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Old 02-01-2010, 11:01 AM
 
33 posts, read 85,449 times
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Hi guys,
My 19 month old daughter is severly developmentally delayed. We have done loads of testing, but have no answers and therefore she has the "diagnosis" of Global Developmental Delay. We currently live in MA where she gets Early Intervention services (5 days per week) through the state. Services here in MA have been great so far, but we really want to move. We have been considering Oregon for quite some time, but now need to make sure we'll be in a place where our daughter will have great resources. In MA, you do Early Intervention through the state until the age of 3 then everything transitions to the school system. Anyone know if its the same in OR? We would probably be looking to move in about a year - when this transition happens. Does anybody have any resources on how I might find these things out? I read on this board about the Tigard area being good for special needs - beyond that I have no idea where to start. Anyone else out there with an undiagnosed child? Where would be good places for us to live? Thanks in advance!
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Old 03-02-2010, 04:12 AM
 
1 posts, read 2,456 times
Reputation: 12
Default Global Developmental Delay early intervention

My twins girls were born 3 months premature. They sent me home from Sacred Heart Hospital with them after 2 months in the NICU, with no promises or guarantees. The county sent out a home health nurse paid through social security medicare/state paid medicaid. With the University of Oregon here, we had access to PACE early education/intervention, the CDRC Child development and Resource Center, and respite care. Eventually, those services gave way to Head Start (we are low income) and then to public school with IEP's. I have to tell you that our 12 year battle to find the appropriate supports and placement based on the non-specific Global Developmental Delay has been agonizing. We live in the Eugene/Springfield area, and currently due to the addition of behavioral disorders and expresive language delay which can go hand in hand with a global delay, a CNS dysfunction/disorder is suspected as an underlying cause and the emotional and psychological issues are believed to partly stem from ostricization and being single out by have to be removed for special services so often. Also, behavioral issues have arisen due to there communication disorder which has made psychosocial intergration beyond difficult. At this point, my girls are no longer attending any public school here and the charter and private schools are illequiped to handle them. The county and the state are broke and services have been severly limited. Rules here about how money is alloted to help special needs children has made it unbearably difficult for us to move forward. At this time, WE are considering moving. Hopefully somewhere the girls can be integrated into the classroom and receive PCA (personal care assistance) as well as for our family to have more of an ability to shape the girls learning environment. I have been told in no uncertain terms that, here, my girls fall in a "gray" area and although we have been working on trying to get differential diagnosis in order to access OT and life-skills training, we have actually been stymed by the school system itself and its refusal to reallocate funding. I wish you luck and if you do figure out where the right place is for children such as ours to access services or I do, lets please make sure and share the informtion.
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Old 04-01-2012, 03:48 PM
 
1 posts, read 1,276 times
Reputation: 10
Dear Lauralew813 -

I realize that your original post is 2 years old. I hope that you were able to stay in MA and did not move to Portland. While there are many good medical practitioners here, as well as committed and skilled therapists, there is also a public education system and child welfare system that is not particularly supportive of families with children with special needs and disabilities. Likewise, mental health services in Oregon seem to lag decades behind work being done elsewhere in the country. If you did move to Oregon, please feel free to contact me regarding any issues you may be experiencing. We may be able to help you better help your child.
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