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Old 05-28-2010, 07:58 PM
 
Location: TX
45 posts, read 114,594 times
Reputation: 35

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Having a child on the spectrum is isolating and challenging and depleting. I feel for you. What works for some children doesn't always work for others. It's a frustrating and exhausting game of trial and error. For my son, I found that scent has a calming effect on him. I having a bottle of orange essential oils and it sometimes works in calming him down. Another poster mentioned your daughter might be over stimulated and perhaps you could try headphones or weighted vests?? I hope this helps. ((hugs))
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Old 05-30-2010, 03:50 PM
 
16,012 posts, read 17,799,724 times
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Quote:
Originally Posted by nomore07 View Post
Children with autism have metabolic defects which cause them to be more easily affected by certain chemicals. There are common food intolerances in autism as well. If you read that book carefully, it mentions special diets to help this. It's chemistry, not psychology. ABA is just a band-aid.

ANY food that is processed... boxed, canned, bottled, bagged, restaurant prepped, is going to have chemicals added to them. The behavior you're seeing is a side effect of what those chemicals are doing to your daughter's body. You're not as easily affected as a grown adult.

Some examples are gluten (grains, processed wheat, flour), casein (dairy), salicylates, food dyes (Red #40), artificial sweeteners (aspartame), and MSG labeled as "autolyzed yeast" or some other phony name.

Studies Show that Diet May Trigger Adverse Behavior in Children

Diet and Its Possible Role in Developmental Disorders

Diet & Behavior in Children

Read some other parents' stories here.

http://www.gfcfdiet.com/successstories.htm

For the skeptic trolls, take it elsewhere. The mother and daughter need useful help, not babbling debate.

Read. Learn. Ask another parent who has tried it. Find a naturopathic doctor. Regular MDs are taught very little about about nutrition and toxicology. Very few specialists deal with neurodevelopmental, neuroimmune, or metabolic disorders of this type. She can shell out thousands for "counseling" and "therapy", or simply put her on a diet of veggies for a week and see what happens.
ABA is not a bandaid. Imo, there are several subtypes of autism. A few may respond to dietary intervention, but not all do. The most recent research has not shown success for the gfcf diet and it is NOT an easy diet to adhere to. If someone does want to try it, I don't think it will hurt, but it may or may not help.

There are many interventions out there and some are money sucks. Most people do not have the amount of money needed for everything. Each family needs to find what works best for their own child.

Note: My grandson was pretty severe and diagnosed at 18 months. He has had no biomedical intervention, but has been in ABA and has improved tremendously. He will be mainstreamed into Kindergarten next year (one year behind his age and with support, but still no one would have predicted that he would be in a mainstream class back when he was dxed).

Also note, I like RDI and Floortime as interventions as well. We have used RDI at home with a lot of success on the social front. Neither of these programs is inexpensive if you use therapists, but you can do them on your own with a lot of online help from others who have posted our videos and procedures to help people.

I wish the OP good luck with whatever course she decides to follow. Imo, ABA really helps with things like screaming because they are behavioral. And any communication technique can also help if the screaming is due to frustration with not being understood. PECS, sign language, communication devices can all work to alleviate this kind of frustration.

Dorothy
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Old 05-30-2010, 03:54 PM
 
Location: Pelion, South Carolina/orig. from Cape May, NJ
1,113 posts, read 3,076,686 times
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Thanks again to everyone for their helpful words.
Recently I have discovered that giving my daughter coloring books and crayons will keep her quiet for a long time.Maybe I should stock up for our trip to NJ!
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Old 05-30-2010, 03:59 PM
 
16,012 posts, read 17,799,724 times
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Quote:
Originally Posted by jersgrl1969 View Post
Thanks again to everyone for their helpful words.
Recently I have discovered that giving my daughter coloring books and crayons will keep her quiet for a long time.Maybe I should stock up for our trip to NJ!
I would definitely stock up and if she likes unwrapping presents, try wrapping each coloring book individually so she can unwrap it, color and then get a new one when her interest wanes. We found that on long plane rides unwrapping small dollar store toys was a treat that our kids loved.

