U.S. CitiesCity-Data Forum Index
Go Back   City-Data Forum > General Forums > Parenting > Special Needs Children
Please register to participate in our discussions with 2 million other members - it's free and quick! Some forums can only be seen by registered members. After you create your account, you'll be able to customize options and access all our 15,000 new posts/day with fewer ads.
View detailed profile (Advanced) or search
site with Google Custom Search

Search Forums  (Advanced)
Reply Start New Thread
Old 12-10-2008, 07:19 AM
Location: In an alternate universe according to some, AKA Aspergers
22,072 posts, read 20,969,554 times
Reputation: 15042


Originally Posted by Aconite View Post

Or Pokemon....
Been there! Or the new pop art mountain dew bottles My son has a whole shelf of them, or nascar stuff, he has a whole shelf of cars all lined up by number and god forbid if we touch them...
Reply With Quote Quick reply to this message

Old 01-23-2017, 09:26 AM
Status: "God will make a way!" (set 20 days ago)
Location: Twin Cities
3,568 posts, read 7,708,576 times
Reputation: 5966

It's been just over 8 years since she was diagnosed with what is now termed, high functioning autism instead of aspbergers syndrome. The teen years are tough and being on the spectrum makes it even tougher. She will be 18 in a few months and has grown and changed from that girl I first posted about. She has had to work hard to interact with kids her own age. She's always felt more comfortable with adults. She's had an amazing therapist and doctor. While many people told us how awful we were for putting her on medications, as her parents we know what is best for her. It took a long time to find the right balance of meds but we finally did and it's made a world of difference. It is very obvious when she has forgotten to take her meds for a few days. She is a completely different person. She sees it and feels it too.

There are so many great social media groups that my wife and I have joined. The local groups just didn't work out for us as most were simply too expensive to join and many were just not relevant since this form of autism affects boys more than girls. There is however a local nonprofit offers drivers education specifically for kids with autism. While she does not want a driver's license it's nice to know that it's out there when she decides it's time.

In elementary and middle school she was involved in the special education program and it helped out quite a bit. Getting an IEP from the school was the most important thing we did for her. However, when it was time for high school we knew it was going to be really rough for her with the loud noises in the hallways, much larger school. It was beyond overwhelming for her so we decided to homeschool her. That was a life change for us but she has blossomed in ways she never would have had she been in traditional school. I left the marketing industry and took a job in food service so I could be there for her while my wife continued to work her full-time job. I'd say the sacrifice was well worth it however I don't look at it as a sacrifice. It's been a gift to spend so much time with her these past four years. She won't be heading off to college so we are updating our lower level so she can have a bedroom for a young adult and be connected to online schools.

Families with kids on the autism spectrum have such a wonderful life ahead of them. It's challenging, yes, but so is raising any child. No instructions, just learn as you go. Many people have felt bad for us that we have to deal with this "problem" in our lives. She is not defined by her autism. It's an aspect of her but life does not revolve around that diagnosis. She's an amazing young woman who loves the Lord and her faith is stronger than anyone I've ever seen. She's a gifted photographer and loves graphic design. She's an outstanding older sister to a teenage brother who is just entering high school. They're great friends, but still normal brother and sister issues. If your child is diagnosed with autism you are in for an amazing and wonderful life.
Reply With Quote Quick reply to this message
Old 02-22-2017, 08:20 PM
131 posts, read 209,651 times
Reputation: 97
Glad you came back to update! Thank you!
Reply With Quote Quick reply to this message
Old 02-22-2017, 08:41 PM
Location: E ND & NW MN
4,723 posts, read 8,965,076 times
Reputation: 3436
Wonderful post and great parents you are!
Reply With Quote Quick reply to this message
Old 03-01-2017, 09:53 AM
Location: Denver CO
18,445 posts, read 9,473,645 times
Reputation: 26879
Thank you for a wonderful update. I wish ongoing success and happiness to your daughter and your whole family.
Reply With Quote Quick reply to this message
Old 03-01-2017, 06:45 PM
2,155 posts, read 1,155,993 times
Reputation: 2755
Great update! I have a 14 yo (15 next week!) on the spectrum, and it can be so challenging. But I wouldn't change him for the world. I was really pissed at the adults who would say stuff like "I'm so sorry..." as if he was dead when he got diagnosed. Don't pity me! But I also recognize that I have a son who is very capable, and who can do well with less extensive supports. I realize that many, many parents have children who have much more difficulty and face challenges we don't have (e.g., nonverbal child, low cognitive functioning, excessive disruptive behaviors, etc.). They may not have the same feeling about the experience of having a child on the spectrum as I do.

Wishing your daughter many a wonderful future
Reply With Quote Quick reply to this message
Old 03-01-2017, 08:49 PM
Location: Middle America
35,550 posts, read 38,426,025 times
Reputation: 48001
Good update!
Reply With Quote Quick reply to this message
Old 03-17-2017, 08:58 AM
206 posts, read 224,594 times
Reputation: 244
A family member has Aspergers. God blessed him with a special gift. He is a genius. Developed encryption software that was purchased by the government (he's an engineer). Yes he's shy, doesn't do the idle chit chat, gossiping nonsense, never says a negative thing about anyone. His passion is nature...hiking, kayaking, Sierra Club activites.

Wishing your family all the best
Reply With Quote Quick reply to this message
Old 03-28-2017, 02:32 PM
3,550 posts, read 1,191,083 times
Reputation: 8288
Originally Posted by Aconite View Post

Or Pokemon....

Or Mario Brothers.

Or Legend of Zelda. LOL

My grown son has Aspergers. For the most part, you wouldn't be able to tell...NOW.

By the time high school rolled around, something changed, and he generally just 'fit in' better. Kids accepted him (he was even on a school dance royal court.)

But up to high school, times were tough. We weren't sure what we were dealing with. He wasn't diagnosed until he was 15.
Reply With Quote Quick reply to this message
Old 05-21-2017, 06:56 AM
Location: Between Heaven And Hell.
11,077 posts, read 7,072,571 times
Reputation: 14323
Originally Posted by Movie Lover View Post
Having it myself, the special needs label came and went. Its more on the Bipolar edge, aka, depression and mega violent behaviours.

Just be thankful you live in the US, here in the UK there is little to no help and stupid lil me has been waiting 2 years for the social worker to come visit my house.
Not easy to get a diagnosis either, or even get anyone to give you their time to try.

Could be what led to the depression, and violent behaviour.
Reply With Quote Quick reply to this message
Please register to post and access all features of our very popular forum. It is free and quick. Over $68,000 in prizes has already been given out to active posters on our forum. Additional giveaways are planned.

Detailed information about all U.S. cities, counties, and zip codes on our site: City-data.com.

Please update this thread with any new information or opinions. This open thread is still read by thousands of people, so we encourage all additional points of view.

Quick Reply

Over $104,000 in prizes was already given out to active posters on our forum and additional giveaways are planned!

Go Back   City-Data Forum > General Forums > Parenting > Special Needs Children
Similar Threads
Follow City-Data.com founder on our Forum or

All times are GMT -6.

2005-2017, Advameg, Inc.

City-Data.com - Archive 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22, 23, 24, 25, 26, 27, 28, 29, 30, 31, 32, 33, 34, 35 - Top