U.S. CitiesCity-Data Forum Index
Go Back   City-Data Forum > General Forums > Parenting > Special Needs Children
 [Register]
Please register to participate in our discussions with 2 million other members - it's free and quick! Some forums can only be seen by registered members. After you create your account, you'll be able to customize options and access all our 15,000 new posts/day with fewer ads.
View detailed profile (Advanced) or search
site with Google Custom Search

Search Forums  (Advanced)
Reply Start New Thread
 
Old 04-12-2010, 04:41 PM
 
184 posts, read 204,996 times
Reputation: 90

Advertisements

Having Aspergers Syndrome myself, I can honestly say that people mispronouncing the name is the first clue to what will come next, for what comes next is the deliberate misunderstandings, and this can occur after so much knowledge. I always get the feeling that most people are envious of me, because I have a lot and being disabled and envied, makes them hate me all the more.
Reply With Quote Quick reply to this message

 
Old 04-13-2010, 11:15 AM
 
Location: Baywood Park
1,634 posts, read 6,033,272 times
Reputation: 694
I apologize for my misspelling. I realized I did that right after I posted. As far as deliberate misunderstandings? I'm not sure what you mean. I've googled five different AS sites an posted this on C-D. If Asperger's was so easy to understand or spot, maybe there wouldn't be so many misdiagnoses. Because from what I'm reading that's common. Trust me, if my child has AS, I'm going to sleep, eat, drink and s&!t AS. Believe that.
Reply With Quote Quick reply to this message
 
Old 04-18-2010, 08:04 PM
 
4,248 posts, read 8,122,848 times
Reputation: 5080
Love how Gypsy said, "it's not a life sentence". I think, as long as parents have questions, if their intuition says, "there is something off", these questions are going to be eating at you until you have a formal evaluation. That's how I felt for 5 years, looking at my son, feeling that "something was off", and hoping that nothing was off. Yep, he was all by himself in a pre-school setting. He concentrated on one activity very deeply. He got wild in crowds. He plays well with his sister. She has a way of making him do what she wants, through carrot-and-stick techniques, intuitively, where he would flatly refuse to us the parents.

Evaluated him a month ago, with a psychiatrist and a pediatrician. The psychiatrist was with him in the room, asking questions and playing, and the pediatrician and I were in the other room behind a one-way mirror. Some questions the ped asked me were dead-on, yet I didn't think of them before. Like, "I noticed he's clumsy". I knew that but I didn't know it was a marker. Then, "Does he role-play? Does he take a doll and talks for him, "Oh, I am going home, I am going to cook now."" Nope, he has never role played, if he gets a toy with vehicles and people, he tosses the people figures aside, plays only with cars. He does *impersonate* a doctor but that's about sticking a needle, not really getting into the role.

So in the end they told us that our son can be classified under ASD. They avoided saying "Asperger" as per the latest talk in the medical community of doing away with that name.

Our son is still the loving, the sweetest, the precious one. It doesn't matter what he has. It just put to rest my 5 years full of questions. Now I can read books on the subject. I just wish we did this eval earlier as we could have had intensive behavioral therapy that one needs a year for (6 mo intensive and 6 mo follow up). But him getting close to 5.5, he's going to school this Sept, and a child has to stay home for the intensive behavioral. But we'll do our best.

It's not a life sentence.
Reply With Quote Quick reply to this message
 
Old 04-20-2010, 10:49 AM
 
Location: lumberton, texas
652 posts, read 2,455,168 times
Reputation: 254
Quote:
Originally Posted by mtneer View Post
Sounds more like ADD.
after a year of tons of research I came to the conclusion (on my own) that my 8 yr old has PDD (asd). after 6 months of waiting for his nerodevelopmental psych appt he has been diagnosed with severe ADHD along with many other things. At first it did not make any sense to me, and still doesnt completely. She says because his ADHD is so bad that it has caused the other things. I have done a little more reading ("the mislabled child) and research (online) and I think it could be a possibility. A few people in his school enviroment though have finally been a little more honest and told me that they thought the same thing I did.
I figure I will go the ADHD route though and see if anything changes. the Psychologist seems to think that once he gets on meds it will be like a "wonderdrug" and everything will fall into place.