Dorothy
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Old 05-31-2010, 07:14 PM
 
804 posts, read 1,733,086 times
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Quote:
Originally Posted by nana053 View Post
Imo, ABA really helps with things like screaming because they are behavioral.
ABA takes us back to 1950s psychology and does nothing to address the metabolic dysfunctions, mitochondrial DNA damage, cytochrome P450 function, neuroimmune disorders, or nutritional toxicology which have been proven to have a neurological impact in autism.

A person is crying out in pain or illness, and ABA's conditioned solution is to address behavior. How about addressing the cause? If your pet were behaving as though it were ill, would you bring it to a veterinarian or to an obedience school? ABA may help with outward behavior but does not address any of the physical health problems which make life and learning more difficult for these children, not to mention the health problems which develop later on.

Dietary intolerances are only another symptom of greater metabolic impairments, and do not work for every child. They do not cause autism, but they do have an impact on what you perceive as behavior. if you don't believe that diet affects behavior, just feed a handful of candy to any 5 year old. Even parents of non-autistic children have seen the effects.

Autism Lack of Attention to Physical Problems

Last edited by nomore07; 05-31-2010 at 07:49 PM..
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Old 05-31-2010, 08:08 PM
 
16,012 posts, read 17,799,724 times
Reputation: 15803
Quote:
Originally Posted by nomore07 View Post
ABA takes us back to 1950s psychology and does nothing to address the metabolic dysfunctions, mitochondrial DNA damage, cytochrome P450 function, neuroimmune disorders, or nutritional toxicology which have been proven to have a neurological impact in autism.

A person is crying out in pain or illness, and ABA's conditioned solution is to address behavior. How about addressing the cause? If your pet were behaving as though it were ill, would you bring it to a veterinarian or to an obedience school? ABA may help with outward behavior but does not address any of the physical health problems which make life and learning more difficult for these children, not to mention the health problems which develop later on.

Dietary intolerances are only another symptom of greater metabolic impairments, and do not work for every child. They do not cause autism, but they do have an impact on what you perceive as behavior. if you don't believe that diet affects behavior, just feed a handful of candy to any 5 year old. Even parents of non-autistic children have seen the effects.

Autism Lack of Attention to Physical Problems
ABA has changed a great deal since it was originally founded. Your prejudices have to do with how ABA was used by Lovaas, but that is NOT how it is used today. My grandson has *no* dietary intolerances. He has never had any issues with these things. When you have seen *one* autistic child, you have only seen *one* child. Every child is different. He never had mushy poops. He never had any indications of allergies.

Aside from that Floortime and RDI are developmental interventions which can also help children with autism.

Dietary interventions help *some* but not all children and as shown in this research, it's also clear that for some children, there is no benefit. It is hard to tell what child will do well and what child will not. As I said before, it may be worth trying, but you cannot expect miracles from any method.

The GFCFKids Diet Survey

As for the sugar and behavior, anecdotes are NOT science

Does Sugar Make Children Hyper? (http://www.drspock.com/article/0,1510,4126,00.html - broken link)

On average, the children on the artificial diet behaved pretty much the same as the children on the all-natural, no-sugar diet. But there were a few children--roughly 1 in 100--who were clearly much more active and out of control on the artificial diet. So I have come to believe that for most children, red dye and refined sugar probably don't make a big difference as far as the symptoms of ADHD go. But for a very few children, they probably do.

Once again, things that cause problems in *some* children, do not cause them in most of the children observed.

Dorothy
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Old 06-01-2010, 01:20 AM
 
804 posts, read 1,733,086 times
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Not all metabolic disorders produce gastrointestinal symptoms. Digestion is only the beginning, foods and chemicals must also be metabolized in the liver and kidneys. When this process is impaired, the body cannot synthesize neurotransmitters properly.

