The FH Foundation is a patient-centered humanitarian organization devoted to training, promotion, and exploration of Familial Hypercholesterolemia (FH). Our mission is to bring issues to light and recuperation exists by stretching the rate of in front of calendar discovering and enabling proactive prescription. In case left untreated, FH prompts strong and awkward coronary disease in women, men and children of all racial and ethnic establishments.
The FH Foundation dispatched its site in 2012, giving reliable information on reality of FH. We have a Facebook, Twitter and Linkedin account, where people can join with us particularly. To people who register, we send quarterly flyers and what's more breaking news updates. We disseminate news articles and web journal entrances on our home page and we also reply to ask for on an individual reason, offering support to our parts.
Our noteworthy movement is the FH Foundation's the country over CASCADE FH™ Registry. We have utilized the Duke Clinical Research Institute (the greatest academic clinical investigation companionship on the planet!) to develop and operationalize the registry. This will be the primary element FH registry in the US. All data accumulated and inspect thereof will be IRB-endorse. We are to an extraordinary degree energized (and satisfied!) to manage this colossal undertaking; something we feel is highly needed in the FH foundation.
Due to interest in our organization from various continents, we are furthermore disentangling our informative materials in distinctive lingos, including Spanish, Portuguese, Italian, German, Mandarin, Russian, French, and Lebanese. We might want to land at not simply people who are starting now diagnosed with FH, yet the people who may be at risk of having it.