My 2 cents to the OP: If you think something is "off" do everything you can to figure out what it is and the best way to help. like you said you need to eat, sleep and drink it! It is not a life sentence whatever you find out but our jobs as parents are to help our kids be the best possible people they can be. I am only saying this because of my past experience and guilt. I listened to everyone from family, doctors, teachers, husband, etc.... tell me that nothing was wrong and that he was just a little slow and eccentric. He is now 8 in the 2nd grade. been in and out of speech therapy both private and through the school since he was 3. still walks on his toes, the only friends he has are kindergarteners and adults, private after school tutoring 2x wk for the last year, school tutoring last 2 yrs and reading specialist durring school since kindergarten. His Iq scores hit genius or near genius levels in certain areas and "mentally deficient" in others. still cannot set the table (after 1 yr)
still cannot tie his shoes properly, still puts clothes on backwards, etc......
I could go on and on
Reply With Quote Quick reply to this message
 
Old 05-08-2010, 08:09 AM
 
Location: Eastern time zone
4,469 posts, read 6,323,788 times
Reputation: 3488
Quote:
Originally Posted by CA central coast View Post
This first came up when he was two, with his daycare. They mentioned Asperger's. They reason was he would sit at puzzles for an hour or more and be content. He liked playing by himself and wouldn't acknowledge other children and she said he was clumbsy. Concerned, we took him to his pediatrician. He told us that our child was too responsive. His experience with Asperger's lent him to believe he didn't have it.

Now two yrs. later. My wife is watching an episode of Parenthood, the new show on NBC. An actor on that show is portraying a child with Asperger's. She freaks out because on the show he ignores his classmates, just like our son has always done, in daycare and preschool. The kid on the show also sits for a long time just playing lego's, our does the same. She doesn't think most kids are that patient. He also tells stories that don't make sense. His imagination runs wild, she's afraid he's not in reality with us. I don't know, I just think he's kind of eccentric. My wife is scared.
Day care providers shouldn't be suggesting diagnoses. I don't know about your state, but here you need six hours of coursework in something education-related to be employed in child care. Essentially, they have as much validity as the lady at the play park. FTR, even schoolteachers aren't allowed to offer diagnoses.

In general (since you've already made the move), I'll second whomever said to ask a professional (start with your pede, and if s/he thinks your concern has some validity, go to a pediatric developmental specialist or pediatric neurologist). They may well tell you there's no reason to be concerned-- not every child is the social butterfly-- but then you'll have the peace of mind of knowing.

The other thing to bear in mind is that, if there are any other indicators that your child might be smarter than the average bear, gifted children are often a bit "quirky" around the edges. The pediatrician would be able to discuss that possibility, or refer you to the appropriate person for testing.
Reply With Quote Quick reply to this message
Please register to post and access all features of our very popular forum. It is free and quick. Over $68,000 in prizes has already been given out to active posters on our forum. Additional giveaways are planned.

Detailed information about all U.S. cities, counties, and zip codes on our site: City-data.com.


Reply
Please update this thread with any new information or opinions. This open thread is still read by thousands of people, so we encourage all additional points of view.

Quick Reply
Message:

Over $104,000 in prizes was already given out to active posters on our forum and additional giveaways are planned!

Go Back   City-Data Forum > General Forums > Parenting > Special Needs Children
Follow City-Data.com founder on our Forum or

All times are GMT -6. The time now is 04:48 PM.

2005-2019, Advameg, Inc. · Please obey Forum Rules · Terms of Use and Privacy Policy · Bug Bounty

City-Data.com - Archive 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22, 23, 24, 25, 26, 27, 28, 29, 30, 31, 32, 33, 34, 35 - Top