Many children with autism do have medical issues. That is something an ABA therapist is not qualified or legally authorized to diagnose, and should be left to qualified doctors who are familiar with autism. Parents need to be informed so they do not automatically dismiss all symptoms as "behavior".

The purpose of my post was to provide information for the OP, not to engage debate in comparison of treatments. For every so-called study one can find, there is an opposing one. It's important to note where the study was conducted and who funded it. It's not surprising that ABA supporters are taught to vehemently oppose any nutritional or medical treatments (non-prescription). Dismissing these is an inexcusable disservice to the children who do have medical issues which need to be addressed. If your grandson doesn't, then be thankful.

Autism Therapy: Vitamin B6 and magnesium | Healing Thresholds

ScienceDirect - Psychiatry Research : Monoamine oxidase and catechol-o-methyltransferase activities in cultured fibroblasts and blood cells from children with autism and the Gilles de la Tourette syndrome*1

Biochemical aspects in autism spectrum disorders: updating the opioid-excess theory and presenting new opportunities for biomedical intervention; Expert Opinion on Therapeutic Targets - 6(2):Pages 175-183 - Informa Healthcare

Delving Into The Autistic Brain - Part 6

Changing the Course of Autism: A ... - Google Books
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Old 06-01-2010, 12:35 PM
 
804 posts, read 1,733,086 times
Reputation: 458
"A Biological Basis for Neurological Disorders: Autism, Hyperactivity, Attention Deficit Disorder, Depression, Obsessive-Compulsive Disorder..."

http://www.vrfca.org/files/vrf/walsh-interview_0.pdf (broken link)

Biological psychiatry - Wikipedia, the free encyclopedia
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Old 06-01-2010, 07:16 PM
 
16,012 posts, read 17,799,724 times
Reputation: 15803
The purpose of my post was to provide information for the OP, not to engage debate in comparison of treatments. For every so-called study one can find, there is an opposing one. It's important to note where the study was conducted and who funded it. It's not surprising that ABA supporters are taught to vehemently oppose any nutritional or medical treatments (non-prescription). Dismissing these is an inexcusable disservice to the children who do have medical issues which need to be addressed. If your grandson doesn't, then be thankful.

I can only give you my experience, but when you say ABA providers are anti-diet, that has NOT been my experience at all. Neither the pediatricians, ABA providers or other therapists my son has had have been anti-medical intervention where it can help. OTOH, not all children with autism have these issues and you actually do a disservice by suggesting that everyone must try *your* methods. I don't want to debate this either, but it seems to me that parents need to find the particular treatments that work for the individual child and not go by some blanket *authority* who makes a lot of money promoting medical interventions that are often costly and sometimes dangerous, i.e. chelation. The problem I have is with *junk science* and much of the naturopathic stuff is junk science with little to recommend it. My background in math and statistics allows me to read the studies and separate the good ones from the bad ones, but not everyone has that advantage.

As I said before, I am not against trying dietary interventions because they can be helpful for some children. OTOH, parents may need to try ABA, RDI, Floortime, OT, ST and other therapies in addition or without diet depending upon the particular child. I think that the OP needs a range of options.

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Old 06-02-2010, 04:16 PM
 
804 posts, read 1,733,086 times
Reputation: 458
Yes, it's best to let parents decide. Not all of it is junk science or naturopathic, by the way.

Summary of Biomedical Treatments for Autism
By James B. Adams, Ph.D.

http://autism.asu.edu/Additional/Summarybiomed07.pdf

ARI Survey of Parent Ratings of Treatment Efficacy:
% Worse % No Change % Better Number of Reports
Removed Sugar 2% 51% 48% 3695
Feingold Diet 2% 45% 53% 758

Treating Autism with Vitamin B6: Pyridoxine & Magnesium Supplements for Autistic Spectrum Disorders (http://autism-therapy.suite101.com/article.cfm/treating_autism_with_vitamin_b6 - broken link)


Clinical use of methyl-B12 in autism
Guest Editorial: Jaquelyn McCandless, M.D.
http://www.autism.com/ari/newsletter/194/page3.pdf
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