

 
Old 07-07-2019, 08:56 PM
 
Location: Wisconsin
17,018 posts, read 17,335,191 times
Reputation: 41298
I knew a veteran who lost an eye in a combat situation. I know it is a long shot but maybe your local American Legion or veteran's hospital may have contacts with people with a prosthetic eye to answer your questions (from a patients point of view). Or, maybe there is some type of online support group.

Good luck.
Reply With Quote Quick reply to this message
 
Old 07-07-2019, 08:58 PM
 
Location: North State (California)
39,408 posts, read 2,974,514 times
Reputation: 12859
I have glaucoma, & take eye drops to keep the pressure down ( right now I am on simbrinza ) About two months ago, I had cataract surgery, & prednisone drops were part of the recovery routine. I had to quit using them, as my eye dr, felt that they were contributing to the increased pressure in the eye which was using them. So I am sorry I have no advice, but prednisone can increase pressure, or at least in my case it did.
Reply With Quote Quick reply to this message
 
Old 07-07-2019, 10:06 PM
 
Location: Boca Raton, FL
5,165 posts, read 8,689,130 times
Reputation: 6166
Smile Thanks for your reply

Evening Sun - I have read that about Prednisone and of course, that is a huge concern. The doctor wants to see me in 6 weeks so it's a long time. I read that also.

Germaine: I wish I could find some online support. Most doctors tell me I'm lucky to have any sight at all.

My most recent doctor does spend the time with me and he's trying. I just don't want to do the wrong thing.

I've also read that depending on what happened to the eye also makes a difference. It's always been a struggle and everyone in my family - parents, siblings, children have perfect sight so they cannot relate.
Reply With Quote Quick reply to this message
 
Old 07-07-2019, 10:07 PM
 
Location: Boca Raton, FL
5,165 posts, read 8,689,130 times
Reputation: 6166
Default Question

Quote:
Originally Posted by evening sun View Post
I have glaucoma, & take eye drops to keep the pressure down ( right now I am on simbrinza ) About two months ago, I had cataract surgery, & prednisone drops were part of the recovery routine. I had to quit using them, as my eye dr, felt that they were contributing to the increased pressure in the eye which was using them. So I am sorry I have no advice, but prednisone can increase pressure, or at least in my case it did.
So, even after the cataract was removed, you still have the pressure issue? I thought that was caused by the cataract.
Reply With Quote Quick reply to this message
 
Old 07-07-2019, 10:16 PM
 
Location: North State (California)
39,408 posts, read 2,974,514 times
Reputation: 12859
Quote:
Originally Posted by Bette View Post
So, even after the cataract was removed, you still have the pressure issue? I thought that was caused by the cataract.
Glaucoma is high pressure in the eye. Which i why I still have the pressure & take drops to reduce it. I like Germaines idea of a military dr, who may have dealt with such issues already. Good luck anyhow.
Reply With Quote Quick reply to this message
 
Old 07-08-2019, 09:27 AM
 
2,593 posts, read 5,286,635 times
Reputation: 5188
Not clear if any of the doctors were glaucoma specialists.

There are at least two surgical procedures for eye pressure reduction. These are fairly routine.
Reply With Quote Quick reply to this message
 
Old 07-08-2019, 01:09 PM
 
Location: Central NY
4,658 posts, read 3,239,300 times
Reputation: 11917
^^^^^^ You make a very good point. Glaucoma specialist. It is very important to have a glaucoma specialist in treating your glaucoma. There are not a lot of them around. But I do think the Miami, FL doctor you mentioned is a specialist. You seem to be going to a few doctors. Are all of them for your glaucoma?

As you know, there is no cure for it. Only treatment/surgery. And it can be tricky finding out which treatment is best for you. I have used Prednisolone Acetate for a very long time, only switching to another drop for a retina problem I'm having. I'll have a surgery in a few weeks to hopefully correct that issue.

When I had my glaucoma surgeries, the doctor also performed cataract surgery at the same time. I have never heard that cataract added to the glaucoma pressure, but there is a lot I don't know anyway.

I think it's really important to find a "true" glaucoma specialist and stick with him/her. Give your history to the specialist and let him/her develop the plan you need.

I live in Syracuse, NY and my doctor is pretty well known for treating glaucoma.

Good luck in you decisions. I know it is hard to know what to do, but a specialist who really knows his work is what you want. And the specialist you see must be a surgeon as well.

With regard to the prosthetic eye. My ex brother-in-law has had one since avery young child due to an accident that injured his eye. The other person I know had one put in while in her 50s. The eye the prosthetic replaced "died"..... that's all I know about that.
Reply With Quote Quick reply to this message
 
Old 07-08-2019, 02:50 PM
 
Location: Boca Raton, FL
5,165 posts, read 8,689,130 times
Reputation: 6166
Default All of the above

Every doctor I go to is an opthalmologist. The latest one treats glaucoma and cataracts.
These are all surgeons also.

I also have a retinal specialist.

If I eventually go with the prosthetic eye, I am assuming the pressure issue/glaucoma would go away.

I do not have not that condition in the "good" eye.

All I know is that he is coming up with different strategies to see if anything works.

I'm not a medication person but I am following instructions.

NYGal1542 - Did the ones you know with a prosthetic eye look normal? I mean, did the eye look normal? How did they do?
Did they have sight in both eyes and then nothing?
Reply With Quote Quick reply to this message
 
Old 07-08-2019, 03:14 PM
Status: "0-0-2 start!" (set 15 days ago)
 
Location: The beautiful Rogue Valley, Oregon
7,289 posts, read 15,342,559 times
Reputation: 9463
I'd look around for a specialty eye clinic, like Casey Eye Institute in Portland or one of the ones associated with a university for at least another opinion in to what is going on. Expensive, probably, depending on your insurance and what they will and won't cover, but it might be worth it.

I have/had a rare eye issue and ended up going to a place where they see hundred of my particular issue in a month rather than a couple a year.
__________________
Moderator posts are in RED.
Moderator for: Oregon (and subforums), Auto Racing.
When you signed up for an account, you agreed to abide by the site's TOS and rules. You really should look through them.
City-Data Terms of Service: http://www.city-data.com/terms.html
City-Data FAQ: http://www.city-data.com/forum/faq/
Reply With Quote Quick reply to this message
Please register to post and access all features of our very popular forum. It is free and quick. Over $68,000 in prizes has already been given out to active posters on our forum. Additional giveaways are planned.

Detailed information about all U.S. cities, counties, and zip codes on our site: City-data.com.


Reply

Quick Reply
Message:


Over $104,000 in prizes was already given out to active posters on our forum and additional giveaways are planned!

Go Back   City-Data Forum > General Forums > Retirement
Similar Threads
Follow City-Data.com founder on our Forum or

All times are GMT -6.

2005-2019, Advameg, Inc. · Please obey Forum Rules · Terms of Use and Privacy Policy · Bug Bounty

City-Data.com - Archive 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22, 23, 24, 25, 26, 27, 28, 29, 30, 31, 32, 33, 34, 35 - Top